Yet Another Pain Meds Update

January 23, 2004

I can only thank from the bottom of my heart those that have been

following and offering support - whether in email or silently in their

hearts - over my recent sagas with my pain doctor.

After three weeks (three weeks at top gear, many months before it not

shared so much with the list, too), five changes of medication (don't

say ANYthing about waiting for things to settle! *I* didn't ask for any

change except the first one, I just reported to my Dr what was

happening!) and much see-sawing from being massevly over-sedated and

sleeping *all* the time, to days and nights on end with no sleep at

all ... finally ... finally finally FINALLY the Dr has relented and

suggested I try taking the medication combination I requested I take

many months ago and several times since.

He had the gall to give it to me along with a Stern Lecture about not

increasing strong (narc) meds too much or more than necassary, which I

think is hilarious because (a) the pain was skiking at 9.8 and I was

suicidal from the thought of it only getting worse, so I don't see I

could have lived meaningfully without increasing meds ... and the meds

that *HE* offered to me INSTEAD of what I asked for were twice as

strong!!!!! (my Pharmacist agrees this is true) What a hypocrite!!

Anyway, just for vague info I am now on 150 micrograms / hour of

Fentanyl, which is one 100 patch and one 50 patch, changed every 72

hours. Actually, I think I'll stagger the changes so they don't run out

at once. hey, THAT'S a smart idea!

Anyway, only been using them for about 18 hours so far so I *know* it's

early days but everything looks 100000000% promising so far. Pleane

send good thoughts/prayers that this really does work!!!!

Anybody with suggestions about helping it work, not that I can think of

any, please offer!!!! Need all the chance I can get as if this doesn't

work I am screwed well and truly.

Thinking Positive,

Ricky

--

: Usual state: (e) None of the above.

: We can dance through our lives and still be 'responsible'. We

: can dive deeply into our challenges, and still chortle with

: glee. -- SARK, 'Eat Mangoes Naked'

Recommended Posts