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sinus NCC

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It took years, and lots of doctor visits, but I have

managed to find doctors who understand Chiari and the

complicated-ness of Chiari-EDS-etc. My allergist,

ob-gyn and pcp all know about these conditions, did

research, and understand that I am not a " normal "

patient and they take extra tiem with me.

Except for an ENT. I have seen several who were so

dismissive and unhelpful I am almost afraid to try

again, but I am having constant pain in my sinuses

that are triggering migraines and making the back of

my head hurt. But, I am going to have to find

someone, this is getting ridiculous. The only things

that will relieve the pain are antibiotics or Imitrex

and my neurologist wants me to get of the Imitrex, but

I am going to have to call him and say, " not yet, too

much pain. "

aarrgghh ...

Hanna

decompressed 2005

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