RE: Sleep Study Results

[Guest guest]

Yeah, Tasha's said basically the same thing. Well...it actually said that she

had a fragmented sleep disorder with severe alpha wave intrusion; she spent way

to much time in the level 1 transitioning state and not nearly enough time in

REM sleep. When I asked for that to be put in a layman's terms, I was told that

your alpha waves are the waves that are active during the day and so Tasha's

brain was basically not shutting down at night the way it was supposed to.

He also commented that the pattern is common among individuals with

fibromyalgia. Anyway, so maybe, this pattern is common to Chiarians???

Hope y'all are doing as well as you can and are pain free.

Kitz Graphics wrote:

Hello Group,

I had a sleep study done Sunday night... it was more for a day time / night

time sleep study if that makes any sense...

[Guest guest]

My sleep study said the same thing too…..

I can remember the day when my symptoms started with Chiari – and I also

remember my sleep patterns changing soon after that. I thought it was

because I was stressed and sore from the accident, therefore I wasn’t

sleeping right. I couldn’t understand why I wasn’t sleeping. Thought that

when I turned I woke myself due to the pain or something, but in reality – I

was never reaching the REM sleep. Looking back on this, knowing what we all

know, it all makes sense now.

One Dr said I have Fibro – he didn’t understand the Chiari thing and said

that if I could correct my sleep patterns I would improve and not have this

pain. I tried to explain to him that Sleep apnea is a symptom of Chiari –

however he didn’t seem interested, considering I was the patient and HE was

the dr. (Needless to say – I wont be returning.)

I find it interesting that my sleep changed so drastically. I used to be

able to totally relax myself and put myself to sleep even in the most

stressful times of my life. However now – I can be totally relaxed – but my

brain is still just going. It is strange – I can be DOG tired – but try to

lay down and go to sleep – isn’t happening…..

I now use a sleep aid that is addictive, but its okay, because I hope it

will not be forever. I am hopeful that after my decompression that I will

be able to go off the med. I am one that totally HATES to take medication.

But for the first time in 2 yrs – I am sleeping again!!!! (I think this is

the first ever med that I have taken that actually does something for me –

after trying so many things, I am so THANKFUL for Ambian.)

Anyone out there had their decompression fix their sleeping issues and be

able to go back to normal sleeping again?

Peaceful ZZZs to you all out there!!!

in OH

_____

From:

[mailto: ] On Behalf Of

Hansen

Sent: Tuesday, December 18, 2007 8:14 PM

To:

Subject: Re: Sleep Study Results

Yeah, Tasha's said basically the same thing. Well...it actually said that

she had a fragmented sleep disorder with severe alpha wave intrusion;

[Guest guest]

I decided to post to the group on this as it effects a lot of us.

People with chronic pain (lots of chiarians) use seratonin

differently and at higher levels than " normal " people. Because of

this the chemical that tells us to go to sleep and stay asleep is

lower than normal (melatonin the chemical is derived from seratonin

and it gets used up before it can become melatonin) That is why a

lot of people respond to seratonin related antidepressants. You can

also supplament seratonin in your diet with either a supplament like

5HTP or foods that contain tryptophan which is the precursor for

seratonin in your body. You need to talk to your doc about 5HTP as

it can interact with a lot of different antidepressants. As far as I

know melatonin does not interact with meds. Melatonin is also safe

for children with chiari and sleep difficulties. My children have

never had " normal " sleep from birth. The kids PCP suggested it for

my oldest when she was 4 and only sleeping 4 hrs a night.

Charnel

Do you have Chiari with Tethered Cord and/or EDS? Try our site:

http://health.groups.yahoo.com/group/ACM_EDS_TSC/

>

> My sleep study said the same thing too…..

>

>

>

> I can remember the day when my symptoms started with Chiari – and I

also

> remember my sleep patterns changing soon after that. I thought it

was

> because I was stressed and sore from the accident, therefore I

wasn't

> sleeping right. I couldn't understand why I wasn't sleeping.

Thought that

> when I turned I woke myself due to the pain or something, but in

reality – I

> was never reaching the REM sleep. Looking back on this, knowing

what we all

> know, it all makes sense now.

>

>

>

> One Dr said I have Fibro – he didn't understand the Chiari thing

and said

> that if I could correct my sleep patterns I would improve and not

have this

> pain. I tried to explain to him that Sleep apnea is a symptom of

Chiari –

> however he didn't seem interested, considering I was the patient

and HE was

> the dr. (Needless to say – I wont be returning.)

>

>

>

> I find it interesting that my sleep changed so drastically. I used

to be

> able to totally relax myself and put myself to sleep even in the

most

> stressful times of my life. However now – I can be totally

relaxed – but my

> brain is still just going. It is strange – I can be DOG tired –

but try to

> lay down and go to sleep – isn't happening…..

>

>

>

> I now use a sleep aid that is addictive, but its okay, because I

hope it

> will not be forever. I am hopeful that after my decompression that

I will

> be able to go off the med. I am one that totally HATES to take

medication.

> But for the first time in 2 yrs – I am sleeping again!!!! (I

think this is

> the first ever med that I have taken that actually does something

for me –

> after trying so many things, I am so THANKFUL for Ambian.)

>

>

>

> Anyone out there had their decompression fix their sleeping issues

and be

> able to go back to normal sleeping again?

>

>

>

> Peaceful ZZZs to you all out there!!!

>

> in OH

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of

> Hansen

> Sent: Tuesday, December 18, 2007 8:14 PM

> To:

> Subject: Re: Sleep Study Results

>

>

>

> Yeah, Tasha's said basically the same thing. Well...it actually

said that

> she had a fragmented sleep disorder with severe alpha wave

intrusion;

>