Re: Hello! - New To Group - Quick Question

[Guest guest]

Dear Kandra,

Your EN sounds quite similar to mine and I am going on 36 years of

living with it. Stress, lack of sleep and overdoing all bring on EN

flare-ups for me too.

I have always required a lot of sleep: at least 8 hours and often 9 a

night. During a flare-up, I can sleep many more hours. I think of it

as my body being " under seige " and needing to rest and regroup to

fight off the EN invader. I recover quickly and the lumps subside in a

couple days with rest. If I don't rest the episode takes longer--up to

two weeks. But remember I always get at least 8 hours of sleep a night.

I know that all my " preaching bedrest " is an unpopular sermon on this

group as people just can't spare the time. I think of it as " time

well spent " as it tends to make my flare-up briefer.

I know this isn't the answer you were looking for, and there are

things that help to alleviate symptoms, but rest, at least for me, is

the best treatment. When my body is dog tired it is telling me it

needs sleep.

Love,

[Guest guest]

Kandra,

There is also the possibility that the complete

exhaustion is a side effect from other things as well.

A thyroid condition can cause it and in my experience

sugar can cause it. I am prediabetic and when I avoid

sugar the exhaustion actually gets better. I also

suffer from hypothyroidism and take medication to

regulate it.

Right now I find myself dozing off at work several

times a day. Not a good thing! Has your dr ruled out a

thyroid condition among other things?

Terri -- who is sleep deprived and feeling it - out of

sorts and feeling confused among other things

--- kandrawitkowski wrote:

> I am new to the group and am looking for a little

> advice or at least

> a couple responces to let me know I'm not crazy. My

> EN seems to

> stem from over doing things, lack of sleep, and

> stress. I have all

> the typical side effects - the painful, hot bumps;

> minor joint

> discomfort; and overall icky feeling. I have one

> additional side

> effect ... I get abosuletly exhausted. I have

> trouble keeping my

> eyes open, I nod off here and there, I get so tired

> my arms and legs

> feel heavy. Anybody else suffer from this side

> effect? If so any

> ideas on how to live with it? I mean it would be

> great if I could

> just lay down and sleep for days but life just

> doesn't let that

> happen.

>

> Kandra

[Guest guest]

Yup! Glucose test - ok --- Theryoid - perfect!

KandraTerri Smeigh wrote:

Kandra,There is also the possibility that the completeexhaustion is a side effect from other things as well.A thyroid condition can cause it and in my experiencesugar can cause it. I am prediabetic and when I avoidsugar the exhaustion actually gets better. I alsosuffer from hypothyroidism and take medication toregulate it. Right now I find myself dozing off at work severaltimes a day. Not a good thing! Has your dr ruled out athyroid condition among other things?Terri -- who is sleep deprived and feeling it - out ofsorts and feeling confused among other things--- kandrawitkowski wrote:> I am new to the group and am looking for a little> advice or at least > a couple responces to let me know I'm not crazy. My> EN seems to > stem from over

doing things, lack of sleep, and> stress. I have all > the typical side effects - the painful, hot bumps;> minor joint > discomfort; and overall icky feeling. I have one> additional side > effect ... I get abosuletly exhausted. I have> trouble keeping my > eyes open, I nod off here and there, I get so tired> my arms and legs > feel heavy. Anybody else suffer from this side> effect? If so any > ideas on how to live with it? I mean it would be> great if I could > just lay down and sleep for days but life just> doesn't let that > happen.> > KandraY

[Guest guest]

Dear kandra,

100 people over for a pig roast! Just imagininging that would throw me

into a flare-up! Well, now you learned a valuable lesson and next time

someone else can have the roast at HER house. It is so much easier

to take over a side dish! ;-) For me part of handling my EN was

learning my limitations.

Love,

[Guest guest]

Dear Kandra,

You have a great fighting spirit and that's great! EN can slow us down

at times, but hopefully it doesn't stop us.

We recently started an " EN Hall of Fame " on the site where we write

about things that we have accomplished in spite of having EN or PG. It

is under our Files.

I have had to make adjustments in that I needed to do a " desk job "

rather than a standing job. Hubby and I also ran our own business for

about 10 years. We both had down time, but managed to get through it.

Being married to a wonderful man is a great blessing. We fill in for

each other when one of us is down. We've been together nearly 32 years

now. Most of our time has been spent together. We think of ourselves

as a team and it's worked out perfectly. He knew I had EN before we

married. He was not concerned about anything but knowing if it was

" contageous " , which of course it isn't. :-)

Love,