Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Don't know if I'm posting my update in the right place but I'll give it a shot. My daughter had her full battery of tests and the diagnosis is that she is having recurring strep infections that are causing the EN outbreaks. Her DR. said that apparently the infection is being stored up in her tonsils but it manifests itself as EN. He said that unless she has 5 episodes within a year he doesn't recommend removing the tonsils and if he treated her with antibiotics she would eventually build up an immunity to them. He said for now hew will treat her with the lowest dosage of Prednisone possible when she has these eruptions. He said he has a similar patient that has been dealing with the same problem for 20 yrs. So all in all I guess we can consider this good news! Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Dear Dale, You posted the update perfectly. I added 's Case History to our Member Medical Files under " Dale's Daugher, " . Five episodes of EN a year sounds like a lot of flare-ups....when you consider how long it can take to resolve. I wonder why the doctor is so very cautious with the tonsil removal? I had mine removed as a child and never missed them--they were removed as my brother had tonsilitis and the doctor said he'd take mine out too even though I was fine--a " two for one deal " my mother couldn't pass up. I am glad the doctor has a plan and has experience with treating EN and is using the lowest dose of prednisone to control the EN, but I question if it is wise to prefer a drug treatment to a one time surgical treatment of tonsil removal. I can tell you that I hardly ever get sick with colds etc, so I don't miss having tonsils. Over the long term I don't know what effect even low dose prednisone will have. I know you are a concerned Dad, so I just want to give my thoughts on this. By the doctor finding the strep, you are a long way to getting the EN handled. Please keep us posted. If you get too many emails from the group, I can set your email preference to " special notices only " and you can still access the group as a member by going to: http://health.groups.yahoo.com/group/erythema_nodosum_Group and signing into Yahoo with your ID and password. Have a great day Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Dear , We have discussed " seasonal EN " and two members names specifically come to mind: Kim Jewett and Kay Luthin. I hope they see your post and reply, but if not, you can access their messages by entering in " seasonal EN " to our archives at the bottom of the Home page and keep clicking on " next " until the msg come up. I believe strep infection has been implicated in seasonal EN. Have you been tested for it with the ASO titer test? Love, Quote Link to comment Share on other sites More sharing options...
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