Sleep Study Results

[Guest guest]

Hello Group,

I had a sleep study done Sunday night... it was more for a day time / night

time sleep study if that makes any sense... I went to a " sleeping "

setting... it was kinda like a hotel room in a building lol... I was hooked

up to all these wires and stuff and then told to go on about my night like I

normally would until it was time for me to go to bed... this was at 6 pm...

they were taking EEG readings of me while I was awake and active... I had my

lap top with me and a couple books and they provided a tv with cable so i

pretty much was able to do the things I normally do before I go to bed...

then at 10:30, they came in and said ok its lights out time... I was like

dude, its only 10:30 I don't go to bed until well after midnight... he said

how do you know what time it is there are no clocks in here and we

purposefully make this place have no natural light so you don't know what

time it is... i was like duh, the NEWS is on and they just finished with the

sports section so it has to be 10:30 ... he laughed and said well try to go

to sleep... ok so I did... yeah I laid there for almost 2 hours tossing and

turning, in a lot of pain cause I hadn't taken any pain meds and I finally

buzzed them and told them I needed a drink so i could take my meds... well

about an hour later I " fell asleep " ... I entered REM sleep and was there

for a whole whopping 13 minutes... I know this because this is what he told

me after the test was over int eh morning... the rest of the night I would

be semi asleep for about an hour -2 hours, " wake up " roll over try to get

comfortable again then go back to sleep and repeat the process until 6 am...

ok enter the tech at 6 am to unhook me from everything...

I asked hi,... so do i have sleep apnea... he says nope... but you have got

the Strangest eeg readings when you are asleep... I asked him what he meant

and he said that they look almost identical to my eeg while I am awake and

active... o he basically told me that my Brain is not shutting down to allow

me to sleep and that I am in so much pain that my brain is constantly

receiving information and for the most part keeping me from sleeping

properly... THANK GOD they are not going to suggest a CPAP because he said

it wouldn't help... my problem is that I am in pain... FINALLY!!! I get

affirmation that I have REAL pain... I didn't think an EEG could pick up

stuff liek that...

so back to my pain management doctor to talk about new strategies to deal

with the pain until i can have the de-tethering surgery for my tethered

cord... I have another 50 lbs to lose... I have officially lost 50 lbs as of

today =) and that 4 months after having my baby... 50 more to go!!!

ok I know this exactly wasn't chiari content so to speak but it does have

somethign to do with everything that si going on...

I hope everyone has a safe and wonderful Christmas... and for my Jewish

family, I hope you had a wonderful Hanukkah!!! (yes I know it started

December 4th) lol =) but happy Hanukkah anyway

LAters

Holly

ACM

Tethered cord

Syrinx

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The Joy of the Lord is

my Strength...

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