Re: New here - for Sharon

[Guest guest]

Hi sharon,

Sorry to hear about this tough journey your daughter is on. I get so

frustrated when I can't get proper help for my children. I want to

quickly say, hang in there... I have four children with Hashis and

one, a daughter, has Graves antibodies, too.

I will write more later. You are not alone!

Bj

>

> Hello to all,

>

> I am a mother of a girl who has had Hastimoto's since 7 years old.

She is now 14 years old

> now. Wow I am so happy to finally have found a place that Amber and

I can talk with

> others who have this disease.

>

> Amber has been sick pretty much sick since birth. with starting at

27 weeks of pregnancy

> me going into premature birth with her. I was able to keep her in

until 35 weeks by staying

> in the hospital and us both having to take really bad medicine but

I did have her and she

> was healthy at the time of birth with a few problems. Her Heart is

on the wrong side and

> she had 2 of her main values open. Which closed on there own after

she was 1 year old.

>

> Her dad is the one who found her Hastimoto's around 7years old she

had a goiter grow

> out of her neck and we didn't know what it was so we took her to

the doctor and he ran

> test on her the autoimmune came back 70.0 and thyroid TSH was 11.6

at the time. But I

> have to tell you all that we had Amber check for lots of things

before us finding the goiter.

> Like her Heart which was on the wrong side and she always felt it

beating to fast nothing

> wrong with it we were told. She has tissue swelling on her head and

we were told they

> have never seen this before lets take a watch and wait attitude. We

got 3 different doctors

> and they all said the same things were talking Departments of

otolarngology doctors as

> well as Dermatolgoy groups as well as the brain doctors and then

she couldn't go poop

> anymore which was not fun for us all. and they could only find mild

inflammation in the

> stomach but no were else. Still didn't know what to tell us. As for

her hair she was losing

> her hair as well. She would always tell me and this sad so sorry if

i make you all cry. She

> doesn't want to be here on earth anymore I want to go home with my

other father he

> misses me but he tells me I have to stay here and help you and

daddy an mommy I am not

> finish here on earth. There were times she would space out on me. I

didn't know what to

> do. She was in the middle of 2nd grade when she got really bad

sick. She couldn't

> remember anything she was taught. She went from top of her class

down to failing school.

> I remember the teacher being upset with Amber telling me she isn't

paying attention in

> class and I just didn't know what to do to help her. Then we found

out what was wrong. I

> remember her falling asleep in her plate at dinner time. I would

have to go and clean her

> up and put her to bed. That's why we wanted them to check her heart

and they never

> could find anything wrong.

>

> At 14 years old Amber still has problems she is on 100 mcg of

Levoxyl. Were going in to

> have more test done. Because she has started her period but she has

problems with it

> now. Her Sodium level is always low as well as her red blood cells.

We don't know as of yet

> what is happening to her. She has to eat almost every 30 to 60

minutes or she gets really

> weird on me. I was hoping that maybe one of you have this happening

to you to. Amber is

> always wanting to eat salt. She can't get enough. I make homemade

soup which I feel is

> salty enough and she will pour it on and then eat it. she eats

really healthy because I have

> crohns disease so I cook almost all the food that my family and I

eat. But Amber does not

> have the weight problem as a matter of fact she is under weight she

can still fit in size 12

> pants. Or Double O pants. She does have a little figure now with

breast but she's really

> tiny. She hates this but I know that others have problems with

there weight so I tell her not

> to let this bother her. Do any of you have the weight like her. She

does see a really good

> doctor and I like him. But Amber has so many other things happening

to her like her feet

> she has to have surgury on them because she needs inplants I don't

almost believe them

> when they tell me it's not relayed to the thyroid issue. Every day

Amber gets up she

> doesn't want to go to school but I have to make her go. The schools

have been helpful

> because of the disease she can get a 504 and they have to give her

the extra help with her

> getting the work done. She is a staight A student but I know it's

because she try's really

> hard.

>

> I am looking forward to Amber talking with you all also and I am

looking forward to giving

> advice to anyone of you that I can with being a caregiver of

someone with this disease. I

> have learned so much because Amber's Dad works for the University

of California,

> so I can have any information at anytime that's needed. I am a Home

Mom our choice after

> Amber was born and with all the medical issues she has.

>

> Thanks for your reading my long letter and your comments back,

>

> Sharon

>

[Guest guest]

Sharon -- welcome to our group. I'm so sorry to hear about the tough

time that you and Amber have had. One thought as I read your

story--has Amber been tested for 's disease? One symptom is low

sodium, and people tend to crave salt. They also lose weight. It is a

fairly rare disease, another endocrine one like Hashimotos--it's an

autoimmune disease where instead of the thyroid the body attacks the

adrenals. Has Amber's skin ever looked tan even though she hasn't been

in the sun? That could be from high potassium, another symptom. Ask

your endocrinologist to run thorough tests on her for it, just to be

sure. It can be serious under certain circumstances but is treatable

if it's diagnosed.

The endocrine and hormonal system is all connected, so we are more

prone to other problems in this area. However, Hashimotos can mimic

symptoms of other endocrine disorders, we hear almost any symptom you

can think of on this list. Of course, you should watch her thyroid

numbers closely too and make sure she isn't taking too much thyroid as

that can cause weight loss and severe hunger too.

[Guest guest]

> >

> > Hello to all,

> >

> > I am a mother of a girl who has had Hastimoto's since 7 years old.

> She is now 14 years old

> > now. Wow I am so happy to finally have found a place that Amber and

> I can talk with

> > others who have this disease.

> >

> > Amber has been sick pretty much sick since birth. with starting at

> 27 weeks of pregnancy

> > me going into premature birth with her. I was able to keep her in

> until 35 weeks by staying

> > in the hospital and us both having to take really bad medicine but

> I did have her and she

> > was healthy at the time of birth with a few problems. Her Heart is

> on the wrong side and

> > she had 2 of her main values open. Which closed on there own after

> she was 1 year old.

> >

> > Her dad is the one who found her Hastimoto's around 7years old she

> had a goiter grow

> > out of her neck and we didn't know what it was so we took her to

> the doctor and he ran

> > test on her the autoimmune came back 70.0 and thyroid TSH was 11.6

> at the time. But I

> > have to tell you all that we had Amber check for lots of things

> before us finding the goiter.

> > Like her Heart which was on the wrong side and she always felt it

> beating to fast nothing

> > wrong with it we were told. She has tissue swelling on her head and

> we were told they

> > have never seen this before lets take a watch and wait attitude. We

> got 3 different doctors

> > and they all said the same things were talking Departments of

> otolarngology doctors as

> > well as Dermatolgoy groups as well as the brain doctors and then

> she couldn't go poop

> > anymore which was not fun for us all. and they could only find mild

> inflammation in the

> > stomach but no were else. Still didn't know what to tell us. As for

> her hair she was losing

> > her hair as well. She would always tell me and this sad so sorry if

> i make you all cry. She

> > doesn't want to be here on earth anymore I want to go home with my

> other father he

> > misses me but he tells me I have to stay here and help you and

> daddy an mommy I am not

> > finish here on earth. There were times she would space out on me. I

> didn't know what to

> > do. She was in the middle of 2nd grade when she got really bad

> sick. She couldn't

> > remember anything she was taught. She went from top of her class

> down to failing school.

> > I remember the teacher being upset with Amber telling me she isn't

> paying attention in

> > class and I just didn't know what to do to help her. Then we found

> out what was wrong. I

> > remember her falling asleep in her plate at dinner time. I would

> have to go and clean her

> > up and put her to bed. That's why we wanted them to check her heart

> and they never

> > could find anything wrong.

> >

> > At 14 years old Amber still has problems she is on 100 mcg of

> Levoxyl. Were going in to

> > have more test done. Because she has started her period but she has

> problems with it

> > now. Her Sodium level is always low as well as her red blood cells.

> We don't know as of yet

> > what is happening to her. She has to eat almost every 30 to 60

> minutes or she gets really

> > weird on me. I was hoping that maybe one of you have this happening

> to you to. Amber is

> > always wanting to eat salt. She can't get enough. I make homemade

> soup which I feel is

> > salty enough and she will pour it on and then eat it. she eats

> really healthy because I have

> > crohns disease so I cook almost all the food that my family and I

> eat. But Amber does not

> > have the weight problem as a matter of fact she is under weight she

> can still fit in size 12

> > pants. Or Double O pants. She does have a little figure now with

> breast but she's really

> > tiny. She hates this but I know that others have problems with

> there weight so I tell her not

> > to let this bother her. Do any of you have the weight like her. She

> does see a really good

> > doctor and I like him. But Amber has so many other things happening

> to her like her feet

> > she has to have surgury on them because she needs inplants I don't

> almost believe them

> > when they tell me it's not relayed to the thyroid issue. Every day

> Amber gets up she

> > doesn't want to go to school but I have to make her go. The schools

> have been helpful

> > because of the disease she can get a 504 and they have to give her

> the extra help with her

> > getting the work done. She is a staight A student but I know it's

> because she try's really

> > hard.

> >

> > I am looking forward to Amber talking with you all also and I am

> looking forward to giving

> > advice to anyone of you that I can with being a caregiver of

> someone with this disease. I

> > have learned so much because Amber's Dad works for the University

> of California,

> > so I can have any information at anytime that's needed. I am a Home

> Mom our choice after

> > Amber was born and with all the medical issues she has.

> >

> > Thanks for your reading my long letter and your comments back,

> >

> > Sharon

> >

>

[Guest guest]

Hi Bj, Thanks for understanding. I look forward to hearing from you!

Sharon

> >

> > Hello to all,

> >

> > I am a mother of a girl who has had Hastimoto's since 7 years old.

> She is now 14 years old

> > now. Wow I am so happy to finally have found a place that Amber and

> I can talk with

> > others who have this disease.

> >

> > Amber has been sick pretty much sick since birth. with starting at

> 27 weeks of pregnancy

> > me going into premature birth with her. I was able to keep her in

> until 35 weeks by staying

> > in the hospital and us both having to take really bad medicine but

> I did have her and she

> > was healthy at the time of birth with a few problems. Her Heart is

> on the wrong side and

> > she had 2 of her main values open. Which closed on there own after

> she was 1 year old.

> >

> > Her dad is the one who found her Hastimoto's around 7years old she

> had a goiter grow

> > out of her neck and we didn't know what it was so we took her to

> the doctor and he ran

> > test on her the autoimmune came back 70.0 and thyroid TSH was 11.6

> at the time. But I

> > have to tell you all that we had Amber check for lots of things

> before us finding the goiter.

> > Like her Heart which was on the wrong side and she always felt it

> beating to fast nothing

> > wrong with it we were told. She has tissue swelling on her head and

> we were told they

> > have never seen this before lets take a watch and wait attitude. We

> got 3 different doctors

> > and they all said the same things were talking Departments of

> otolarngology doctors as

> > well as Dermatolgoy groups as well as the brain doctors and then

> she couldn't go poop

> > anymore which was not fun for us all. and they could only find mild

> inflammation in the

> > stomach but no were else. Still didn't know what to tell us. As for

> her hair she was losing

> > her hair as well. She would always tell me and this sad so sorry if

> i make you all cry. She

> > doesn't want to be here on earth anymore I want to go home with my

> other father he

> > misses me but he tells me I have to stay here and help you and

> daddy an mommy I am not

> > finish here on earth. There were times she would space out on me. I

> didn't know what to

> > do. She was in the middle of 2nd grade when she got really bad

> sick. She couldn't

> > remember anything she was taught. She went from top of her class

> down to failing school.

> > I remember the teacher being upset with Amber telling me she isn't

> paying attention in

> > class and I just didn't know what to do to help her. Then we found

> out what was wrong. I

> > remember her falling asleep in her plate at dinner time. I would

> have to go and clean her

> > up and put her to bed. That's why we wanted them to check her heart

> and they never

> > could find anything wrong.

> >

> > At 14 years old Amber still has problems she is on 100 mcg of

> Levoxyl. Were going in to

> > have more test done. Because she has started her period but she has

> problems with it

> > now. Her Sodium level is always low as well as her red blood cells.

> We don't know as of yet

> > what is happening to her. She has to eat almost every 30 to 60

> minutes or she gets really

> > weird on me. I was hoping that maybe one of you have this happening

> to you to. Amber is

> > always wanting to eat salt. She can't get enough. I make homemade

> soup which I feel is

> > salty enough and she will pour it on and then eat it. she eats

> really healthy because I have

> > crohns disease so I cook almost all the food that my family and I

> eat. But Amber does not

> > have the weight problem as a matter of fact she is under weight she

> can still fit in size 12

> > pants. Or Double O pants. She does have a little figure now with

> breast but she's really

> > tiny. She hates this but I know that others have problems with

> there weight so I tell her not

> > to let this bother her. Do any of you have the weight like her. She

> does see a really good

> > doctor and I like him. But Amber has so many other things happening

> to her like her feet

> > she has to have surgury on them because she needs inplants I don't

> almost believe them

> > when they tell me it's not relayed to the thyroid issue. Every day

> Amber gets up she

> > doesn't want to go to school but I have to make her go. The schools

> have been helpful

> > because of the disease she can get a 504 and they have to give her

> the extra help with her

> > getting the work done. She is a staight A student but I know it's

> because she try's really

> > hard.

> >

> > I am looking forward to Amber talking with you all also and I am

> looking forward to giving

> > advice to anyone of you that I can with being a caregiver of

> someone with this disease. I

> > have learned so much because Amber's Dad works for the University

> of California,

> > so I can have any information at anytime that's needed. I am a Home

> Mom our choice after

> > Amber was born and with all the medical issues she has.

> >

> > Thanks for your reading my long letter and your comments back,

> >

> > Sharon

> >

>

[Guest guest]

Hi ,

Thanks. Amber has not been tested for 's disease. But I did talk with her

endocrinologist yesterday evening because he received her blood test back. He

will be

testing her more on Monday. He will also test her blood sugar so she will have

to fast and

not take any of her medicine. Which I am not comfortable with because when ever

she is

even a little late she's screwed up all day until we get the medicine back into

her system

on time again. The only thing that I notice on Amber's skin is she has white

spots and tan

spots on her back. The doctor did not say anything about high potassium but we

were on

the phone so maybe when I see him on thursday he will lets us know more on

what's going

on.

The endocrinologist upped her Thyroid because the Autoiummne cells were high

again. It

seem after he upped the medicine she stared her period around 3 months later.

But now

she has not had another period again since.

One positive thing is last night she went to her first high school football game

and had a

really great time with all her new friends. We just moved here and so she

started high

school without knowing anyone too. Were thinking positive and I am thankfull to

of found

this website to hear from others about Thyroid disease and the information also

has been

very helpful.

Sharon

-- In Thyroiditis , " suuzin " wrote:

>

> Sharon -- welcome to our group. I'm so sorry to hear about the tough

> time that you and Amber have had. One thought as I read your

> story--has Amber been tested for 's disease? One symptom is low

> sodium, and people tend to crave salt. They also lose weight. It is a

> fairly rare disease, another endocrine one like Hashimotos--it's an

> autoimmune disease where instead of the thyroid the body attacks the

> adrenals. Has Amber's skin ever looked tan even though she hasn't been

> in the sun? That could be from high potassium, another symptom. Ask

> your endocrinologist to run thorough tests on her for it, just to be

> sure. It can be serious under certain circumstances but is treatable

> if it's diagnosed.

>

> The endocrine and hormonal system is all connected, so we are more

> prone to other problems in this area. However, Hashimotos can mimic

> symptoms of other endocrine disorders, we hear almost any symptom you

> can think of on this list. Of course, you should watch her thyroid

> numbers closely too and make sure she isn't taking too much thyroid as

> that can cause weight loss and severe hunger too.

>

>

>

[Guest guest]

Hi Sharon,

I am alarmed at the salt cravings and know they can be connected with

low energy, the inability to taste food properly, mineral

deficiencies, PMS, adrenal exhaustion, and diabetes –probably other

health issues, too. I hope you will investigate all possible

causes. Since others here has brought your attention to the Adrenal

connection, I won't spend time on it. Has Amber had an ACTH test

done? If so, what was the result?

One major cause of salt craving is quite often overlooked and is

mineral deficiencies. My oldest son who is 15 now was born at 26

weeks and I consider him our half million dollar miracle –that's how

much his hospital bill was for his four months stay in the ICU.

Thank goodness the military insurance paid most of it or we would

never get it paid off. He had strep B and bacterial meningitis,

besides the undeveloped usual problems associated with premature

births. My water had been slowly leaking for over a month. Then

after we finally got him home, he went back after only a week

hurriedly for another month stay as he contacted the RSV Virus. I

think that's when my Adrenals went crazy.

To back up a bit, when you mentioned the salt cravings, it took me

back some to when we had a time figuring out what was happening to

our little guy some years ago. When my son was eight – third grade –

I became a believer in cells salts or sometimes called tissue

minerals. He would come in when it was warm/hot out -during the

spring/summer months and put lots of salt in his water and drink it,

too. I would catch him gulping salt from the salt shaker – he would

take the lid off and just swallow it by the mouth full. He had done

this occasionally since he was in preschool. I tried some salt, too

and it made me throw up. It was Celtic Sea Salt. Also, oddly

every so often he would wake up with a swollen face.

All the many traditional MD's we went to would only offer him a

script for water pills –no investigating, nothing. So, I researched

and found info about cell salts – somewhat controversial. He was

low in Natrum Mur, a sodium mineral that optimizes the functioning of

the kidneys, pancreas, stomach and digestive system. He would faint

in the sun or heat and had continual sinus infections with

headaches. Edema is a prominent symptom of a Nat Mur deficiency.

Anyway, after he took it for several months straight all the symptoms

vanished. I have him take a dose once a week or so, so he never goes

back to where he was. A little technique we discovered is if the

cell salt tastes bitter, you are deficient –if it's sweet, you have

enough in your body.

Again, I went researching a year or so later, as he had horrible

muscle spasms -he was also deficient in magnesium. He took Magnesium

Phosphorus another cell salt and no longer has muscle problems.

He has struggled with learning throughout his life. Since, I changed

Drs last year and he was put on omega 3 daily, his attention and

short term memory has very much improved. Not sure if it's the omega

3 or the Kali Phosphate; probably the combo. Kali Phosphate is

another cell salt, it is a potassium mineral used for poor memory and

physical fatigue. (Same symptoms for low omega 3) It also helps if

he takes it before times of stress that he needs a clear mind, such

as before an exam or a track meet so he can relax himself.

Also when I aggressively eliminated all pop, fries, and Trans fat,

enriched bread and a huge majority of processed foods helped. He

has been diagnosed with ADD related Hashimoto's. (Not ADHD) And he

does have TPO and TG ab's, which gives him a diagnosis of Hashis.

But the traditional MD's just wanted to throw a bottle of Ritalin or

similar drug at it. We declined. I did start to wonder as he lost

weight rapidly and he was already tall and thin. He eats almost

constantly and still stays thin. He worked out with weights all

summer and has grown some buff muscles. He's happy with his body, so

I just make sure he has good quality food choices available

constantly.

He takes a chelated multi-mineral complex every other day. Some

testing showed low iron and zinc as well. And he takes extra

selenium for the T4 to T3 conversion. He has a lower range T3 level

than T4. I also give him and his brother (also Hashi) a supplement

for their Adrenals called ADHS and Thyro-stim to help their thyroid

glands. I take both supplements, too.

If you want to read about cell salts here is a site:

http://en.wikipedia.org/wiki/Biochemic_cell_salts

A good book to read is " Natural Healing with Cell Salts " by Skye

Weintraub

And my daughter Jay has severely low ferritin and iron besides having

both Graves' and Hashis' with very high ab's for each. After she

took the cell salts her iron and ferritin levels have increased by

three times in the last six months than in the last three years by

iron supplements alone. Her ferritin was 4 three years ago, last

October it was 6 and now it is 19. No doubt she still has a long

ways ahead, but I am convinced the six cell salts she's taking has

helped with the inflammation and anemia.

HTH,

Bj

> > >

> > > Hello to all,

> > >

> > > I am a mother of a girl who has had Hastimoto's since 7 years

old.

> > She is now 14 years old

> > > now. Wow I am so happy to finally have found a place that Amber

and

> > I can talk with

> > > others who have this disease.

> > >

> > > Amber has been sick pretty much sick since birth. with starting

at

> > 27 weeks of pregnancy

> > > me going into premature birth with her. I was able to keep her

in

> > until 35 weeks by staying

> > > in the hospital and us both having to take really bad medicine

but

> > I did have her and she

> > > was healthy at the time of birth with a few problems. Her Heart

is

> > on the wrong side and

> > > she had 2 of her main values open. Which closed on there own

after

> > she was 1 year old.

> > >

> > > Her dad is the one who found her Hastimoto's around 7years old

she

> > had a goiter grow

> > > out of her neck and we didn't know what it was so we took her

to

> > the doctor and he ran

> > > test on her the autoimmune came back 70.0 and thyroid TSH was

11.6

> > at the time. But I

> > > have to tell you all that we had Amber check for lots of things

> > before us finding the goiter.

> > > Like her Heart which was on the wrong side and she always felt

it

> > beating to fast nothing

> > > wrong with it we were told. She has tissue swelling on her head

and

> > we were told they

> > > have never seen this before lets take a watch and wait

attitude. We

> > got 3 different doctors

> > > and they all said the same things were talking Departments of

> > otolarngology doctors as

> > > well as Dermatolgoy groups as well as the brain doctors and

then

> > she couldn't go poop

> > > anymore which was not fun for us all. and they could only find

mild

> > inflammation in the

> > > stomach but no were else. Still didn't know what to tell us. As

for

> > her hair she was losing

> > > her hair as well. She would always tell me and this sad so

sorry if

> > i make you all cry. She

> > > doesn't want to be here on earth anymore I want to go home with

my

> > other father he

> > > misses me but he tells me I have to stay here and help you and

> > daddy an mommy I am not

> > > finish here on earth. There were times she would space out on

me. I

> > didn't know what to

> > > do. She was in the middle of 2nd grade when she got really bad

> > sick. She couldn't

> > > remember anything she was taught. She went from top of her

class

> > down to failing school.

> > > I remember the teacher being upset with Amber telling me she

isn't

> > paying attention in

> > > class and I just didn't know what to do to help her. Then we

found

> > out what was wrong. I

> > > remember her falling asleep in her plate at dinner time. I

would

> > have to go and clean her

> > > up and put her to bed. That's why we wanted them to check her

heart

> > and they never

> > > could find anything wrong.

> > >

> > > At 14 years old Amber still has problems she is on 100 mcg of

> > Levoxyl. Were going in to

> > > have more test done. Because she has started her period but she

has

> > problems with it

> > > now. Her Sodium level is always low as well as her red blood

cells.

> > We don't know as of yet

> > > what is happening to her. She has to eat almost every 30 to 60

> > minutes or she gets really

> > > weird on me. I was hoping that maybe one of you have this

happening

> > to you to. Amber is

> > > always wanting to eat salt. She can't get enough. I make

homemade

> > soup which I feel is

> > > salty enough and she will pour it on and then eat it. she eats

> > really healthy because I have

> > > crohns disease so I cook almost all the food that my family and

I

> > eat. But Amber does not

> > > have the weight problem as a matter of fact she is under weight

she

> > can still fit in size 12

> > > pants. Or Double O pants. She does have a little figure now

with

> > breast but she's really

> > > tiny. She hates this but I know that others have problems with

> > there weight so I tell her not

> > > to let this bother her. Do any of you have the weight like her.

She

> > does see a really good

> > > doctor and I like him. But Amber has so many other things

happening

> > to her like her feet

> > > she has to have surgury on them because she needs inplants I

don't

> > almost believe them

> > > when they tell me it's not relayed to the thyroid issue. Every

day

> > Amber gets up she

> > > doesn't want to go to school but I have to make her go. The

schools

> > have been helpful

> > > because of the disease she can get a 504 and they have to give

her

> > the extra help with her

> > > getting the work done. She is a staight A student but I know

it's

> > because she try's really

> > > hard.

> > >

> > > I am looking forward to Amber talking with you all also and I

am

> > looking forward to giving

> > > advice to anyone of you that I can with being a caregiver of

> > someone with this disease. I

> > > have learned so much because Amber's Dad works for the

University

> > of California,

> > > so I can have any information at anytime that's needed. I am a

Home

> > Mom our choice after

> > > Amber was born and with all the medical issues she has.

> > >

> > > Thanks for your reading my long letter and your comments back,

> > >

> > > Sharon

> > >

> >

>

[Guest guest]

BJ,

Fascinating info on cell salts. I'm going to check out that website.

Thanks for posting this!

>

> Hi Sharon,

>

> I am alarmed at the salt cravings and know they can be connected with

> low energy, the inability to taste food properly, mineral

> deficiencies, PMS, adrenal exhaustion, and diabetes –probably other

> health issues, too. I hope you will investigate all possible

> causes. Since others here has brought your attention to the Adrenal

> connection, I won't spend time on it. Has Amber had an ACTH test

> done? If so, what was the result?

>

> One major cause of salt craving is quite often overlooked and is

> mineral deficiencies. My oldest son who is 15 now was born at 26

> weeks and I consider him our half million dollar miracle –that's how

> much his hospital bill was for his four months stay in the ICU.

> Thank goodness the military insurance paid most of it or we would

> never get it paid off. He had strep B and bacterial meningitis,

> besides the undeveloped usual problems associated with premature

> births. My water had been slowly leaking for over a month. Then

> after we finally got him home, he went back after only a week

> hurriedly for another month stay as he contacted the RSV Virus. I

> think that's when my Adrenals went crazy.

>

> To back up a bit, when you mentioned the salt cravings, it took me

> back some to when we had a time figuring out what was happening to

> our little guy some years ago. When my son was eight – third grade –

> I became a believer in cells salts or sometimes called tissue

> minerals. He would come in when it was warm/hot out -during the

> spring/summer months and put lots of salt in his water and drink it,

> too. I would catch him gulping salt from the salt shaker – he would

> take the lid off and just swallow it by the mouth full. He had done

> this occasionally since he was in preschool. I tried some salt, too

> and it made me throw up. It was Celtic Sea Salt. Also, oddly

> every so often he would wake up with a swollen face.

>

> All the many traditional MD's we went to would only offer him a

> script for water pills –no investigating, nothing. So, I researched

> and found info about cell salts – somewhat controversial. He was

> low in Natrum Mur, a sodium mineral that optimizes the functioning of

> the kidneys, pancreas, stomach and digestive system. He would faint

> in the sun or heat and had continual sinus infections with

> headaches. Edema is a prominent symptom of a Nat Mur deficiency.

> Anyway, after he took it for several months straight all the symptoms

> vanished. I have him take a dose once a week or so, so he never goes

> back to where he was. A little technique we discovered is if the

> cell salt tastes bitter, you are deficient –if it's sweet, you have

> enough in your body.

>

> Again, I went researching a year or so later, as he had horrible

> muscle spasms -he was also deficient in magnesium. He took Magnesium

> Phosphorus another cell salt and no longer has muscle problems.

>

> He has struggled with learning throughout his life. Since, I changed

> Drs last year and he was put on omega 3 daily, his attention and

> short term memory has very much improved. Not sure if it's the omega

> 3 or the Kali Phosphate; probably the combo. Kali Phosphate is

> another cell salt, it is a potassium mineral used for poor memory and

> physical fatigue. (Same symptoms for low omega 3) It also helps if

> he takes it before times of stress that he needs a clear mind, such

> as before an exam or a track meet so he can relax himself.

>

> Also when I aggressively eliminated all pop, fries, and Trans fat,

> enriched bread and a huge majority of processed foods helped. He

> has been diagnosed with ADD related Hashimoto's. (Not ADHD) And he

> does have TPO and TG ab's, which gives him a diagnosis of Hashis.

> But the traditional MD's just wanted to throw a bottle of Ritalin or

> similar drug at it. We declined. I did start to wonder as he lost

> weight rapidly and he was already tall and thin. He eats almost

> constantly and still stays thin. He worked out with weights all

> summer and has grown some buff muscles. He's happy with his body, so

> I just make sure he has good quality food choices available

> constantly.

>

> He takes a chelated multi-mineral complex every other day. Some

> testing showed low iron and zinc as well. And he takes extra

> selenium for the T4 to T3 conversion. He has a lower range T3 level

> than T4. I also give him and his brother (also Hashi) a supplement

> for their Adrenals called ADHS and Thyro-stim to help their thyroid

> glands. I take both supplements, too.

>

> If you want to read about cell salts here is a site:

> http://en.wikipedia.org/wiki/Biochemic_cell_salts

> A good book to read is " Natural Healing with Cell Salts " by Skye

> Weintraub

>

> And my daughter Jay has severely low ferritin and iron besides having

> both Graves' and Hashis' with very high ab's for each. After she

> took the cell salts her iron and ferritin levels have increased by

> three times in the last six months than in the last three years by

> iron supplements alone. Her ferritin was 4 three years ago, last

> October it was 6 and now it is 19. No doubt she still has a long

> ways ahead, but I am convinced the six cell salts she's taking has

> helped with the inflammation and anemia.

>

> HTH,

> Bj

> .

> > >

> >

>

[Guest guest]

BJ,

Thanks for the information. Amber went in this morning

for some more blood testing. Her salt cravings have me

alarmed also. Her doctor wants to check her for

Diabetes also. She is fasting and no medicine to be

given to her for a true reading. I am going to look

up the information that you gave to me on the cell

salts. Wow I can not believe that your son would drink

the salt water like that. Amber will still salt

everything even after I have put more then enough salt

on the food already and it taste really salty to me or

anyone else in our family. We are really healthy eater

because I have Crohn's disease. Amber also has

problems with Milk she can't have any cow's milk she

has been this way since birth even though she is not

allergic or Lactose intolerant.

It sounds like you have been though so much yourself

with your son's and daughter's health as well as

yours.

Here's the number's from 2001

her test results the ranges

170H-Progesterone 0.54 3 months to 11 years

nd 0.90 ng/ml

Androstenedione 0.3 children 0.1 - 0.5

DHEA Sulfate 55 8-112 ug/dl

Red Cell Dist. 11.4 11.5 - 14.5

TSH 11.6 0.35 - 5.50

TPO 70.0 0.0 - 2.0

Iu/ml

Thyroglobulin ab 14.6 0.0 - 2.0 Iu/ml

Auto Lymphocyte 0.8 1.5 - 6.8 K/mm3

her doctor put her on Levoxyl 75 mcg her levels went

then to TSH 0.26

range 0.35 - 5.5 Free T4 1.77 range 0.80 -

1.80.

In November of 2001 they did a Lupus test ANA titer

ana pattern 1:80 it came back positive. her TSH were

2.09 normal and FREE T4 1.64 Normal.

Sed rate 2 range is 0 - 10

Rheum Factor 20 range 0-19 they told me it was

normal

DNA C3 88 range 92-161 mg/dl

C4 14 range 16-42 mg/dl

ANTI SSA 0.8 range 0.0 - 1.0

ANTI SSB 0.8 range 0.0 - 1.0

We were told that she did not have Lupus.

she had been on the 75mcg of levoxyl until. 2004.

then in 2004

Free T4 1.23 0.7 -1.9

ng/dl

TSH 16.19 0.49 -4.67

Uiu/ml

Amber 's Sed rate was 8 this time.

Then the doctor put her on 88 mcg and that was not

enough then he upped it to 100mcg. Oh I forgot he took

her off the medicine to see if her thyroid could work

on it's own and this is what happened. And were still

dealing with this issue.

I am thinking because of her going though purity that

she is having this problem. All her MD want me to do

is have her start psychotherapy

because she needs to learn to deal the disease's she

has because they will be with her for life. I keep

hearing from them that her thyroid is leveled so she

should be fine. I don't think that she is fine. I live

with her and the teacher see that she is not ok. Why

don't they listen to us.

I have to tell you that I have been sick to since

1999. I started to reject all foods. until November of

2006 after 8 different doctors looking at me and

telling me there nothing wrong with me. then finally a

new doctor did not give up on me and he found my

crohn's disease I have a rare form They could not see

it because it was hidden now I am getting the help

that I need. it is really sad that they don't listen

to us the patient when we tell them somethings wrong

with us.

Ok I have written you enough information. We see the

doctor on the 27th of this month. I don't know if I

will get a phone call before then. I hope so. But I

will let you know what the levels are then.

Thanks again for the help,

Sharon

--- beckyjov wrote:

> Hi Sharon,

>

> I am alarmed at the salt cravings and know they can

> be connected with

> low energy, the inability to taste food properly,

> mineral

> deficiencies, PMS, adrenal exhaustion, and diabetes

> –probably other

> health issues, too. I hope you will investigate all

> possible

> causes. Since others here has brought your

> attention to the Adrenal

> connection, I won't spend time on it. Has Amber had

> an ACTH test

> done? If so, what was the result?

>

> One major cause of salt craving is quite often

> overlooked and is

> mineral deficiencies. My oldest son who is 15 now

> was born at 26

> weeks and I consider him our half million dollar

> miracle –that's how

> much his hospital bill was for his four months stay

> in the ICU.

> Thank goodness the military insurance paid most of

> it or we would

> never get it paid off. He had strep B and

> bacterial meningitis,

> besides the undeveloped usual problems associated

> with premature

> births. My water had been slowly leaking for over

> a month. Then

> after we finally got him home, he went back after

> only a week

> hurriedly for another month stay as he contacted the

> RSV Virus. I

> think that's when my Adrenals went crazy.

>

> To back up a bit, when you mentioned the salt

> cravings, it took me

> back some to when we had a time figuring out what

> was happening to

> our little guy some years ago. When my son was

> eight – third grade –

> I became a believer in cells salts or sometimes

> called tissue

> minerals. He would come in when it was warm/hot out

> -during the

> spring/summer months and put lots of salt in his

> water and drink it,

> too. I would catch him gulping salt from the salt

> shaker – he would

> take the lid off and just swallow it by the mouth

> full. He had done

> this occasionally since he was in preschool. I

> tried some salt, too

> and it made me throw up. It was Celtic Sea Salt.

> Also, oddly

> every so often he would wake up with a swollen face.

>

>

> All the many traditional MD's we went to would only

> offer him a

> script for water pills –no investigating, nothing.

> So, I researched

> and found info about cell salts – somewhat

> controversial. He was

> low in Natrum Mur, a sodium mineral that optimizes

> the functioning of

> the kidneys, pancreas, stomach and digestive system.

> He would faint

> in the sun or heat and had continual sinus

> infections with

> headaches. Edema is a prominent symptom of a Nat

> Mur deficiency.

> Anyway, after he took it for several months straight

> all the symptoms

> vanished. I have him take a dose once a week or so,

> so he never goes

> back to where he was. A little technique we

> discovered is if the

> cell salt tastes bitter, you are deficient –if it's

> sweet, you have

> enough in your body.

>

> Again, I went researching a year or so later, as he

> had horrible

> muscle spasms -he was also deficient in magnesium.

> He took Magnesium

> Phosphorus another cell salt and no longer has

> muscle problems.

>

> He has struggled with learning throughout his life.

> Since, I changed

> Drs last year and he was put on omega 3 daily, his

> attention and

> short term memory has very much improved. Not sure

> if it's the omega

> 3 or the Kali Phosphate; probably the combo. Kali

> Phosphate is

> another cell salt, it is a potassium mineral used

> for poor memory and

> physical fatigue. (Same symptoms for low omega 3)

> It also helps if

> he takes it before times of stress that he needs a

> clear mind, such

> as before an exam or a track meet so he can relax

> himself.

>

> Also when I aggressively eliminated all pop, fries,

> and Trans fat,

> enriched bread and a huge majority of processed

> foods helped. He

> has been diagnosed with ADD related Hashimoto's.

> (Not ADHD) And he

> does have TPO and TG ab's, which gives him a

> diagnosis of Hashis.

> But the traditional MD's just wanted to throw a

> bottle of Ritalin or

> similar drug at it. We declined. I did start to

> wonder as he lost

> weight rapidly and he was already tall and thin. He

> eats almost

> constantly and still stays thin. He worked out with

> weights all

> summer and has grown some buff muscles. He's happy

> with his body, so

> I just make sure he has good quality food choices

> available

> constantly.

>

> He takes a chelated multi-mineral complex every

> other day. Some

> testing showed low iron and zinc as well. And he

> takes extra

> selenium for the T4 to T3 conversion. He has a

> lower range T3 level

> than T4. I also give him and his brother (also

> Hashi) a supplement

> for their Adrenals called ADHS and Thyro-stim to

> help their thyroid

> glands. I take both supplements, too.

>

> If you want to read about cell salts here is a site:

>

> http://en.wikipedia.org/wiki/Biochemic_cell_salts

> A good book to read is " Natural Healing with Cell

> Salts " by Skye

> Weintraub

>

> And my daughter Jay has severely low ferritin and

> iron besides having

> both Graves' and Hashis' with very high ab's for

> each. After she

> took the cell salts her iron and ferritin levels

> have increased by

> three times in the last six months than in the last

> three years by

> iron supplements alone. Her ferritin was 4 three

> years ago, last

> October it was 6 and now it is 19. No doubt she

> still has a long

> ways ahead, but I am convinced the six cell salts

> she's taking has

> helped with the inflammation and anemia.

>

> HTH,

> Bj

>

>

>

>

>

>

>

>

>

>

>

>

> > >

> > > Hi sharon,

> > >

> > > Sorry to hear about this tough journey your

> daughter is on. I

> get so

> > > frustrated when I can't get proper help for my

> children. I want

> to

> > > quickly say, hang in there... I have four

> children with Hashis

>

=== message truncated ===

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