Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi Lucy, I've tried SSKI and it doesn't seem to do anything for me . . . but it has helped others very much. I've just stopped my SSKI because I'm still growing lumps, so it doesn't make sense to me to take it. I'm chronic/idiopathic . . . so not sure what the trick, if there is one, is for me. I have't gained any weight being on it, but I do understand your fear, as there's a very close history of thyroid problems in the family. My weight gain came from Prednisone. That didn't help my lumps either . . . but it has helped greatly for some. That fatigue is probably the EN . . . I'm 40, with 4 kids, 19, 17, 15 & 15 . . . I used to be able to handle it before the EN, but now the fatigue renders me immobile. EN is different for all of us . . . I'm at 11 months now with one flare up after another . . . and I still haven't figured it all out! Shins up! M > > Hi all, > > I saw my dermatologist again on Friday. I had stopped taking the > Naprosen as it was upsetting my stomach. He said I should be taking > medicatin as there are still lumps and redness and that it will, > over time, hurt my veins and could lead to problems from that. He > has given me a prescription for another anti-inflammatory. He would > also like me to try Potassium Iodide, but I have concerns about > that. Specifically it can slow your thyroid and as I am already > overweight I don't want to have any more challenges. > > My question is: have people tried potassium iodide? Did it work? > Other than the fact that the bumps are ugly, they really don't seem > to bother me. I also get tired easily, but I am almost 45 and have > a 2 year old (soon to be 3) and a 4 year old (both boys) so I never > know how much fatigue is just part of live as an older mom with two > young boys. > > I've had this latest flare up for about 3 months now. Any > suggestions/insights would be appreciated. > > Lucy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Thank you "m". This is my third flare up of en in 5 years. Each time it seems to last for 6 months to a year. I haven't taken medication before as the first time I didn't even see my doctor for months (just figured it was something weird). The second time I was nursing and didn't want to do medication. I would like to think, in some ways, that the fatigue is due to the en, but I think everyone does not believe that. The dermatologist didn't think it should affect me. Lucy Re: Medication for EN Hi Lucy,I've tried SSKI and it doesn't seem to do anything for me . . . but it has helped others very much. I've just stopped my SSKI because I'm still growing lumps, so it doesn't make sense to me to take it. I'm chronic/idiopathic . . . so not sure what the trick, if there is one, is for me. I have't gained any weight being on it, but I do understand your fear, as there's a very close history of thyroid problems in the family. My weight gain came from Prednisone. That didn't help my lumps either . . . but it has helped greatly for some.That fatigue is probably the EN . . . I'm 40, with 4 kids, 19, 17, 15 & 15 . . . I used to be able to handle it before the EN, but now the fatigue renders me immobile.EN is different for all of us . . . I'm at 11 months now with one flare up after another . . . and I still haven't figured it all out!Shins up!M> > Hi all,> > I saw my dermatologist again on Friday. I had stopped taking the > Naprosen as it was upsetting my stomach. He said I should be taking > medicatin as there are still lumps and redness and that it will, > over time, hurt my veins and could lead to problems from that. He > has given me a prescription for another anti-inflammatory. He would > also like me to try Potassium Iodide, but I have concerns about > that. Specifically it can slow your thyroid and as I am already > overweight I don't want to have any more challenges.> > My question is: have people tried potassium iodide? Did it work? > Other than the fact that the bumps are ugly, they really don't seem > to bother me. I also get tired easily, but I am almost 45 and have > a 2 year old (soon to be 3) and a 4 year old (both boys) so I never > know how much fatigue is just part of live as an older mom with two > young boys.> > I've had this latest flare up for about 3 months now. Any > suggestions/insights would be appreciated.> > Lucy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi Lucy, I for one had tried Pot. Iodide Sol. It was terrible. The taste was like none I've had before or since. Also it did nothing. My lumps are livable. I've managed for a long time. But now I believe that a lot of other issues I have stem from my lumps. I'm looking into trying to find a way to manage w/ all that. I'm 37. My two girls are 18 and 19. I'm beginning to think I wore my body out to soon. LOL. I get so tired from just breathing...I'm not chasing any little ones. Maybe your little ones keep you going? Brigette > > Hi all, > > I saw my dermatologist again on Friday. I had stopped taking the > Naprosen as it was upsetting my stomach. He said I should be taking > medicatin as there are still lumps and redness and that it will, > over time, hurt my veins and could lead to problems from that. He > has given me a prescription for another anti-inflammatory. He would > also like me to try Potassium Iodide, but I have concerns about > that. Specifically it can slow your thyroid and as I am already > overweight I don't want to have any more challenges. > > My question is: have people tried potassium iodide? Did it work? > Other than the fact that the bumps are ugly, they really don't seem > to bother me. I also get tired easily, but I am almost 45 and have > a 2 year old (soon to be 3) and a 4 year old (both boys) so I never > know how much fatigue is just part of live as an older mom with two > young boys. > > I've had this latest flare up for about 3 months now. Any > suggestions/insights would be appreciated. > > Lucy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 I know what you mean, Lucy . . . my first derm doc didn't mention 'malaise' and fatigue . . . even though it mentions it in every website you can find on EN. My new derm doc though, was ready to write me out of work for a week or more if I wanted, knowing what EN does to a person. I was glad someone finally said something about the malaise/fatigue part of it. I've put myself back on the SSKI =) I stopped taking it Saturday . . . and last night my entire left calf was red and very sore . . . so I figured maybe the SSKI doesn't stop the EN, but perhaps makes it less severe?? The legs are less angry today, but then they always are after a good amount of rest . . . so again, I'm at the " who the heck knows? " stage. I'm thinking of trying the coconut oil . . . maybe it will help . . . maybe it won't . . . who the heck knows!? =) Have a great day, everyone! M > > > > Hi all, > > > > I saw my dermatologist again on Friday. I had stopped taking the > > Naprosen as it was upsetting my stomach. He said I should be > taking > > medicatin as there are still lumps and redness and that it will, > > over time, hurt my veins and could lead to problems from that. He > > has given me a prescription for another anti-inflammatory. He > would > > also like me to try Potassium Iodide, but I have concerns about > > that. Specifically it can slow your thyroid and as I am already > > overweight I don't want to have any more challenges. > > > > My question is: have people tried potassium iodide? Did it work? > > Other than the fact that the bumps are ugly, they really don't seem > > to bother me. I also get tired easily, but I am almost 45 and have > > a 2 year old (soon to be 3) and a 4 year old (both boys) so I never > > know how much fatigue is just part of live as an older mom with two > > young boys. > > > > I've had this latest flare up for about 3 months now. Any > > suggestions/insights would be appreciated. > > > > Lucy > > > > > Quote Link to comment Share on other sites More sharing options...
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