Excess Urine??

October 2, 2008

OK, we all know that miralax can obviously cause this excess urine

and now as I recently learned from Jeanie it can also cause the

opposite(little urine), this was new to me about the little urine(my

son always had the excess urine from miralax). But as good as my son

has been doing, uuuugh, something is going on again, doing all the

write/neccessary things etc, but the motility thing happening. We

well be traveling to gastro for possible hospital stay in 2 weeks(I

think I gotta get this done, so dont want to, my poor lil guy).

Anyways, I have been noticing something, just not 100% on this and

want to see if anyone else has seen this connection or am I reading

into something to much? My son is backing up as of now, the thing I

have noticed is lots and lots of excess urine during these times. NO,

he is not on any form of miralax. This is just something Im am just

kinda noticing the last couple of back up times(cant remember befor,

but im thinking this has been going on for a while). His fluid intake

is norm(what gastro recommended/he is hydrated), but am thinking to

myself during these last couple of backups, " Why is there so much

urine comming out of him/excess, but yet backing up? " Makes me think

of when he was on miralax and the excessive urine!! At first I start

to worry about his kidney's(had successful surgery years ago), still

kinda wondering about that, but still am wondering has anyone noticed

this extra urine release during backups? Im wondering if this is

possibly influencing the backup, the urine is going through his

systom to quick, not enough going into the stools? I dont know, I

could just be brain boggling, but still wanted to ask? This question

is important to me, especially worrying about his kidneys, his last

follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

, each person has a different view on frequent or excessive urine output and all kids are different. How much is he going? Is it too often or too much when he does go? Are these accidents? Please explain..............I've seen many cases of urinary reflux, going back up into the kidney's. Are you familliar with how the medication works, that it pulls water from the whole body into the bowels? ( yes, I know he hasn't been on it) this is what was causing it when he was on it.................

Subject: Excess Urine??To: miralax Date: Thursday, October 2, 2008, 8:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

Yes I have a basic understanding on the miralax pulling fluids into

the stools, but that is about my limit on the miralax as far as

looser stools/urine affects. But this excess urine while on it, what

does this have to do with the gi verses the urinary tract. But as I

mentioned, this excess urine I have been noticing is seeming to be

during backups! I can understand this while he was on miralax, but

why now and why only during backups(excess urine)! My son also had

kidney reflux. This didnt cause excess urine, it backed it up. His

output during these excess times is not accidents, he is diapered and

I have routinely ever since his kidney surgery monitored payed more

attention to his urine output(just about can tell you the weight per

diaper change, this is from 9yrs changing him . No it is not so

much more frequent but as if the flood gates opened on occaission,

just not the norm. It just seems odd to me this is during backup

moments that Im seeing this. Have you notice in posts/reports that

this excess urine is a problem after being miralax free, but was

started while on miralax? Maybe time to request urologist follow up!!

Thanks Jeanie for the info!! Jennie<><

>

> Subject: Excess Urine??

> To: miralax

> Date: Thursday, October 2, 2008, 8:48 AM

>

> OK, we all know that miralax can obviously cause this excess urine

> and now as I recently learned from Jeanie it can also cause the

> opposite(little urine), this was new to me about the little urine

(my

> son always had the excess urine from miralax). But as good as my

son

> has been doing, uuuugh, something is going on again, doing all the

> write/neccessary things etc, but the motility thing happening. We

> well be traveling to gastro for possible hospital stay in 2 weeks(I

> think I gotta get this done, so dont want to, my poor lil guy).

> Anyways, I have been noticing something, just not 100% on this and

> want to see if anyone else has seen this connection or am I reading

> into something to much? My son is backing up as of now, the thing I

> have noticed is lots and lots of excess urine during these times.

NO,

> he is not on any form of miralax. This is just something Im am just

> kinda noticing the last couple of back up times(cant remember

befor,

> but im thinking this has been going on for a while). His fluid

intake

> is norm(what gastro recommended/ he is hydrated), but am thinking

to

> myself during these last couple of backups, " Why is there so much

> urine comming out of him/excess, but yet backing up? " Makes me

think

> of when he was on miralax and the excessive urine!! At first I

start

> to worry about his kidney's(had successful surgery years ago),

still

> kinda wondering about that, but still am wondering has anyone

noticed

> this extra urine release during backups? Im wondering if this is

> possibly influencing the backup, the urine is going through his

> systom to quick, not enough going into the stools? I dont know, I

> could just be brain boggling, but still wanted to ask? This

question

> is important to me, especially worrying about his kidneys, his last

> follow up was good on the kidney's, but that was his last yearly

> checkup! Jennie<><

>

October 2, 2008

I was just wondering if he's growing, therefore there will be more urine output, or maybe he's drinking more? This could also be because of the problem that it caused with the reflux, that it doesn't work right now..................my dd was diagnosed with this as well.............urinary reflux, that's why I know this is from the Miralax. I see so many others with the same thing and I always susupected this..............now if they would just put two and two together to realize this is happening to How many children? This could also be happening more when he is backed up because there is stool filling the space where the bladder is therefore pushing more out................Trying to convince these people that Miralax is causing urinary reflux probably won't happen in our lifetime................But they would if I knew how! I think it did do something, I

just haven't figured out what yet.....................that's why I say push water to flush it out as much as possible.

Subject: Re: Excess Urine??To: miralax Date: Thursday, October 2, 2008, 9:29 AM

Yes I have a basic understanding on the miralax pulling fluids into the stools, but that is about my limit on the miralax as far as looser stools/urine affects. But this excess urine while on it, what does this have to do with the gi verses the urinary tract. But as I mentioned, this excess urine I have been noticing is seeming to be during backups! I can understand this while he was on miralax, but why now and why only during backups(excess urine)! My son also had kidney reflux. This didnt cause excess urine, it backed it up. His output during these excess times is not accidents, he is diapered and I have routinely ever since his kidney surgery monitored payed more attention to his urine output(just about can tell you the weight per diaper change, this is from 9yrs changing him . No it is not so much more frequent but as if the flood gates opened on occaission, just not the norm. It just seems

odd to me this is during backup moments that Im seeing this. Have you notice in posts/reports that this excess urine is a problem after being miralax free, but was started while on miralax? Maybe time to request urologist follow up!! Thanks Jeanie for the info!! Jennie<><> > From: Jennie <mykidshisgift@ ...>> Subject: Excess Urine??> To: miralax@yahoogroups .com> Date: Thursday, October 2, 2008, 8:48 AM> > > > > > > OK, we all know that miralax can obviously cause this excess urine > and now as I recently learned from Jeanie it can also cause the > opposite(little urine), this was new to me about the little urine(my > son always had the excess urine from miralax). But as good as my son > has been doing, uuuugh, something is going on again, doing all the > write/neccessary things etc, but the motility thing happening. We > well be traveling to gastro for possible hospital stay in 2

weeks(I > think I gotta get this done, so dont want to, my poor lil guy). > Anyways, I have been noticing something, just not 100% on this and > want to see if anyone else has seen this connection or am I reading > into something to much? My son is backing up as of now, the thing I > have noticed is lots and lots of excess urine during these times. NO, > he is not on any form of miralax. This is just something Im am just > kinda noticing the last couple of back up times(cant remember befor, > but im thinking this has been going on for a while). His fluid intake > is norm(what gastro recommended/ he is hydrated), but am thinking to > myself during these last couple of backups, "Why is there so much > urine comming out of him/excess, but yet backing up?" Makes me think > of when he was on miralax and the excessive urine!! At first I start >

to worry about his kidney's(had successful surgery years ago), still > kinda wondering about that, but still am wondering has anyone noticed > this extra urine release during backups? Im wondering if this is > possibly influencing the backup, the urine is going through his > systom to quick, not enough going into the stools? I dont know, I > could just be brain boggling, but still wanted to ask? This question > is important to me, especially worrying about his kidneys, his last > follow up was good on the kidney's, but that was his last yearly > checkup! Jennie<><>

October 2, 2008

Jennie,

Is he going more frequently, or is it possible that he's holding it in? My son will do that at time when he's backed up...and then when he goes (around 3x daily when backed up), he could fill a 20oz soda bottle!

Subject: Excess Urine??To: miralax Date: Thursday, October 2, 2008, 9:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

Since you're familiar with kidney issues...it pays to have them ultrasound his bladder when you go to the hospital. Noninvasive and quite telling. If the bladder is overstretched, you will know that he's holding it in ... which means he may not actually be having reflux.

From: Jennie <mykidshisgift@ yahoo.com>Subject: Excess Urine??To: miralax@yahoogroups .comDate: Thursday, October 2, 2008, 9:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

I sure hope we can eventually figure it out also!! Wow, your theory on the full stools and pushing on the bladder makes some sense to me, this relieves some kidney worries, plus also I realized after the other posts, if it was kidney or bladder issue it wouldnt just be during back up times.. And you also mentioned could be all im giving him to help him poo is causing more urine. In fact now that I think about it, im pretty sure aloe may pull the fluids, ill have to go double check this. Thanks for helping to figure that one out!! When I get a chance im gonna go look up the anatomy of where the intestines and bladder may me near eachother. Thanks, Jennie<><

From: Jennie <mykidshisgift@ yahoo.com>Subject: Re: Excess Urine??To: miralax@yahoogroups .comDate: Thursday, October 2, 2008, 9:29 AM

Yes I have a basic understanding on the miralax pulling fluids into the stools, but that is about my limit on the miralax as far as looser stools/urine affects. But this excess urine while on it, what does this have to do with the gi verses the urinary tract. But as I mentioned, this excess urine I have been noticing is seeming to be during backups! I can understand this while he was on miralax, but why now and why only during backups(excess urine)! My son also had kidney reflux. This didnt cause excess urine, it backed it up. His output during these excess times is not accidents, he is diapered and I have routinely ever since his kidney surgery monitored payed more attention to his urine output(just about can tell you the weight per diaper change, this is from 9yrs changing him . No it is not so much more frequent but as if the flood gates opened on occaission, just not the norm. It just seems

odd to me this is during backup moments that Im seeing this. Have you notice in posts/reports that this excess urine is a problem after being miralax free, but was started while on miralax? Maybe time to request urologist follow up!! Thanks Jeanie for the info!! Jennie<><> > From: Jennie <mykidshisgift@ ...>> Subject: Excess Urine??> To: miralax@yahoogroups .com> Date: Thursday, October 2, 2008, 8:48 AM> > > > > > > OK, we all know that miralax can obviously cause this excess urine > and now as I recently learned from Jeanie it can also cause the > opposite(little urine), this was new to me about the little urine(my > son always had the excess urine from miralax). But as good as my son > has been doing, uuuugh, something is going on again, doing all the > write/neccessary things etc, but the motility thing happening. We > well be traveling to gastro for possible hospital stay in 2

weeks(I > think I gotta get this done, so dont want to, my poor lil guy). > Anyways, I have been noticing something, just not 100% on this and > want to see if anyone else has seen this connection or am I reading > into something to much? My son is backing up as of now, the thing I > have noticed is lots and lots of excess urine during these times. NO, > he is not on any form of miralax. This is just something Im am just > kinda noticing the last couple of back up times(cant remember befor, > but im thinking this has been going on for a while). His fluid intake > is norm(what gastro recommended/ he is hydrated), but am thinking to > myself during these last couple of backups, "Why is there so much > urine comming out of him/excess, but yet backing up?" Makes me think > of when he was on miralax and the excessive urine!! At first I start >

to worry about his kidney's(had successful surgery years ago), still > kinda wondering about that, but still am wondering has anyone noticed > this extra urine release during backups? Im wondering if this is > possibly influencing the backup, the urine is going through his > systom to quick, not enough going into the stools? I dont know, I > could just be brain boggling, but still wanted to ask? This question > is important to me, especially worrying about his kidneys, his last > follow up was good on the kidney's, but that was his last yearly > checkup! Jennie<><>

October 2, 2008

I honestly couldnt say if he would be holding(hard to tell with diapering), does seem though not as many frequent changes, but then the couple of huge/extreme soaks. Im kinda thinking Jeanie mentioning the full intestines of stool pushing on the bladder might be possible, especially when this seems to occur during backup. But yet in hoping that is it, I still kinda wonder with us that see this occuring during backup. If something is going on with the fluids not absorbing in the intestines/going thru to quick, then backup and lots of urine(becuase its going thru to fast/not absorbing). Boy im gonna pay closer attention to the urine from this point on to see if the excess urine is starting befor backup! Jennie<><

From: Jennie <mykidshisgift@ yahoo.com>Subject: Excess Urine??To: miralax@yahoogroups .comDate: Thursday, October 2, 2008, 9:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

not neccesarily, you could still be having urinary reflux...............one doesn't normally hold it in...unless there's a problem. Urinary reflux is when the urine goes back up into the ureter tubes leading to the kidney's and I've seen this a lot with Miralax children. The bladder could become overstretched by urinary reflux as well..............

What's really sad is all the tests they put these poor children through to find out and then all they do is give an antibiotic.....................see below.................

If your child has reflux, he will need to take a prophylactic antibiotic each day to prevent more urine infections (antibiotic prophylaxis).

http://www.keepkidshealthy.com/welcome/conditions/vesicoureteral_reflux.html

From: Jennie <mykidshisgift@ yahoo.com>Subject: Excess Urine??To: miralax@yahoogroups .comDate: Thursday, October 2, 2008, 9:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

It is sad, they do put them through the horrid tests and then as you said prescribed the antibiotics that is gonna backfire on the original issues anyways. Our son was on a daily antibiotic for about 2yrs and the surgery. I feel the antibiotics layed the ground work for all the yeast/bacteria/fungal/immune issues etc etc. breeding ground/cronic medical and even caused his severe reactions to vaccines(this broke the camels back for our son)! Jennie<><

From: Jennie <mykidshisgift@ yahoo.com>Subject: Excess Urine??To: miralax@yahoogroups .comDate: Thursday, October 2, 2008, 9:48 AM

OK, we all know that miralax can obviously cause this excess urine and now as I recently learned from Jeanie it can also cause the opposite(little urine), this was new to me about the little urine(my son always had the excess urine from miralax). But as good as my son has been doing, uuuugh, something is going on again, doing all the write/neccessary things etc, but the motility thing happening. We well be traveling to gastro for possible hospital stay in 2 weeks(I think I gotta get this done, so dont want to, my poor lil guy). Anyways, I have been noticing something, just not 100% on this and want to see if anyone else has seen this connection or am I reading into something to much? My son is backing up as of now, the thing I have noticed is lots and lots of excess urine during these times. NO, he is not on any form of miralax. This is just something Im am just kinda noticing the last couple of

back up times(cant remember befor, but im thinking this has been going on for a while). His fluid intake is norm(what gastro recommended/ he is hydrated), but am thinking to myself during these last couple of backups, "Why is there so much urine comming out of him/excess, but yet backing up?" Makes me think of when he was on miralax and the excessive urine!! At first I start to worry about his kidney's(had successful surgery years ago), still kinda wondering about that, but still am wondering has anyone noticed this extra urine release during backups? Im wondering if this is possibly influencing the backup, the urine is going through his systom to quick, not enough going into the stools? I dont know, I could just be brain boggling, but still wanted to ask? This question is important to me, especially worrying about his kidneys, his last follow up was good on the kidney's, but that was his last yearly

checkup! Jennie<><

October 2, 2008

Hi ! Thank you, I actually well request this, although not his

urologist where we are going, I bet they might be willing to do the

ultrasound! Thanks for the thought! He did have one a few months ago

and all was great! I just hate the test they put him through with the

catheters/strapping him down!!They assure me he most likely wouldnt

need this again unless issues arise, altrasound shows something,

urine infections ect. Im sure many here have had to go through that!

Our poor lil ones, especially when they are not able to communicate

and you just feel like they are wondering why we are allowing this

stuff to be done to them. I do feel better about this urine in excess

(since being explained to) and that most likely the backing up

causing this or certain foods/extra supplements possibly causing

extra urine. Im going to request the ultrasound during hospital stay

(if they keep him)!! If not, gonna have urologist followup!! Thank

you, Jennie<><

>

> From: Jennie <mykidshisgift@ yahoo.com>

> Subject: Excess Urine??

> To: miralax@yahoogroups .com

> Date: Thursday, October 2, 2008, 9:48 AM