Re:Observer

January 12, 2009

Good Morning and Welcome! As you know by now, this is an amazing group

of people. This is the ONLY place I can come and know that I am understood

completely, because someone here has gone thru or is going thru the same thing I

am.

I was diagnosed 10 years ago with CFS & IBS, and 2 years ago with FM. I haven't

been able to work since I was fired in Feb 2006. It's been an uphill battle

with my hubby also. Even though our hubbies see the changes in us, they don't

seem to want to accept it. And like us - I suppose they have to go the the

'grieving' process too - anger, resentment, disbelief, mourning the loss of our

old selves until we finally gain acceptance. Sadly, we all do this in our own

order and our own time. My hubby has FINALLY accepted our new lifestyle, but

not without a lot of kicking and screaming along the way!!!!! He went from

cold and distant, to now making ME dinner when I certainly couldn't do it myself

-a HUGE change in our marriage (which I didn't think was going to survive this

for the last few years!)

One thing that helped convince him I wasn't an worthy actress all this

time, was a visit to my doctor with me. He went in full steam ahead, apparently

ready to disprove what was happening to me. She calmly answered his questions,

confirmed EVERYTHING I had been telling him for years, confirmed all the weird

symptoms and sproradic behaviour of these diseases, and that helped squelch any

ideas that the mainstream media, other doctors, etc, wwer spewing about it " all

being in our heads " .

I hope that he comes to understand your pain and diseases sooner than

later.......it is SO difficult when you don't have the support from your " other

half " .....I know that pain too well. Please hold on and I know how patient we

have to be for them to come around.

PS.....I know you have children, but is it possible to take the phone off the

hook, then when you wake up, check the messages? This may seem a bit extreme,

but him waking you up all day is not helping your health issues, as you surely

know. I don't mean to sound rude, just a thought.........

Jane

Recommended Posts