Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 hi m, i can't help but tell you what i think....right or wrong. i think repeating all those bloods is 99% waste. what on earth does she think she will find that she did not find the first time? sometimes i thing docs do this to make their patients think they are " doing something constructive " . just don't understand it. this is a bias of mine, i know. so take it with a grain of salt. i hope i am wrong. personally, i think you need to try a few things. if the nasid are upsetting your tummy, call her office and get an rx for celebrex. you know it is a cox 2 inhibitor and is much easier on the tummy. it comes in 200mg, the strongest. inflammation is inflammation, period. there are ways to fight it. i think you should try an immunomodulator. there is no doubt you have inflammation, even your sed rate is high. she started you on nothing for this. i think that is a shame. you need some help and she is still " investigating " ....come on. sorry, huge bias here. you know my history. went from doc to doc to doc....blood test to blood test to blood test. finally i said nuf is anuf. after about the 3rd visit to a doc like this, i moved on. ya have to get to the bottom of things at some point. her comments on enteropathic. i don't remember reading about what you mentioned, but if you saw it, i believe it. but i think that kind of response is narrow minded. what she mentioned is in minority. why does she think you have to have a bowel problem to have enteropathic arthritis? then why are you sore? there are treatments for this type of thing...don't understand. sorry, i know i am blunt, nothing against you, but sometimes i hate hearing these doc responses and the patient ends up walking out with nothing in hand but another big bill in hand. i hope i didn't offend you. don't mean to do that. sometimes docs just aggrevate the living $xxx out of me. nuf said, you be well and i hope you get better soon m! jeff > > Hello all! > > Saw the derm doc today and handed in our 'meds' data to her. She was > quite impressed with it all and immediately started scanning what we > all wrote. She read off a med here and there and read > the 'effectiveness' and explained some of them, like with the > antibiotics some were put on, she agreed that no, it wouldn't > work . . . and the Indomethacin, or the Indocin, can't remember > which, she commented that that was one of the main meds like > Prednisone. Sometimes it works, sometimes it doesn't. She wasn't > surprised with all the prednisone results . . . she knew that works > well with a lot of people. So it's all safely and confidentially > delivered . . . and I guess we'll all have to see what she does with > it. > > Personally . . . She agreed that we'd run all my tests again . . . > but she doesn't think we'll find anything new. She totally expects > that the sed rate will be high due to my inflamation . . . and the > red blood cells to be low, due to the Dapsone, etc. She wants to try > me on Methotrexate, so I have to do a 24-hour urine collection before > I can start that . . . to make sure the kidneys can hack it, I > guess. She marked a total of 18 boxes on the lab slip! Plus added 4 > others, to include RA, Lupus, ASO Titer and Prolactin (to make sure > my pituitary tumor isn't making a return.) I asked her about some of > the illness that EN can preclude, i.e. Leukemia and Lymphoma . . . > she said that would show up in the CBC. I asked about MS and other > things my friends had questions about. She went through the symptoms > with me and we ruled them out. I asked her about enteropathic > arthritis, like Jeff suggested. Her answer was odd, but she said > that that is seen moreso in Europe, that it's an arthritis brought on > by a bacterial IBS-type illness. It does explain that in the > websites we've looked at . . . and since I don't have bowel problems, > she's pretty sure I don't have it. She was all over my 'total body > tendonitis', blaming that completely on the EN. And do you think I > thought to ask for something for that pain?? Noooooooooooo. Stupid > me! We talked about the motrin I've taken and how it doesn't work > and how it upsets my tummy . . . but never got around to finding me > something else. I'll have to ask her next week. > > So there I am . . . my lumps are in a major uproar and I'm exhausted > and achey all over. Thank GOD the world series is over!! I don't > think I could take another sleepless night! Congrats, Red Sox!!!! > and Welcome all new members!! > > Shins up! > M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 Jeff, you are so dang sweet to go to bat for me =) Unfortunately, this time I'M the idiot! I ASKED her to run all the tests again. I'm the idiot still looking for a reason for this. So let's turn this around into I'M the one wasting the lab's time and sending wasteful claims to the insurance company =) I guess I'm not accepting 'idiopathic' very well . . . and continue to be 'idiot- pathic' =) What concerns me more is the fact (?) that EN can be a precursor to something bigger . . . IF that's the case with me, I want to catch the 'bigger' early, y'know? So I'm probably a little paranoid as well =) I didn't have time yesterday, but will call her for something for this pain. I have been on Celebrex before for my bum knee . . . turns out I had a deformed meniscus, and only surgery could help that . . . I'll be sure to ask her about it, or anything else that can help with this 'tendonitis' thing. I don't know about the enteropathic arthritis . . . only what I read, and it is associated with IBS-type problems. My plumbing is ok =) so those type illness have been ruled out. She's a pretty smart doc . . . I threw all kinds of illness at her that might be associated and she spit out all the symptoms at me like lightning . . . granted, they're all supposed to know symptoms . . . but it impressed me enough that I feel ok with it. She says she's impressed with MY knowledge regarding EN and its associations, thanks to this group and my own research . . . so I think we're on the same page. So, get mad at me, k? I'm the dingbat! =) Thank you so much for caring! Don't let me slip up again! I hope your eye is better today! Sounds like a horrible thing to have. Good for Halloween though, huh?? You could freak a lot of little kids out!! =) We have to find the positives, right?? =) Take very good care! M > > > > Hello all! > > > > Saw the derm doc today and handed in our 'meds' data to her. She > was > > quite impressed with it all and immediately started scanning what > we > > all wrote. She read off a med here and there and read > > the 'effectiveness' and explained some of them, like with the > > antibiotics some were put on, she agreed that no, it wouldn't > > work . . . and the Indomethacin, or the Indocin, can't remember > > which, she commented that that was one of the main meds like > > Prednisone. Sometimes it works, sometimes it doesn't. She wasn't > > surprised with all the prednisone results . . . she knew that works > > well with a lot of people. So it's all safely and confidentially > > delivered . . . and I guess we'll all have to see what she does > with > > it. > > > > Personally . . . She agreed that we'd run all my tests again . . . > > but she doesn't think we'll find anything new. She totally expects > > that the sed rate will be high due to my inflamation . . . and the > > red blood cells to be low, due to the Dapsone, etc. She wants to > try > > me on Methotrexate, so I have to do a 24-hour urine collection > before > > I can start that . . . to make sure the kidneys can hack it, I > > guess. She marked a total of 18 boxes on the lab slip! Plus added > 4 > > others, to include RA, Lupus, ASO Titer and Prolactin (to make sure > > my pituitary tumor isn't making a return.) I asked her about some > of > > the illness that EN can preclude, i.e. Leukemia and Lymphoma . . . > > she said that would show up in the CBC. I asked about MS and other > > things my friends had questions about. She went through the > symptoms > > with me and we ruled them out. I asked her about enteropathic > > arthritis, like Jeff suggested. Her answer was odd, but she said > > that that is seen moreso in Europe, that it's an arthritis brought > on > > by a bacterial IBS-type illness. It does explain that in the > > websites we've looked at . . . and since I don't have bowel > problems, > > she's pretty sure I don't have it. She was all over my 'total body > > tendonitis', blaming that completely on the EN. And do you think I > > thought to ask for something for that pain?? Noooooooooooo. > Stupid > > me! We talked about the motrin I've taken and how it doesn't work > > and how it upsets my tummy . . . but never got around to finding me > > something else. I'll have to ask her next week. > > > > So there I am . . . my lumps are in a major uproar and I'm > exhausted > > and achey all over. Thank GOD the world series is over!! I don't > > think I could take another sleepless night! Congrats, Red Sox!!!! > > and Welcome all new members!! > > > > Shins up! > > M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2004 Report Share Posted October 30, 2004 m, ohhhhhhhhhhhhhhh, i thought it was the doc's brainy idea...lol. no, you are not a dingbat, no you ARE NOT an idiot. i did the exact same thing, a few times over. then one day, a doc sat me down to explain the facts of life about blood tests to me. lol. besides, i like going to bat for you. glad you took what i wrote in the right spirit. i felt bad after i sent that, thinking your would come gunning for me....hee, hee. you can still have enteropathic sx's such as arthritis with no bowel problems. all of this krap is related to autoimmunity, pg, en, ibd and so forth. you CAN HAVE one, some, all of these issues, there ARE NO RULES...sorry, don't mean to yell...lol....not yelling..shhhhhh. so, you get help for the pain. maybe go see a rheumy or did you do that already? or is this doc a rheumy? can't remember what you might have said. what about a teaching medical center? where do you live m? i have used lidocaine patches if nothing else works. they work. at least you aren't putting too many meds in your body that way, just what is absorbed thru the skin via the lidocaine. alternative for you if you can't get a nsaid to work for you. you go-girl. jeff > > Jeff, you are so dang sweet to go to bat for me =) Unfortunately, > this time I'M the idiot! I ASKED her to run all the tests again. > I'm the idiot still looking for a reason for this. So let's turn > this around into I'M the one wasting the lab's time and sending > wasteful claims to the insurance company =) I guess I'm not > accepting 'idiopathic' very well . . . and continue to be 'idiot- > pathic' =) What concerns me more is the fact (?) that EN can be a > precursor to something bigger . . . IF that's the case with me, I > want to catch the 'bigger' early, y'know? So I'm probably a little > paranoid as well =) I didn't have time yesterday, but will call her > for something for this pain. I have been on Celebrex before for my > bum knee . . . turns out I had a deformed meniscus, and only surgery > could help that . . . I'll be sure to ask her about it, or anything > else that can help with this 'tendonitis' thing. > > I don't know about the enteropathic arthritis . . . only what I read, > and it is associated with IBS-type problems. My plumbing is ok =) so > those type illness have been ruled out. She's a pretty smart > doc . . . I threw all kinds of illness at her that might be > associated and she spit out all the symptoms at me like > lightning . . . granted, they're all supposed to know symptoms . . . > but it impressed me enough that I feel ok with it. She says she's > impressed with MY knowledge regarding EN and its associations, thanks > to this group and my own research . . . so I think we're on the same > page. > > So, get mad at me, k? I'm the dingbat! =) Thank you so much for > caring! Don't let me slip up again! I hope your eye is better > today! Sounds like a horrible thing to have. Good for Halloween > though, huh?? You could freak a lot of little kids out!! =) We have > to find the positives, right?? =) > > Take very good care! > > M Quote Link to comment Share on other sites More sharing options...
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