disappointed

[Guest guest]

I am disappointed to hear of all the great folks dropping out of the

support group. Speaking as a fourth grade school teacher, this would

be a situation where I would take people in need of resolution out in

the hall one at a time and talk to them.

I read the posts, listening to the fear, frustrations, sorrow,

anquish, anger, caring, love, strength, etc. and remedies for some of

these expressed in your letters. I have learned alot and took what I

needed from them and became so much more " armed " when dealing with

doctors. I am very grateful for ALL I have read and learned.

I brought my husband Lou home on Friday after a 7 day stay in the

hospital and 4 weeks in the skilled nursing facility. I know exactly

what one post is going thru concerning treatment in these places.

Lou felt trapped and desperate, thinking he would never be out when

put in a wheelchair and strapped in. He has bruises around his

middle from struggling to get out. He wasn't asked to be toileted

even tho he is continent (goes every ten minutes but continent!). He

is not even the same person since Friday nite. He is 100% better. He

cried to come home thinking he never would.

Being armed with information I learned here, I was able to ask for

medication or vehemently decline the use of certain medication and

had to become an advocate for his care. I never could have done that

without all of you.

This is a great site. You all have so much to contribute.

Please be tolerant and open to all views and ventings. We are all so

stressed.

Mik