Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Dear Jeff, Checking in before bed I just had to tell you that your last post was one of the most thoughtful ones I have ever read. Your suggestions on where to begin as well as why makes so much sense. After reading the frustrated posts by many members I am convinced that you know more than most of our doctors. I know your experiences did not come easy. I have mentioned it before, but I must again express my appreciation for your huge contribution to this Group. In a world where so many want to " get theirs and be on their way " you have taken the time and effort to help others. I know I speak for the whole group when I say Thank you, and God Bless you Jeff! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 What kind words.....Yes, most definitely.....Thank you, Jeff... Jo Strecker wrote: Dear Jeff,Checking in before bed I just had to tell you that your last post wasone of the most thoughtful ones I have ever read. Your suggestions onwhere to begin as well as why makes so much sense. After reading thefrustrated posts by many members I am convinced that you know morethan most of our doctors. I know your experiences did not come easy. I have mentioned it before, but I must again express my appreciationfor your huge contribution to this Group. In a world where so manywant to "get theirs and be on their way" you have taken the time andeffort to help others. I know I speak for the whole group when I sayThank you, and God Bless you Jeff!Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hi , You really are too gracious, you know that? But I do appreciate the nice comments and I thank you. With such a sketchy history on littleknockworst, I hesitate sometimes, I am likely way off base, hope I am. I think there is nothing worse than the hopeless feeling one gets with a disease but the dots won't connect. I would never wish that on anyone. If one person can avoid that situation and at least have some hope that they are on the right track, what a relief. Maybe this story might help someone. At Univ of Mich, I have been the subject of something called a Clinical Study. The latest one I have been involved with was just a year ago. With a problem case, such as mine, you will come in and a team of their docs and med students come see you and examine you in small groups. At one sitting you will see 30 to 40 docs. Yes, most are students. You are not allowed to discuss anything with them, they can't ask you questions, but they can examine you. This activitity is 2 fold. They take your case on from scratch as a problem case. They review your med records, read your history and examine you, but they don't know anything about how you have been treated. They in-turn get to " practice " . They will go back and " problem solve " and they will, as a group, come back with a recommended treatment. I have been involved with this in 2 instances. I waited at the hospital all afternoon until they came out of their meeting, because I wanted to know right away what their recommendation was. BTW, this cost me NOTHING. ly, if you are a problem case, I dont' know how you can beat it! In both instances, they where right on and the treatment greatly improved my situation. I repeat this personal story here in case someone might benefit. My personal goal is no one has to go through what I did, what I mentioned early on, having feelings of hopelessness. jeff > Dear Jeff, > > Checking in before bed I just had to tell you that your last post was > one of the most thoughtful ones I have ever read. Your suggestions on > where to begin as well as why makes so much sense. After reading the > frustrated posts by many members I am convinced that you know more > than most of our doctors. I know your experiences did not come easy. > > I have mentioned it before, but I must again express my appreciation > for your huge contribution to this Group. In a world where so many > want to " get theirs and be on their way " you have taken the time and > effort to help others. I know I speak for the whole group when I say > Thank you, and God Bless you Jeff! > > Love, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 You are too sweet too Jo. I can only wish I knew what most docs know. jeff > Dear Jeff, > > Checking in before bed I just had to tell you that your last post was > one of the most thoughtful ones I have ever read. Your suggestions on > where to begin as well as why makes so much sense. After reading the > frustrated posts by many members I am convinced that you know more > than most of our doctors. I know your experiences did not come easy. > > I have mentioned it before, but I must again express my appreciation > for your huge contribution to this Group. In a world where so many > want to " get theirs and be on their way " you have taken the time and > effort to help others. I know I speak for the whole group when I say > Thank you, and God Bless you Jeff! > > Love, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 You are most welcome, Jeff.....But believe me, you MAY be well ahead of most of the doctors.....(anyway from what I have seen!) Take good care of yourself! JoJeff wrote: You are too sweet too Jo. I can only wish I knew what most docs know.jeff> Dear Jeff,> > Checking in before bed I just had to tell you that your last post was> one of the most thoughtful ones I have ever read. Your suggestions on> where to begin as well as why makes so much sense. After reading the> frustrated posts by many members I am convinced that you know more> than most of our doctors. I know your experiences did not come easy. > > I have mentioned it before, but I must again express my appreciation> for your huge contribution to this Group. In a world where so many> want to "get theirs and be on their way" you have taken the time and> effort to help others. I know I speak for the whole group when I say> Thank you, and God Bless you Jeff!> > Love,> > > > > Quote Link to comment Share on other sites More sharing options...
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