Re: Newbie here! Need advice about Botox for son

[Guest guest]

Lori,

I don't have any advice about Botox, but I had a question. What kind

of doctor did you go to about the toe walking?

I have a 19-month-old that toe walks just a little bit a day. I don't

know whether that will go away. None of my other children did it.

He also likes to put on his siblings's shoes that have heels. I know

this can be for play, but he does it a lot and I wonder if it feels

better for his feet? What happened with your son when he was little?

I hope all goes well with your son.

Anne

>

> Hey All.

>

> My four year old 30 lb son (undiagnosed) is on Valtrex now. (Just

> under 2 weeks)

> No rashes or foul behavior yet. Last week he was diagnosed with

> dystonia in his legs ( he is a hard toe walker) His heal cord is

> already starting to shorten. The doc said Botox injections in his

> legs would correct his toe walking and his legs/ gait would improve

> over time.

>

> I'd like advice from other parents who have tried Botox with their ASD

> kids, what kind of results were seen and if there were any long term

> side effects. The Botox is expensive as heck. Up to $2,100 per vial

> I'm told. So any advice or stories to share would be much

> appreciated. As you can understand, I dont want to foolishly jump

> into this blindfolded.

>

> Thank you

> Lori

>