Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Wow, Becky - thanks for such a detailed response. I will share alot of this info with my GI doc next week, to at least prompt him for those blood tests. You are saying you have Gluten intolerance but DO NOT have Celiac disease? I confess I thought the two were one in the same. I have been wondering for a long time if I have Celiac, and possibly this SPAWNED my autoimmune Hashi's hypothyroidism. All tests thus far for Celiac (was tested a few years ago) come up negative. Autoimmune disease really is a mystery to me - I want to believe that something else is causing it, something else is wrong in my body that is raising the immune response. I may be just sick of being a thin guy and looking for an explanation! Thanks again,Jim Stealth testing <<<do you know what type of testing is performed for a stealth virus? Sounds like a general term that could apply to many types of things - I assume it would not be one single test. Is there a panel of tests for this you are familiar with? I will ask the GI doc whom I see next week. Thanks,>>> Hi Jim, I don't if there is a testing panel or a list of tests per say that the medical community has set up. I did the Diagnos Tech saliva digestive testing and found I had two nasty bugs. I would recommend that testing. I wish I had back all the money that was wasted on traditional tests. I would have a small fortune. With your weight staying down it may possibly be an absorption problem – or not. I kept this article I found that is interesting. It didn't help me for a long time as I don't have Celiac Disease - I have Gluten Intolerance. It's ironic I had most of the symptoms like anemia, low folate, phosphorus and elevated alkaline phosphatase levels, low vitamin d, low vitamin b-12; my calcium and albumin were normal although at the lower end. http://www.resident andstaff. com/issues/ articles/ 2005-11_02. aspI even emailed the authors and told them my story. That it is "NOT" only celiac people that have these problems. Anyway, my doctor ordered these tests to rule out stealth infections: CBC. Complete Blood Count with Platelets & Differentials, - Serum Iron, - Transferrin % of Saturation, - Ferritin, - ESR: Sed Rate, - CRP: C-Reactive Protein, - Rheumatoid Factor - Comprehensive Metabolic Profile – Liver Function Panel and Chemistry Screening Diagnos Tech, GI-2-Extended GI Panel for GI infections: Yeast, fungus, worms, bacteria, parasites, food intolerances, (gluten, soy, milk, egg), c.difficile toxins A & B, inflammation etc. This test also evaluates the 'good guys': bacteria, enzymes etc. http://www.diagnost echs.com/ Note: a doctor must order these saliva tests. TARCI, The Arthritis Research Center in land for Stealth Infections - Mycoplasma and Chlamydia. I learned a lot from the book: "The New Arthritis Breakthrough" by Henry Scammell The only lab my doctor would use for Lyme's is: IGeneX http://www.igenex. com/ (A bit pricey, probably because I didn't/don't have it) The other Stealth (virus) tests he ordered (I think you can get them at almost any lab, we used Quest) were for herpes, CMV - Cyto Megalo Virus, EBV - Epstein-Barr Virus. I haven't done any heavy metal testing other than for specifically mercury. Also for heavy metals, you may want to read this book: Hair Test Interpretation: Finding Hidden Toxicities by Hall Cutler, Ph. D., P. E. http://www.noamalga m.com/hairtestbo ok.html or http://www.noamalga m.comfor more on heavy metals. Someone sent me these links and info on heavy metals. I didn't use the labs. Check it if you want or not. http://www.bodybala nce.com/http://www.greatpla inslaboratory. com/metals. htmhttp://www.beatcfsa ndfms.org/ html/CheckForHg. html I don't know if hair, blood or urine is the best testing. I will make a mental note to discuss this with my doc. He is also a Broda doc and a bio-chemist, so he should know. Amy, did a hair test not too long ago. You may want to go back and read her posts. HTH,Bj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 I was diagnosed with CD last year at the age of 59 after being told for 47 years I had "IBS" and there was "nothing they could do" If I been gluten free all those years then maybe just maybe I wouldn't have developed Hashi's Did you have all the antibodies testing? There are at least 3 of them I think had 4 done From what I understand GI and CD differ in that with GI you have no damage to the lower intestines , but can still have the same symptoms. Two of my biggest symptoms of a glutening these days are brain fog from hell and crippling fatigue (very similar to my thyroid symptoms) Sometimes people do a "gluten challenge" cut out all gluten for 4-6 weeks then re-introduce it to see if there is a reaction. Good website here with a forum www.celiac.com Meleese x ----- Original Message ----- From: Siegfried Wow, Becky - thanks for such a detailed response. I will share alot of this info with my GI doc next week, to at least prompt him for those blood tests. You are saying you have Gluten intolerance but DO NOT have Celiac disease? I confess I thought the two were one in the same. I have been wondering for a long time if I have Celiac, and possibly this SPAWNED my autoimmune Hashi's hypothyroidism. All tests thus far for Celiac (was tested a few years ago) come up negative. Autoimmune disease really is a mystery to me - I want to believe that something else is causing it, something else is wrong in my body that is raising the immune response. I may be just sick of being a thin guy and looking for an explanation! Thanks again,Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Hi - Thanks for the information - I for years had what I always thought was IBS, but nothing was ever abnormally noted in any docs testing. From the sounds of it, I guess a great way to assess CD is the gluten free challenge. Perhaps I will start that - so the idea is that if I go gluten-free for 4-6 weeks, then switch back and have NO reaction, then I am not CD? I wonder how accurate that is, or can a non-CD person still have some problems going back onto gluten after a period of gluten-free dieting? Thanks, Re: Stealth testing I was diagnosed with CD last year at the age of 59 after being told for 47 years I had "IBS" and there was "nothing they could do" If I been gluten free all those years then maybe just maybe I wouldn't have developed Hashi's Did you have all the antibodies testing? There are at least 3 of them I think had 4 done From what I understand GI and CD differ in that with GI you have no damage to the lower intestines , but can still have the same symptoms. Two of my biggest symptoms of a glutening these days are brain fog from hell and crippling fatigue (very similar to my thyroid symptoms) Sometimes people do a "gluten challenge" cut out all gluten for 4-6 weeks then re-introduce it to see if there is a reaction. Good website here with a forum www.celiac.com Meleese x ----- Original Message ----- From: Siegfried Wow, Becky - thanks for such a detailed response. I will share alot of this info with my GI doc next week, to at least prompt him for those blood tests. You are saying you have Gluten intolerance but DO NOT have Celiac disease? I confess I thought the two were one in the same. I have been wondering for a long time if I have Celiac, and possibly this SPAWNED my autoimmune Hashi's hypothyroidism. All tests thus far for Celiac (was tested a few years ago) come up negative. Autoimmune disease really is a mystery to me - I want to believe that something else is causing it, something else is wrong in my body that is raising the immune response. I may be just sick of being a thin guy and looking for an explanation! Thanks again,Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Since the scientific community is still figuring out which bacteria/parasites have a symbiotic relationship with our own bodies, how does this company know how to 'evaluate' the " good guys " from the " bad guys " ? > Yeast, fungus, worms, bacteria, parasites, food intolerances, (gluten, soy, milk, egg), > c.difficile toxins A & B, inflammation etc. This test also evaluates the 'good guys': bacteria, enzymes etc. http://www.diagnostechs.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Val, I assume this is a rhetorical question. Their website and contract info is available for anyone to contact them directly. Bj > > Since the scientific community is still figuring out which > bacteria/parasites have a symbiotic relationship with our own bodies, > how does this company know how to 'evaluate' the " good guys " from > the " bad guys " ? > > > > Yeast, fungus, worms, bacteria, parasites, food intolerances, > (gluten, soy, milk, egg), > > c.difficile toxins A & B, inflammation etc. This test also evaluates > the 'good guys': bacteria, enzymes etc. http://www.diagnostechs.com/ > Quote Link to comment Share on other sites More sharing options...
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