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hi i have erythema nodsum an have had it now for 2 yrs, getting a bit

feed up as it limits what i can do when in pain.

i couldn't help noticing you saying your are getting over it but have

ra wots this? please write back vicki x

Dear Vicki,

Getting over it? Well I don't know what post you are referring to

but I must have either been talking about a flare-up or the fact that

I don't get it as severly as before. I don't have as much pain as I

used to if that is what you mean. I have had it for 35 years now...not

steadily but in and out of remission. The early flare-ups were the

worse for me. I think my skin is stretched from swelling so much, and

that is my guess as to why it isn't as painful. Been using an

anti-embolism stocking and that is helping too. Luckly I only get it

in one leg.

Let us know if you have any related disorders ( like crohn's or

sarcoidosis) as that may contribute to the EN--also have you been

tested for all the " usual suspects " ( like strep infection) and do you

take any form of birth conrol--either pills or depo shots? Look at our

Links>>erythema nodosum for all the things that can cause it. We have

loads of info on this site.

Love,

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> hi i have erythema nodsum an have had it now for 2 yrs, getting a

bit

> feed up as it limits what i can do when in pain.

> i couldn't help noticing you saying your are getting over it but

have

> ra wots this? please write back vicki x

>

> Dear Vicki,

> Getting over it? Well I don't know what post you are referring

to

> but I must have either been talking about a flare-up or the fact

that

> I don't get it as severly as before. I don't have as much pain as I

> used to if that is what you mean. I have had it for 35 years

now...not

> steadily but in and out of remission. The early flare-ups were the

> worse for me. I think my skin is stretched from swelling so much,

and

> that is my guess as to why it isn't as painful. Been using an

> anti-embolism stocking and that is helping too. Luckly I only get it

> in one leg.

> Let us know if you have any related disorders ( like crohn's or

> sarcoidosis) as that may contribute to the EN--also have you been

> tested for all the " usual suspects " ( like strep infection) and do

you

> take any form of birth conrol--either pills or depo shots? Look at

our

> Links>>erythema nodosum for all the things that can cause it. We

have

> loads of info on this site.

> Love,

>

sorry rebecca i dint mean getting over it, just after a flare up!

yes i have been tested for the most ones that cause en an i havenet

got any.

am off to see the bowl specalist on the 5th as i have a lot of

proplem with them an as this could be the cause for en.

also on the 7th iam seeing the skin specalist to try and get to the

bottom of this which u propley no your self i will be lucky if i do!

:(

i dont take any birth control or any thing like that all i take is

kapake tablets for the pain and my inhalers but saying that the

kapake is not working for me so i am waiting to see the doc this

afternoon and he is going to put me on somthing stronger.

thanks alot for replying

love vicki x

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