Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hello All, I was referred to the wonderful source of information from the PANDAS group. In my vocation, I work with many patients with autoimmune disorders (all adults) and several have reported in their most exacerbated episodes being prescribed Zovirax or Valtrex with amazing results. This had me pose the question to the PANDAS group, had anyone tried or heard of antivirals for PANDAS. A listmember referred me to this group and I have learned much in the past few days just from reading. My son (12) does not fall into the ASD. He is classic PANDAS but I can see so many similarities between what appears to be the progression of Autism and PANDAS (and all the other autoimmune conditions I work with daily). I have read Stan's How To Get Started file and it's been very helpful in outlining my upcoming discussion with his doctor this week. I am blessed to have one who will openmindedly listen to what I have to say and fortunately this site gives me lots of statistical backup. My questions are these: Is there anyone here who has a child who is dealing with just PANDAS? Do you Stan, or anyone else, feel that the suggested start up of antifungals then antivirals along with antifungals should be altered in the case of PANDAS. We're currently using organic meats & organic, but limited dairy, probiotics daily in the form of Kefir, supplementing vit C, E, fish oil and a greens formula for B complex. Thank you again to everyone, were it not for the information I have found from groups like this my son would be in far worse shape than he currently is. Best wishes to all. Gayle Quote Link to comment Share on other sites More sharing options...
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