venting

[Guest guest]

I signed up to be on the LBD list because my father was diagnosed with LBD after a year and a half of being misdiagnosed and mismedicated. I spent the greater part of this year watching my father go on a downward spiral with my heart hurting because I knew with every core of my being that he was misdiagnosed. When all of this started he was diagnosed with Parkinsons AND Altheimers. He has been on medication, Xanax, Prozac, Risporadal, etc. When the new physician met with him last week (only because we are now trying to get him in the VA) he (the dr.) said that he was being treated incorrectly. His blood pressure was 61/45 at that time. The doctor told us about LBD and everything fit. It was such a relief to know that someone out there actually knew what he was doing and is trying to help my father.

Anyway..we admitted him to the hospital today, so that he can be cycled off six different medications that the doctor said were "all wrong" for my father. They should have been fatal. We were lucky. Today when he was admitted his blood pressure was 55/35.

In April 2000 my father and I spent Easter together. At that point and time in his life, he seemed normal. He was a bit slow. Sometimes a bit confused...but that Easter dinner was the last time I knew my father for what he was. One week later he drove around, got lost and didn't know who he was. The police picked him up and took him to a drunk tank. Low & behold, my father doesn't drink. He then was discharged, whereupon he drove himself to the hospital to be checked out. Funny thing...after that day he hasn't even been able to dress himself.

My mother is a saint. My father lives with her. She is her main caregiver. My brothers, sister and I all try to help out, but as all of you know...it is a 24 hour job.

I am hopeful that detoxing him will bring him up to a state of life where he can at least walk without passing out. That he may be able to feed himself. Geez...I am just hopeful to have my father look at me and know who I am.

This is a very difficult time for me. I don't know if this is all standard for all LBD patients or if it brought on by the miscare. Can you guys help me out with info?

Also...I want to say that I have no clue what all of the e-mails that i came home and read about today were all about. It sounded like a lot of people with a lot of hurt feelings? Is this site about care & help...or what?

Thanks,