Re: Facebook cause against CFIDS & Fibro

[Guest guest]

Well fortunately, after I logged into my Facebook account, I read all the

comments regarding the one guy who put up this so called invisible disease

hater site and all of the commentary is from people who have the disease and

what they wrote in defense is great! It's all very supportive and just a way

to tell the guy that it's obvious that he doesn't get it and maybe he knows

someone with the illness and he hates it. We all feel sorry for that guy,

because we all know that those who do not believe in numerous invisible

diseases wouldn't last 10 minutes in our bodies!

Whitney

Eat, sleep, dream and be the music!

Life is short, live each day to its' fullest!

Cave softly and leave no trace.

Portland countdown: only 1 month left :)

2009/1/8 ylrdog

> Feel free to cross post.

>

> I was searching the web for a cause to put on my Face book page. I came

> across this horrific " cause " . They claim our illnesses are fake and

> that we make up excuses so that we can get our " insurance companies " to

> pay out money.

>

> I don't know about you, but Medicare for me doesn't pay much, if at all.

>

> Here is the link to the website. If it does not get you to the site,

> let me know.

>

> http://apps.facebook.com/causes/150304?m=14b86766 & recruiter_id=15861009

>

>

>

[Guest guest]

That makes me angry. Why would someone go through the effort to create that

site? Sounds like someone bitter or just trying to get money themselves through

the " donate " link. Good for the people who wrote on the discussion board against

it.

-Alia

[Guest guest]

I can't believe someone would be stupid and selfish enough to create

such a " cause " on Facebook - but I have read some of the posts myself

and am relieved to see that they are calling the author/creator stupid

also! Well spotted!

[Guest guest]

Hmmmm...i just my response to that!

dee

>

> Well fortunately, after I logged into my Facebook account, I read

all the

> comments regarding the one guy who put up this so called invisible

disease

> hater site and all of the commentary is from people who have the

disease and

> what they wrote in defense is great! It's all very supportive and

just a way

> to tell the guy that it's obvious that he doesn't get it and maybe

he knows

> someone with the illness and he hates it. We all feel sorry for

that guy,

> because we all know that those who do not believe in numerous

invisible

> diseases wouldn't last 10 minutes in our bodies!

[Guest guest]

Has anyone ever heard of a court case against anyone slandering people with

CFIDS/FMS/MCS ? It is bad enough that I got cheated out of medical care and

disability

benefits. When some one accuses me (or us) of being lazy, dishonest,

hypochondriac, ec., I

consider that intolerable. Doesn't the accuser have to be able to prove his

accusations in

court ?

- B.

[Guest guest]

There is a place on the anti-cfs/fms Facebook site where you can report the

group to Facebook.

If you go to the link and go all the way to the bottom of the page, there is

a link to click to report this group. I know several people who have

reported them. wouldn't hurt for them to hear from a number of us!

RE: http://apps.

<http://apps.facebook.com/causes/150304?m=14b86766 & recruiter_id=15861009>

facebook.com/causes/150304?m=14b86766 & recruiter_id=15861009

Shari

---------------------------------

Doesn't the accuser have to be able to prove his accusations in court ?

- B.

[Guest guest]

I think we should ALL file complaints with facebook for that horrid

site that slanders all of us with hatred and discrimination that should

NOT be tolerated ANYWHERE! So PLEASE, take the time to go to that site,

post messages, and better yet, do what I did and send a message to the

group founder, and file a complaint with facebook to get it shut down

under the reason of hate, discrimination, slander, and false medical

advice. Facebook needs to be made aware of this group. The more who

complain, post, and send messages the better and with hope the faster

it will get shut down. If enough of us bug the founder about it maybe

he will just stop and move on. It disgusts me that he is doing this to

a all people who have this disablity and diseases. Its wrong and we all

need to stand up and take action on this!!

Blessings

Dr.

[Guest guest]

>

> Has anyone ever heard of a court case against anyone slandering

people with

> CFIDS/FMS/MCS ? It is bad enough that I got cheated out of medical

care and disability

> benefits. When some one accuses me (or us) of being lazy,

dishonest, hypochondriac, ec., I

> consider that intolerable. Doesn't the accuser have to be able to

prove his accusations in

> court ?

>

> - B.

>

Though the idea is enormously tempting, I wouldn't want to give this

jerk the attention he so obviously craves. People like this only do

it for a reaction.

The worst thing that could happen to him is that his facebook group

stays a pathetic group of only 19 people. Might help to show him what

a loser he really is.

take care, ness

If we draw attention to it, lots of other jerks will join too.

[Guest guest]

I wouldn’t dignify these idiots with any attention at all, posting to them

just adds fuel to the fire. Simply report it IMHO. Thanks for this all.

Aylwin xox

[Guest guest]

No offense at all , but I think that we just “feed the fire” when we

respond to such crap. I have reported the site, as I did when I found some

Nazi Yahoo groups, but that’s all. They’re only sorry losers with nothing

better to do. Aylwin xox

[Guest guest]

WRONG  The idiot has the right to his opinion and the more attention you bring

to him just gets him more attention.

[Guest guest]

It is good that other Facebook users see our view too,

when they go to that anti-CFS posting.

It helps inform the general public of the truth. Also, it

informs CFS people who have been mislead to believe they don't

have a genuine illness.

I imagine many hundreds (more likely thousands) of CFS

people committed suicide because of this false info about

the reality of CFS/FMS/MCS.

- B.

[Guest guest]

I second that! Doing nothing and saying nothing and not standing up

when something like this is happening, or someone is spreading false

information, doesnt help anyone. Standing up and spreading TRUTH and

putting someone like him in his place with that truth HELPS others and

anyone who sees his page. Be active in ME/CFA/Fibro awareness, not

passive! Be an advocate any chance you get! Take the step to replace

negativity with positivity and education any chance you get people!

Doing nothing helps noone.

Blessings

Dr. Craft

[Guest guest]

> Re: Facebook cause against CFIDS & Fibro

I looked over the whole website and learned the following:

" I have no patience with people who are colossal black

holes of ignorance and cannot think or reason for

themselves "

That is all I have to say on the subject!

kathy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Those who sacrifice liberty and freedom

for security dserve neither. "

~ lin

[Guest guest]

I was diagnosed with CFIDS and Fibro in 1998, so I have not been been

keeping up with professional interests (I was an administrative law

judge a very long time ago and have some formal legal training. The

following would still be close to the truth, but I would urge you to

consult with legal aid or anyone willing to provide current legal

expertise. When I was on top of things, slander precedents did

include disclosing a person had AIDS without the individual's

permission. This should apply because disclosing (or effectively

forcing someone to disclose) information certain to cause the loss

of jobs and friends was an easy case to win. Slander is usually hard

to win because it is hard to prove intent. Saying someone has an

untreatable and incurable condition without their permission is

inherenly malicious (unless they claim a mental defect that prevents

them from considering the consequences before speaking).

My knowledge is likely to be out of date. Legal action should be

considered, if only to get the news media to talk about the reality

of these things and to improve public awareness.

We live in an imperfect world. I strongly suggest a legal

consultation to know your real options. When you discover how much

time and energy this kind of case takes, it might not be worth it to

you. Please go to a curremt and practising professional for legal

advise. If you feel you can whether the storm, a good lawyer can

shield you from the things that would drain a person who was in

perfect health.

[Guest guest]

> >

> > Has anyone ever heard of a court case against anyone slandering

> people with

> > CFIDS/FMS/MCS ? It is bad enough that I got cheated out of

medical

> care and disability

> > benefits. When some one accuses me (or us) of being lazy,

> dishonest, hypochondriac, ec., I

> > consider that intolerable. Doesn't the accuser have to be able

to

> prove his accusations in

> > court ?

> >

> > - B.

> >

>

>

> Though the idea is enormously tempting, I wouldn't want to give

this

> jerk the attention he so obviously craves. People like this only do

> it for a reaction.

>

> The worst thing that could happen to him is that his facebook group

> stays a pathetic group of only 19 people. Might help to show him

what

> a loser he really is.

>

> take care, ness

> If we draw attention to it, lots of other jerks will join too.

>

[Guest guest]

Thanks for your thoughts, Rip !

I wonder whether the national ME associations might ever take

on such a lawsuit.

- B.

[Guest guest]

What is all this moaning about some idiot on Face book when there are real

impediments to those of us that have to use a wheel chair by agencies such as

the United States Forest Service and others that ignore ADAG and the ADA and

continue to not allow access to public land.

[Guest guest]

I feel your frustrations personaly are spilling out into that post. You

should be able to understand that when you see someone discriminating

in a really hateful way against us, it is natural to want to speak out

about it. Maybe you did not see it yourself, it was really really evil.

It was not 'moaning' as you say which implies 'whineing', it was us

sharing the hurt that lack of knowledge, lack of understanding, and

judements cuase which we ALL here can relate to. I think you need to

work on being more understanding of others feelings, which I know is

hard when you are suffering, and keeping your personal frustrations in

check and not letting it spill out into interactions with others which

only causes more negativity to spread, and makes the people you

interact with feel attacked in the much the same way you do in your

life right now. This is something we all must learn to do in our lives -

not letting our hurt jump out and hurt others becuase we are angry.

That is the real reason that young man put up that Face Book page we

responded to. Something in his life is hurting him and he is angry

COMPASSION for others, and ourselves, helps you and helps us all.

Dr.

[Guest guest]

But still you dont get it that this person on Facebook has a protected right to

spread his junk.  It all goes to the Free Speech thing that we are all entitled

to as one of our unalienable rights.

My disabilty decision took more then ten years to get through the courts.  They

way that I got it was to get doctors to concentrate on the symptoms instead of

giving it a label because MCS is not recognized by most medical practisioners

but the symptoms are.

I could have taken the shortcut route and been disabled under a mental

disability but that carries with it a stigma and certain legal constraints.

What you charactarize an overflow from me is far more detrimental to us then

some idiot on Facebook because it is sanctioned discrimination by federal

agencies.