Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Thanks for the information and website. I will check it out. LOL...Count yourself as a very lucky lady if you've never had the wonderful thrill of the dreaded night sweats....They absolutely drive me nuts... I am so amazed that you have had EN for 36 years....! Until I got on this website, I thought my EN would get well and never come back. Does it always come back?? None of my doctors have told me this, and I find this so depressing.....Ugh....The thought of living with these lumps... 36 YEARS! I would have pulled my hair out by then! LOL! Thanks again for all of your great info, ... Jo Strecker wrote: Dear Jo,Here is a good link on EN. It doesn't specify night sweats as asymptom. I have never had sweats except the one time after my 18 daysof high fever (probably unrelated to EN) broke. I am nearly 57 andstill waiting for menopause. No night sweats yet or any symptoms tospeak of.http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Erythema_nodosum?openI just thought of this new theory, so I haven't spoken to my dr. aboutit yet. I haven't got a specialist for EN. I have had EN for 36 yearsand know how to treat myself since I do not need meds to go intoremission. I will indeed mention it to my ob/gyn when I next see him.He says he has learned more about EN from me than he ever knew ;-)Have a Good night, Everyone!Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Hi .... I must be one of those chronic cases that you are talking about. Best of luck to you in solving the puzzle. It is definitely a mess! Jo Strecker wrote: Dear Jo,Well I did have the 3 months of drenching night sweats when Irecovered from the 18 days of high fever, so I do know a bit of whatthat's like.That was 27 yars ago. I imagine once I hit menopause Iwill get the sweats again :-(I Have no idea if I ever will stop getting EN flare ups. I do go intoremissions, so it isn't like a steady diet of EN. Many people get onlyone bout of EN, but there are the chronic cases like us who go in andout of remission. I still have hopes of solving the EN puzzle in mylifetime. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Dear Joe & , I was doing good until I started taking Prednisone and Plaquinil and then the night sweats and hot flashes started coming often. I spoke to the doctor about this and she said it could be the medicine. Are you taking anything for your EN? I had already been through menapause and no hot flashes until the medicine. Jackie S. Re: Sweats and TB theory Dear Jo,Here is a good link on EN. It doesn't specify night sweats as asymptom. I have never had sweats except the one time after my 18 daysof high fever (probably unrelated to EN) broke. I am nearly 57 andstill waiting for menopause. No night sweats yet or any symptoms tospeak of.http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Erythema_nodosum?openI just thought of this new theory, so I haven't spoken to my dr. aboutit yet. I haven't got a specialist for EN. I have had EN for 36 yearsand know how to treat myself since I do not need meds to go intoremission. I will indeed mention it to my ob/gyn when I next see him.He says he has learned more about EN from me than he ever knew ;-)Have a Good night, Everyone!Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Dear Jackie... Thanks for the information! Yes, I am taking Prednisone, so maybe that is the culprit for the increased amount of night sweats. Hmmmmm....Most interesting! Thanks again for sharing that information, I will talk to my doctor next time I see him. JoJackie Siraco wrote: Dear Joe & , I was doing good until I started taking Prednisone and Plaquinil and then the night sweats and hot flashes started coming often. I spoke to the doctor about this and she said it could be the medicine. Are you taking anything for your EN? I had already been through menapause and no hot flashes until the medicine. Jackie S. Re: Sweats and TB theory Dear Jo,Here is a good link on EN. It doesn't specify night sweats as asymptom. I have never had sweats except the one time after my 18 daysof high fever (probably unrelated to EN) broke. I am nearly 57 andstill waiting for menopause. No night sweats yet or any symptoms tospeak of.http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Erythema_nodosum?openI just thought of this new theory, so I haven't spoken to my dr. aboutit yet. I haven't got a specialist for EN. I have had EN for 36 yearsand know how to treat myself since I do not need meds to go intoremission. I will indeed mention it to my ob/gyn when I next see him.He says he has learned more about EN from me than he ever knew ;-)Have a Good night, Everyone!Love, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.