Re: Valtrex, another update after 7 months...OMG!!

[Guest guest]

I noticed in your update that your son has chapped lips as a result

of being on Valtrex, is that a good sign? My 3 year old has been on

Valtrex/Diflucan for approx 3 weeks now and we haven't seen any big

obvious signs (rashes,fever, etc). The only thing I have noticed is

a light spotted looking rash around his genitals, and his lips are

sooooo dry - which is unusual for him. They just look horrible! Is

this a good thing? I haven't heard anyone else mention this...

This is giving me hope that this may be a sign that it is working.

I have seen no regression so far, only slight gains - eye contact,

more appropriate play, etc. He is still non-verbal, but I would

swear that he told me to " move back " this weekend! I never thought

I would be so glad to hear my son being smart with me! Just wanting

some input on this from anyone willing to offer advice!

Thanks!

Sam's mom

>

> Hello everyone,

>

> I hope everyone is doing well. I last posted an update when Dylan

> hit the 200 day mark and showed amazing gains from valtrex. It

> started to appear that he was no longer making gains, and his

yeast

> was out of control. So, we stopped to see how we would do off of

> valtrex and to also get his yeast back under control.

>

> This is the amazing part of being off valtrex, and it was very

> unexpected to us.....

>

> He maintained all cognitive gains he made during those 6 months,

but

> he spiraled down in every other sense. His sensory was so out of

> control it was as if he had no say in what his body was doing,

> exactly as he was before valtrex. He no longer slept, in fact,

with

> each passing week he slept less and less, getting to the point

where

> the whole house had to function on 5 hours of sleep. His appetite

> reminded me of my brother when he was a teenager. My 8 year old

son

> was eating non-stop, even at school. He was constant motion,

easily

> frustrated, aggressive and non-compliant and pretty much had me in

> tears on a daily basis, not to mention the constant phone calls

and

> emails from school (something I thought was long behind us).

>

> All of that in one month. One month off of valtrex was the worst

> month we have been through since before even starting biomed on

him

> years ago. His sister even had to start locking herself in her

room

> just so she could find some peace and not be the " wrestle-buddy " .

>

> We now are back on valtrex....day 4 in fact.

>

> On day 1 school asked, what is going on? This is a different

kid?

> Day 2 and 3 (Sat/Sun) were the most peaceful days I have had, and

I

> even SLEPT this weekend!!!!! He is soooo calm, relaxed, and in

> control of his body and motion. Aware of what he wants and needs

and

> can calmly request for his wants/needs. There have been no

tantrums,

> no wrestling, no crying and no need for constant motion. He even

sat

> down and watched a 90 minute movie!!!! PEACE!! He was in pain

> before, while off of valtrex. School called a meeting to ask me

if I

> knew what his pain could be because he was in obvious agony.

Today I

> dropped him off and he was ready to start his day!!

>

> So far we are seeing physical signs, too, that he still needs

> valtrex. Last time we started the first thing to happen was the

> chapped lips and dry cheeks, he has that again.

>

> Now the question....how much longer do we have to go....the first

6

> months aided his cognitive, now it seems we are hitting the

sensory,

> that the valtrex is actually helping with his SID, I find that so

> fascinating!

>

> Good luck to us all,

>

> Blessings,

>

> Colleen

> Mom to Dylan 8.5 non-verbal, ASD, SID, OCD

> Valtrex 6 months and counting

>

[Guest guest]

Colleen,

I always look

forward to your updates!! Wow, very interesting month. Do you think

the valtrex was helping remove the metals from his brain to help the cognition as

well as surpressing the virus but it hadn’t worked on the rest of the

body tissues enough yet?? Just a thought. My son is also off at the

moment and I am also experiencing the not sleeping issues again. Milk

thistle is what worked in the past to get him to sleep through the night so I

am wondering if the virus is overactive in his liver at the moment. He

has had slightly raised liver enzymes all along. I’m glad he’s

feeling better. Good luck,

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of abelcstkd

Sent: Monday, October 16, 2006

10:31 AM

To: mb12 valtrex

Subject: Valtrex,

another update after 7 months...OMG!!

Hello everyone,

I hope everyone is doing well. I last posted an update when Dylan

hit the 200 day mark and showed amazing gains from valtrex. It

started to appear that he was no longer making gains, and his yeast

was out of control. So, we stopped to see how we would do off of

valtrex and to also get his yeast back under control.

This is the amazing part of being off valtrex, and it was very

unexpected to us.....

He maintained all cognitive gains he made during those 6 months, but

he spiraled down in every other sense. His sensory was so out of

control it was as if he had no say in what his body was doing,

exactly as he was before valtrex. He no longer slept, in fact, with

each passing week he slept less and less, getting to the point where

the whole house had to function on 5 hours of sleep. His appetite

reminded me of my brother when he was a teenager. My 8 year old son

was eating non-stop, even at school. He was constant motion, easily

frustrated, aggressive and non-compliant and pretty much had me in

tears on a daily basis, not to mention the constant phone calls and

emails from school (something I thought was long behind us).

All of that in one month. One month off of valtrex was the worst

month we have been through since before even starting biomed on him

years ago. His sister even had to start locking herself in her room

just so she could find some peace and not be the " wrestle-buddy " .

We now are back on valtrex....day 4 in fact.

On day 1 school asked, what is going on? This is a different kid?

Day 2 and 3 (Sat/Sun) were the most peaceful days I have had, and I

even SLEPT this weekend!!!!! He is soooo calm, relaxed, and in

control of his body and motion. Aware of what he wants and needs and

can calmly request for his wants/needs. There have been no tantrums,

no wrestling, no crying and no need for constant motion. He even sat

down and watched a 90 minute movie!!!! PEACE!! He was in pain

before, while off of valtrex. School called a meeting to ask me if I

knew what his pain could be because he was in obvious agony. Today I

dropped him off and he was ready to start his day!!

So far we are seeing physical signs, too, that he still needs

valtrex. Last time we started the first thing to happen was the

chapped lips and dry cheeks, he has that again.

Now the question....how much longer do we have to go....the first 6

months aided his cognitive, now it seems we are hitting the sensory,

that the valtrex is actually helping with his SID, I find that so

fascinating!

Good luck to us all,

Blessings,

Colleen

Mom to Dylan 8.5 non-verbal, ASD, SID, OCD

Valtrex 6 months and counting

[Guest guest]

Colleen-

What did you do to get his yeast back under control. We had to stop

valtrex because he suddenly began completely our of control

tantrums. We are not sure if they are caused by yeast or something

else. Now that he has been off valtrex for a week I am already

seeing his behavior regress. Any input you have would be a great

help. Molly

>

> Hello everyone,

>

> I hope everyone is doing well. I last posted an update when Dylan

> hit the 200 day mark and showed amazing gains from valtrex. It

> started to appear that he was no longer making gains, and his

yeast

> was out of control. So, we stopped to see how we would do off of

> valtrex and to also get his yeast back under control.

>

> This is the amazing part of being off valtrex, and it was very

> unexpected to us.....

>

> He maintained all cognitive gains he made during those 6 months,

but

> he spiraled down in every other sense. His sensory was so out of

> control it was as if he had no say in what his body was doing,

> exactly as he was before valtrex. He no longer slept, in fact,

with

> each passing week he slept less and less, getting to the point

where

> the whole house had to function on 5 hours of sleep. His appetite

> reminded me of my brother when he was a teenager. My 8 year old

son

> was eating non-stop, even at school. He was constant motion,

easily

> frustrated, aggressive and non-compliant and pretty much had me in

> tears on a daily basis, not to mention the constant phone calls

and

> emails from school (something I thought was long behind us).

>

> All of that in one month. One month off of valtrex was the worst

> month we have been through since before even starting biomed on

him

> years ago. His sister even had to start locking herself in her

room

> just so she could find some peace and not be the " wrestle-buddy " .

>

> We now are back on valtrex....day 4 in fact.

>

> On day 1 school asked, what is going on? This is a different

kid?

> Day 2 and 3 (Sat/Sun) were the most peaceful days I have had, and

I

> even SLEPT this weekend!!!!! He is soooo calm, relaxed, and in

> control of his body and motion. Aware of what he wants and needs

and

> can calmly request for his wants/needs. There have been no

tantrums,

> no wrestling, no crying and no need for constant motion. He even

sat

> down and watched a 90 minute movie!!!! PEACE!! He was in pain

> before, while off of valtrex. School called a meeting to ask me

if I

> knew what his pain could be because he was in obvious agony.

Today I

> dropped him off and he was ready to start his day!!

>

> So far we are seeing physical signs, too, that he still needs

> valtrex. Last time we started the first thing to happen was the

> chapped lips and dry cheeks, he has that again.

>

> Now the question....how much longer do we have to go....the first

6

> months aided his cognitive, now it seems we are hitting the

sensory,

> that the valtrex is actually helping with his SID, I find that so

> fascinating!

>

> Good luck to us all,

>

> Blessings,

>

> Colleen

> Mom to Dylan 8.5 non-verbal, ASD, SID, OCD

> Valtrex 6 months and counting

>

[Guest guest]

Hi !

That is an interesting thought ~ about the metals in the brain, I do

wonder if the valtrex has helped pull them and we just need to be

patient while the rest of the body clears???? I wonder why when we

go off valtrex our kids are unable to sleep? It was such a weird

month, I am still trying to figure it all out. He was so sensory

that his body seemed like it was in constant pain from its own

nervous energy/overload, like little electric shocks constantly going

through him. I hope you are able to sleep tonight, it is so rough

when we are running around exhausted and our kids are full of energy!

Colleen

>

> Colleen,

>

> I always look forward to your updates!! Wow, very interesting

month.

> Do you think the valtrex was helping remove the metals from his

brain to

> help the cognition as well as surpressing the virus but it hadn't

worked on

> the rest of the body tissues enough yet?? Just a thought. My son

is also

> off at the moment and I am also experiencing the not sleeping

issues again.

> Milk thistle is what worked in the past to get him to sleep through

the

> night so I am wondering if the virus is overactive in his liver at

the

> moment. He has had slightly raised liver enzymes all along. I'm

glad he's

> feeling better. Good luck,

[Guest guest]

Hi Molly,

We just gave him yeast fighters from the HFS, Aloe Juice, Yeast

Defense, Candida Clear, ParaGuard ~ anything with caprylic acid, pau d'

arco, black walnut, oregano, GSE. A good probiotic too, like Primal

Defense as well as a very good enzyme with meals and on an empty

stomach, I use Q Zyme (which is from Garden of Life same as the Primal

Defense). Dylan was also on Sacc B for 2 weeks.

Colleen

>

> Colleen-

> What did you do to get his yeast back under control. We had to stop

> valtrex because he suddenly began completely our of control

> tantrums. We are not sure if they are caused by yeast or something

> else. Now that he has been off valtrex for a week I am already

> seeing his behavior regress. Any input you have would be a great

> help. Molly

[Guest guest]

Hi Sam's Mom!

I am not sure if the chapped lips is a sign of a responder, but the

fact that the exact same reaction happened within the first days both

times we started, well I think that it is NOW a sign ; ) That is so

terrific that he told you, " move back " !!! Only us parents could find

the blessing in sarcasm! LOL! Hang in there, it takes time, Dylan's

cognitive gains were obvious after 2 months and even moreso after 4.

Good luck and keep us posted, I may not post often but I read the

posts daily and look forward to hearing your updates!!

Colleen

>

> I noticed in your update that your son has chapped lips as a result

> of being on Valtrex, is that a good sign? My 3 year old has been

on

> Valtrex/Diflucan for approx 3 weeks now and we haven't seen any big

> obvious signs (rashes,fever, etc). The only thing I have noticed

is

> a light spotted looking rash around his genitals, and his lips are

> sooooo dry - which is unusual for him. They just look horrible!

Is

> this a good thing? I haven't heard anyone else mention this...

> This is giving me hope that this may be a sign that it is working.

> I have seen no regression so far, only slight gains - eye contact,

> more appropriate play, etc. He is still non-verbal, but I would

> swear that he told me to " move back " this weekend! I never thought

> I would be so glad to hear my son being smart with me! Just

wanting

> some input on this from anyone willing to offer advice!

>

>

> Thanks!

> Sam's mom

[Guest guest]

We also had the dry, chapped lips. It happened about 2 months into the Valtrex. I did not know it was related.

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of samsmom032003

I noticed in your update that your son has chapped lips as a result of being on Valtrex, is that a good sign? My 3 year old has been on Valtrex/Diflucan for approx 3 weeks now and we haven't seen any big obvious signs (rashes,fever, etc). The only thing I have noticed is a light spotted looking rash around his genitals, and his lips are sooooo dry - which is unusual for him. They just look horrible!

>> So far we are seeing physical signs, too, that he still needs > valtrex. Last time we started the first thing to happen was the > chapped lips and dry cheeks, he has that again.

..

I am using the free version of SPAMfighter for private users.It has removed 3951 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

> >

> > I noticed in your update that your son has chapped lips as a

result

> > of being on Valtrex, is that a good sign? My 3 year old has

been

> on

> > Valtrex/Diflucan for approx 3 weeks now and we haven't seen any

big

> > obvious signs (rashes,fever, etc). The only thing I have

noticed

> is

> > a light spotted looking rash around his genitals, and his lips

are

> > sooooo dry - which is unusual for him. They just look

horrible!

> Is

> > this a good thing? I haven't heard anyone else mention this...

> > This is giving me hope that this may be a sign that it is

working.

> > I have seen no regression so far, only slight gains - eye

contact,

> > more appropriate play, etc. He is still non-verbal, but I would

> > swear that he told me to " move back " this weekend! I never

thought

> > I would be so glad to hear my son being smart with me! Just

> wanting

> > some input on this from anyone willing to offer advice!

> >

> >

> > Thanks!

> > Sam's mom

>

hello sam's mom, i am glad you see those gains, my son is 3 and

he also is on valtrex and diflucan, we've seen some gains as

well,like his sleeping gone better, less cognition and more words, i

think that is one of the evidance that says, autism is a gut related

illness, before valtrex and diflucan he would wake up at night and

start screeming, main stream doctors would tell you they are having

a bad dream, but the reality is that, they are on pain due to

pathogens, and fungues, we have not seen those terrible night's for

almost a month.

good lock.

[Guest guest]

> >

> > Colleen-

> > What did you do to get his yeast back under control. We had to

stop

> > valtrex because he suddenly began completely our of control

> > tantrums. We are not sure if they are caused by yeast or

something

> > else. Now that he has been off valtrex for a week I am

already

> > seeing his behavior regress. Any input you have would be a

great

> > help. Molly

>

are you on diflucan also?