Re: Antithyroid antibodies link to gluten

[Guest guest]

Thanks for this.........I believe my years of undiagnosed CD led to me

getting Hashi's.............Meleese x

----- Original Message -----

> The Celiac/Autoimmune Thyroid Connection

> Research links Celiac Sprue Gluten-Intolerance to autoimmune thyroid

> disease

> By Shomon, About.com

> Created: December 13, 2003

>

> http://thyroid.about.com/cs/latestresearch/a/celiac.htm

>

[Guest guest]

Hi Meleese,

If you bake; just curious as to what kind of gluten-free flour you

use for baking? I have experimented and haven't came up with a kind

of flour or a mixture of several kinds of flours that has good

texture, is tasty (or at least my kids will tolerate), and doesn't

taste grainy or gummy.

What flour or flours do you bake with?

Currently I am using Bob's Red Mill All Purpose GF Baking Flour. It

has several flours: garbanzo bean flour, tapioca flour, white sorghum

flour and fava bean flour; and also has potato starch. But I haven't

been able to get the same combo mixture.

I want to make my own as this flour (Bob's) could be contaminated

with soy.

Any ideas?

Bj

>

> Thanks for this.........I believe my years of undiagnosed CD led to

me

> getting Hashi's.............Meleese x

>

> ----- Original Message -----

>

>

>

> > The Celiac/Autoimmune Thyroid Connection

> > Research links Celiac Sprue Gluten-Intolerance to autoimmune

thyroid

> > disease

> > By Shomon, About.com

> > Created: December 13, 2003

> >

> > http://thyroid.about.com/cs/latestresearch/a/celiac.htm

> >

>

[Guest guest]

Hi Bj must admit I haven't gotten into the whole baking thing yet, have kept

things fairly simple . They do say though to use a mixture of flours

Am in the throes of moving so am hoping once I'm settled will be able to do

some experimenting. One thing I've noticed is that bought gluten free things

here in Australia (biscuits etc) often have a heavy serving of soy in them

sometimes several different lots .....ugh!...........and I believe I react

with CD-type symptoms if I " pig out " too much on anything heavy with soy. I

try to avoid soy altogether but it's hard

If you go to

www.celiac.com

you will see a forum link at the top, they have heaps of info/suggestions,

you don't have to join to read

Will let you know in weeks to come how I get on....................Meleese x

----- Original Message -----

> Hi Meleese,

>

> If you bake; just curious as to what kind of gluten-free flour you

> use for baking? I have experimented and haven't came up with a kind

> of flour or a mixture of several kinds of flours that has good

> texture, is tasty (or at least my kids will tolerate), and doesn't

> taste grainy or gummy.

>

> What flour or flours do you bake with?

>

> Currently I am using Bob's Red Mill All Purpose GF Baking Flour. It

> has several flours: garbanzo bean flour, tapioca flour, white sorghum

> flour and fava bean flour; and also has potato starch. But I haven't

> been able to get the same combo mixture.

>

> I want to make my own as this flour (Bob's) could be contaminated

> with soy.

>

> Any ideas?

>

> Bj

>

>

>

>

>

>>

>> Thanks for this.........I believe my years of undiagnosed CD led to

> me

>> getting Hashi's.............Meleese x

>>

[Guest guest]

Bj,

Interesting article, thanks.

My dd(8) who was just diagnosed hypo-t recently(october) .. has been

gluten all her life except for traces of gluten in her first 2 years.

She has had no detectable thyroid antibodies in her blood testing

for months...and that has stumped the doctors.

Her anti-tpo finally showed a # this june..it was

14 reference range ..less than 35 IU/ml.

her tsh was also getting too high on this test..she was just starting

to get dizzy spells, and pain in her neck also..

she is fine now with her meds. upped.

I do think many people can keep their antibodies down and possibly

have less destruction to their thyroid by just being gluten free..as

dd had no antibodies..and with such a big goiter you'd think she would

But i do think hastimo's and gluten intolerance(celiac) can just

happen together... as dd never ate gluten...and she has both.

cathy...mom to rachel

[Guest guest]

Hi ,

Isn't this amazing?

I was quite surprised, as I had searched for the gluten connection,

but hadn't found any until now. I just stumbled onto this and found

a whole lot more, too. Taking 200 mcg of selenium a day brought down

my anti-TPO antibodies a bit, they were around 8,000 in Aug 2000. In

2002 they had come down to 7,500 and dropped to 7,000 in 2004. I had

a setback in 2004 from a biased Endo and went in Myxedema Coma. The

antibodies were over 10,000 after that. I found my current bio-

chemist doc in July of 2005. The antibodies were 9,200. One year

after going GF they were 3,100. Last year 1,234 and in June 2008

they were 452.

Not sure if this has anything to do with lowering anti-TPO abs, but I

keep feeling better all the time. I don't have that dragging dead-

weight feeling. Maybe it's just that my T3 is getting where it

should be and my mood and outlook is like that of a healthy person.

Whatever it is I don't want to loose it. All along I kept thinking

the selenium isn't making a big difference it has to be going GF.

Although I think the selenium may have helped with my converting T4

to T3.

Bj

>

> Bj,

> Interesting article, thanks.

> My dd(8) who was just diagnosed hypo-t recently(october) .. has

been

> gluten all her life except for traces of gluten in her first 2

years.

> She has had no detectable thyroid antibodies in her blood testing

> for months...and that has stumped the doctors.

> Her anti-tpo finally showed a # this june..it was

> 14 reference range ..less than 35 IU/ml.

> her tsh was also getting too high on this test..she was just

starting

> to get dizzy spells, and pain in her neck also..

> she is fine now with her meds. upped.

>

> I do think many people can keep their antibodies down and possibly

> have less destruction to their thyroid by just being gluten free..as

> dd had no antibodies..and with such a big goiter you'd think she

would

> But i do think hastimo's and gluten intolerance(celiac) can just

> happen together... as dd never ate gluten...and she has both.

>

>

> cathy...mom to rachel

>

[Guest guest]

my kiddos doc tells me selenium is very important...

i dont have time for researching this..he is a darn good doc...i trust

his recommendations...

my son takes selenium...and the doc is concerned about his thyroid

too...(we are monitoring it)i think a lot of people with immune

diseases need it..

dd will likely take it soon...

c.

-- In Thyroiditis , " beckyjov " wrote:

>

> Hi ,

>

> Isn't this amazing?

>

> I was quite surprised, as I had searched for the gluten connection,

> but hadn't found any until now. I just stumbled onto this and found

> a whole lot more, too. Taking 200 mcg of selenium a day brought down

> my anti-TPO antibodies a bit, they were around 8,000 in Aug 2000. In

> 2002 they had come down to 7,500 and dropped to 7,000 in 2004. I had

> a setback in 2004 from a biased Endo and went in Myxedema Coma. The

> antibodies were over 10,000 after that. I found my current bio-

> chemist doc in July of 2005. The antibodies were 9,200. One year

> after going GF they were 3,100. Last year 1,234 and in June 2008

> they were 452.

>

> Not sure if this has anything to do with lowering anti-TPO abs, but I

> keep feeling better all the time. I don't have that dragging dead-

> weight feeling. Maybe it's just that my T3 is getting where it

> should be and my mood and outlook is like that of a healthy person.

> Whatever it is I don't want to loose it. All along I kept thinking

> the selenium isn't making a big difference it has to be going GF.

> Although I think the selenium may have helped with my converting T4

> to T3.

>

> Bj

>

>

>

>

>

> >

> > Bj,

> > Interesting article, thanks.

> > My dd(8) who was just diagnosed hypo-t recently(october) .. has

> been

> > gluten all her life except for traces of gluten in her first 2

> years.

> > She has had no detectable thyroid antibodies in her blood testing

> > for months...and that has stumped the doctors.

> > Her anti-tpo finally showed a # this june..it was

> > 14 reference range ..less than 35 IU/ml.

> > her tsh was also getting too high on this test..she was just

> starting

> > to get dizzy spells, and pain in her neck also..

> > she is fine now with her meds. upped.

> >

> > I do think many people can keep their antibodies down and possibly

> > have less destruction to their thyroid by just being gluten free..as

> > dd had no antibodies..and with such a big goiter you'd think she

> would

> > But i do think hastimo's and gluten intolerance(celiac) can just

> > happen together... as dd never ate gluten...and she has both.

> >

> >

> > cathy...mom to rachel

> >

>

[Guest guest]

I have no doubt that there's a gluten connection to antibodies, also soybean oil

is a big

factor. Soybean oil is in approximately 80% of prepackaged or processed

products, even

in items, some would never think of, like yogurt.

Linn

>

> Hi ,

>

> Isn't this amazing?

>

> I was quite surprised, as I had searched for the gluten connection,

> but hadn't found any until now. I just stumbled onto this and found

> a whole lot more, too. Taking 200 mcg of selenium a day brought down

> my anti-TPO antibodies a bit, they were around 8,000 in Aug 2000. In

> 2002 they had come down to 7,500 and dropped to 7,000 in 2004. I had

> a setback in 2004 from a biased Endo and went in Myxedema Coma. The

> antibodies were over 10,000 after that. I found my current bio-

> chemist doc in July of 2005. The antibodies were 9,200. One year

> after going GF they were 3,100. Last year 1,234 and in June 2008

> they were 452.

>

> Not sure if this has anything to do with lowering anti-TPO abs, but I

> keep feeling better all the time. I don't have that dragging dead-

> weight feeling. Maybe it's just that my T3 is getting where it

> should be and my mood and outlook is like that of a healthy person.

> Whatever it is I don't want to loose it. All along I kept thinking

> the selenium isn't making a big difference it has to be going GF.

> Although I think the selenium may have helped with my converting T4

> to T3.

>

> Bj

[Guest guest]

I used to do a cursory read only of ingredients til I was diagnosed with

Coeliac Disease.

Today I read everything and I can't believe how much soy is put into g/f

products...........usually 2-3 different sorts it's just loaded with the

stuff!!

Once I move I'm going to get seriously interested in g/f

baking.............Meleese x

----- Original Message -----

>I have no doubt that there's a gluten connection to antibodies, also

>soybean oil is a big

> factor. Soybean oil is in approximately 80% of prepackaged or processed

> products, even

> in items, some would never think of, like yogurt.

>

> Linn

>

[Guest guest]

Yes, it gets tougher if you're avoiding soy also. My little one doesn't do

gluten, casein,

soy, and has to be low carb to boot. There aren't too many things that qualify

ready made.

I've got quite a bit of info on different flours and combinations recommended

for specific

types of use, if anyone is interested. Just email me at my regular email

address:

linnmiller@...

and I'll be glad to forward.

Linn

>

> I used to do a cursory read only of ingredients til I was diagnosed with

> Coeliac Disease.

>

> Today I read everything and I can't believe how much soy is put into g/f

> products...........usually 2-3 different sorts it's just loaded with the

> stuff!!

> Once I move I'm going to get seriously interested in g/f

> baking.............Meleese x

>

[Guest guest]

Linn,

I am very much interested. I stay away from dairy as well. I know

what you mean by " limited " options. My kids eat some diary, like

milk and cheese. Thank goodness they don't like yogurt or cottage

cheese. I can't even find a brand of ice cream without soy.

I don't consume very much carbs either, but I'd rather bake or make

some with good nutrition than listen to my kids beg for the packaged

yuck. Or worse eat premade jubk at a friends house. When they are

satisified they by-pass the bad junk food elsewhere usually.

Bj

> >

> > I used to do a cursory read only of ingredients til I was

diagnosed with

> > Coeliac Disease.

> >

> > Today I read everything and I can't believe how much soy is put

into g/f

> > products...........usually 2-3 different sorts it's just loaded

with the

> > stuff!!

> > Once I move I'm going to get seriously interested in g/f

> > baking.............Meleese x

> >

>

[Guest guest]

A big goiter with no TPOabs can also mean iodine deficient and in

rare cases, cancer. But you also have to keep in mind that some

people have high TPOabs that don't get picked up by blood test.

TPOabs are immune system cells that are often only located near the

site of the thyroid destruction. I've read several reports on Pubmed

about people who have goiters with " NEG " TPOab results (blood test)

but a biopsy of the gland itself reveals large numbers of TPOabs -

but these antibodies are all located within the thyroid gland. This

means they wouldn't be picked up by a blood test and have to be

measured by biopsy.

I have both GD and Hashis, was exposed to military bomb testing

radiation as an infant, and eat gluten and quite a bit of soy foods

too (I'm a pescatarian). Despite all of that I have lowered my

antibodies (both types: the TPOab and TRab) over the past 1.5 yrs

using ATD therapy. My son also had both GD and Hashi's but never had

the gluten problem. Three years after ATD treatment he went into

remission from GD. He's been in remission over 2 years now and

taking no meds (age 14).

During ATD therapy, his TPOabs dropped from 20,000 to 1000 - all

while continuing to eat soy and gluten. This shows that not all

people with thyroid autoimmune disease need to go gluten free or soy

free in order to heal. Just wanted to add our 2 stories here...

Take care!

Val

>

> Bj,

> Interesting article, thanks.

> My dd(8) who was just diagnosed hypo-t recently(october) .. has

been

> gluten all her life except for traces of gluten in her first 2

years.

> She has had no detectable thyroid antibodies in her blood testing

> for months...and that has stumped the doctors.

> Her anti-tpo finally showed a # this june..it was

> 14 reference range ..less than 35 IU/ml.

> her tsh was also getting too high on this test..she was just

starting

> to get dizzy spells, and pain in her neck also..

> she is fine now with her meds. upped.

>

> I do think many people can keep their antibodies down and possibly

> have less destruction to their thyroid by just being gluten free..as

> dd had no antibodies..and with such a big goiter you'd think she

would

> But i do think hastimo's and gluten intolerance(celiac) can just

> happen together... as dd never ate gluten...and she has both.

>

>

> cathy...mom to rachel

>

[Guest guest]

Hi Val,

In prior posts you said that after your son went into remission from

Graves' his antibodies sky rocketed to 10,000. And claimed that high

numbers of (assuming TPO) antibodies didn't mean high destruction.

Now I am confused. Could you please clarify?

Bj

> >

> > Bj,

> > Interesting article, thanks.

> > My dd(8) who was just diagnosed hypo-t recently(october) .. has

> been

> > gluten all her life except for traces of gluten in her first 2

> years.

> > She has had no detectable thyroid antibodies in her blood

testing

> > for months...and that has stumped the doctors.

> > Her anti-tpo finally showed a # this june..it was

> > 14 reference range ..less than 35 IU/ml.

> > her tsh was also getting too high on this test..she was just

> starting

> > to get dizzy spells, and pain in her neck also..

> > she is fine now with her meds. upped.

> >

> > I do think many people can keep their antibodies down and possibly

> > have less destruction to their thyroid by just being gluten

free..as

> > dd had no antibodies..and with such a big goiter you'd think she

> would

> > But i do think hastimo's and gluten intolerance(celiac) can just

> > happen together... as dd never ate gluten...and she has both.

> >

> >

> > cathy...mom to rachel

> >

>

[Guest guest]

My son's TPOabs dropped from 20,000 to 1,000 almost immediately after

starting ATD. They remained this way from 2003 to 2006. At the same

time, his TSH Receptor abs dropped from 220's to <0. (he never

stopped eating soy and gluten, but did stop eating high iodine foods

such as seaweed)

When he stopped taking ATD several years later (when TPOab were at

1000 and TRab <1) his TPOabs did rise back up to 10,000 again, but

TRab never came back. His endo explained that the ATD is

an " immunosuppressant " and that when you stop the drug, you may see a

rise in Abs since the immune system has " been released " .

No doubt, the high TPOab worried me, but the endo (a researcher at a

top endo clinic in the USA) explained that seeing an increase in

TPOabs after ATD withdrawal does not necessarily mean more

destruction is taking place --- and the *PERCENTAGE* of decrease is

more important rather than the number detected.

Indeed, my son's TPOabs had fallen during therapy by 100% (from

20,000 to 10,000).

He also explained that most people with TPOabs will continue to have

TPOabs forever - until the thyroid has been totally destroyed and

there is no more thyroperoxidase antigen for them to target. So,

again, you can see that the quantity is not always what matters.

The " 10,000 " number may be considered high by an outsider at first

glance, but you'd have to know the correlation with the number of

active immune B-cells my son may also have.

Perhaps his immune system is super strong (which is common in younger

patients). So rather than focus on the " Number " , you'd want to follow

the progression. You'll then see a 100% drop is a *major* decrease in

TPOab.

While on ATD, my TRab abs also dropped from 223 to 100 in just 8

short months. I haven't been looking at my TPOabs since they dropped

from 850 to 600 about 2 months after starting ATD.

This all happened while we both ate soy and gluten.

My son has been in remission since June 2006, off all meds, and his

thyroid labs have been great ever since. He doesn't even see an endo

anymore. He just gets yearly thyroid labs from his local GP.

He's still a vegetarian and still eats soy and gluten with no

problems whatsoever.

I just thought it would be good to let people know that not everyone

has to avoid soy and gluten -- as we're not all alike. There are

people with Celiac and other soy/gluten sensitivities, certainly -

but we just aren't among that group.

Soy is a goitrogen (blocks hormone production), so you have to make

sure you only take it ONLY in moderation if you have problems with

HyPO. We don't eat large amounts either.

Take care~

Val

> > >

> > > Bj,

> > > Interesting article, thanks.

> > > My dd(8) who was just diagnosed hypo-t recently(october) ..

has

> > been

> > > gluten all her life except for traces of gluten in her first 2

> > years.

> > > She has had no detectable thyroid antibodies in her blood

> testing

> > > for months...and that has stumped the doctors.

> > > Her anti-tpo finally showed a # this june..it was

> > > 14 reference range ..less than 35 IU/ml.

> > > her tsh was also getting too high on this test..she was just

> > starting

> > > to get dizzy spells, and pain in her neck also..

> > > she is fine now with her meds. upped.

> > >

> > > I do think many people can keep their antibodies down and

possibly

> > > have less destruction to their thyroid by just being gluten

> free..as

> > > dd had no antibodies..and with such a big goiter you'd think

she

> > would

> > > But i do think hastimo's and gluten intolerance(celiac) can

just

> > > happen together... as dd never ate gluten...and she has both.

> > >

> > >

> > > cathy...mom to rachel

> > >

> >

>