Leaving

[Guest guest]

Imelda,

Thanks for your email. Since posting, I have heard from five other people directly who I believe have left or are leaving also and want to continue emailing with me personally. That makes 9 people who are now emailing me personally, and maybe each other.

I am not leaving because of any political dissension or any other sensitivity or upset. That just happened to be the last straw because I had been thinking of leaving sometime back. It was just the general deviation from LBD caregivers concerns to more personal complaining and bringing in all sorts of problems that were not relevant to our situations with LBD. I really want the medical information exchanges and comparisons to where the disease is with their loved ones. I find no fault with anyone talking about the loneliness and frustrations with the caregiving, or talking about their homes, children, animals, or flowers which give them comfort in a trying situation. But, when they start using what I consider vulgar language, and becoming rude and unloading their poor relationships with everyone in their family and lives, and also giving off personal opinions that have nothing to do with LBD or caregiving and everything to do with their personal agendas, then I am no longer interested. I found myself doing more deleting than reading. When I first joined the group last year, we had such a wonderful interchange and support for each other that I eagerly looked forward to my email. But, if you look back at the postings from then to now, you will see how very different the slant, optimism, support, manners and medical information has changed.

If people want to unload every relationship, thought, ideology, bitterness and complaint they may have in their lives and have others do the same to them, there are plenty of sites just for that. I understood this group to be defined as a LBD Caregivers support site, and I believe that is what it should be.

One of the people who emailed me said "I became very depressed after reading the postings, and that is not what I needed as an already depressed caregiver. I wanted to be "uplifted" and feel comraderie with the other caregivers, with support and problems trying to be solved, not unhappy and rude people dumping their lives on us." That really says it all.

Eve