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Hi Meg, Second question first: I think some out there have had success just getting a donor's ins co to generate a letter stating the donor has no benefits for donation, maybe you will hear from someone with some advice. On the first one, I'm not sure from your note what Social Security is proposing, but I would say Medicare is primary based on Renal Medicare rules - as you say she is long past the COB based on dialysis being the qualifying event. Part B enrollment date shouldn't have any bearing on who pays first.

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-----Original Message-----From: Macdonald, Meg Sent: Thursday, April 07, 2005 12:37 PMTo: TxFinancialCoordinators Subject: Help#1)Can anyone help me to determine if patient's Medicare or group ins is prime- and how to fix this problem??Here's are the details:Woman on hemodialysis since 11/00On SSDI since 6/96Had her own BC/BS policy until 1998 - then covered under husband's BC/BSpolicy since 1/99Patient has had Part A since 6/96 but delayed enrolling in Part B until8/04.Since she delayed enrollment in Part B until ONE YEAR AFTER her COB ended,BC/BS is saying Medicare should have been prime since 8/03 - but socialsecurity is disagreeing because she delayed enrollment.Who is right? She is scheduled for a renal transplant at long last on 5/26and we need to be sure of who is prime going forward, as well as in the pastsince there are major bills in dispute (incl possibly dialysis bills).#2)We are working with Liver Recipient HMO(BCBSMass) and Liver DonorHMO(Tufts). HMO BCBSMass insists that all bills go to Tufts first for denialand then resubmitted to BCBS for payment. Since this will completely screwup the new accounting and billing procedure that we are implementing fortransplant I am trying to find a short cut. First is this interpretationcorrect? Second has anyone ever gotten the donor insurance company to simplywrite a letter indicating they will not cover these services and have thataccepted by BCBS so our registration and billing processes don't get allfouled up?thank you.Meg MacMeg MacAdministrator Organ Transplant Services508 856-8088 phone508 856-8098 fax

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Yes, I have been having the same issues.  Pain in my joints - ankles, toes,

knees, wrists, fingers.  Neck pain, back pain.  I do have fibromyalgia too and I

know that has to do with the muscle pain.  I have been having serious fatigue

problems too.  If I do stuff one day, I have to take at least 3-4 days to

recover.  It sucks.

Cat

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> I also when I use the massager on my feet and legs have a tingling feeling run

thru to my toes. The pain is constant with some shooting stabing going on as

well.

> Is anyone else having the same type of symtoms?? any help out there....

> Deb

>

Deb, this sounds like neuropathy - poor nerve signals down the legs/arms. It is

known to gradually occur when your carbohydrate metabolism is messed up, as it

often is with CFS/FM. A low-carb diet can start to help in a few days.

Plus, have you tried Vitamin B12? When I get my weekly injections regularly, my

pain goes way down. The first injection after a break is almost unbearable pain

and lasts for days, but by the third or fourth I barely feel it.

Best wishes,

Jayne

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I am not really sure how to deal with this I have to work full time and I cant

take the pain my life is miserable. I try to make the best of it and do what I

can I am looing to go to a new rheumie hopefully we can come up with some meds

to help with my pain. One day Im good the next day Im in bed and I feel like I

cant take another moment of the pain and fatigue Good luck to yo cat I know what

you are going through I pray for a break through for all of us so we can live 

more productive life

 Love Ya!~Debra ~

Yes, I have been having the same issues.  Pain in my joints - ankles, toes,

knees, wrists, fingers.  Neck pain, back pain.  I do have fibromyalgia too and I

know that has to do with the muscle pain.  I have been having serious fatigue

problems too.  If I do stuff one day, I have to take at least 3-4 days to

recover.  It sucks.

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Well I had my EMG test today and my nerves are fine. The thing is I had a EMG

about 3 years ago on my arms and it was uncomfortable, but not bad. This was in

the beginning of my search for a diagnosis. The EMG today was murder. I have

not experienced pain like this since I had natural childbirth. I know I was in

the middle of a flare, so I kept the appointment hoping it would show something.

As I said it showed nothing. Unfortunately the neurologist doesnt get Fibro.

He knew I was in extreme pain, but had no idea what could be causing it. So we

are back at square one assuming it is all fibro related.

Patti

> I am also having the same shooting stabbing numbness pains in my legs. From

what I have read it can be fibro, or a nerve thing. My GP sent me to a

Neurologist and he is doing a EMG test (nerve test) on my legs Monday to rule

out other things. If that is fine, then we will consider it part of my fibro

and try to find a med that helps it.

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