Re: Reply to Deanna

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Okay Deanna, you are right that Miralax does not have a protein so they cannot have an allergic reactions so lets go a step further, if you had a reaction and it doesnt' have a protien what is that called? Toxic reaction or chemical reaction, or otherwise known as poisoning symptoms. According to all the people who submitted to the FDA, Hypersensitivity is one of the side affects commonly appearing, if you research any chemical exposure MSDS's you'll find hypersensitivity, this is caused from a result of chemical exposure. Your doc's need to admit that you cannot have an allergic reaction to something without a protein................so what do they call it? See what you can get them to tell you? I had a whole slew of doc's telling me that this didn't happen because it's not absorbed, while one of those doc's, took me in the hallway and under his breath said, "this is an osmotic agent and it could have soaked through the

somach wall and went to the brain" Take these with you.....................http://health.groups.yahoo.com/group/miralax/files/ Down load all the FDA reports, there are 3 of them...............one is titled noningred something? It's the real name, the second it 665 adverse reactions and the third is 869 adverse reactions, also bring the Material Safety Data Sheets they're all on there, I'd like to see what they have to say...................... This is my motto: If this DIDN'T happen....................then I wouldn't have been able to obtain even ONE person from the FDA. And if this didn't happen then I wouldn't have over 5000 posts on this board and over 650 members..................increasing daily for almost a decade! Jeanie deanna

gentry wrote: Yesterday was the appointment we have been waiting for, for 4 months. His docs are with the Cooks pediatric group (treatment center), Children's Medical Center of Dallas is part of the UNT Research Center, which is where Cody was referred to by 3 different docs. Anyway, he had an appt with the GI there yesterday. I had all his records, from January to present, sent

from Cook's to CMC. She went over them with me and told me something about the biopsy on his colon, that the GI at Cook's failed to mention. On January 3rd of this year, when he saw the GI doc for the first time, he put him on Miralax and exlax daily. I had only given him exlax, maybe 1 or 2 other times in his entire life, and it was under a doctor's instructions, I have always known the dangerous of laxatives and dependencies. Anyway, she told me the biopsy showed pigmentation in the colon, which has been associated with prolong use of a laxative. That biopsy was done 1 month after the doc prescribed him exlax and miralax daily. He got sick January 15th, he only took it for 2 weeks, he was already showing signs of overuse? OMG, the doc prescribed it to him to take for 1 full year! Thank God he only took it for 2 weeks. What I like about her is that she is not quick to prescribe meds, I have to monitor Cody's bm's for

2 weeks and grade them by the "bristol stool chart", then fax it 2 to her after 2 weeks. She said his colon is stretched out, which was based on the balloon test he took in January, she said he has to have soft stools for at least 1 year and maybe then it will possibly heal, it has lost its elasticity from constantly being backed up. She said after a child reaches a certain age (usually the teenage years), there is a much lesser chance of it going back to normal size. She thinks Cody's will possibly heal, if we keep the constipation under control, no hard stools for a year. We have pretty much gotten the hard stools under control, its the motility issues that are the problem, he goes about every 3rd day, she wants him going at least every other day. His other GI doc got mad at me for taking him off the meds, she said she feels as though a mother knows more than a doctor when it comes to her child. She

is going to rescope him in October, she wants to wait for him to have been off all meds for 5 months so that she can see his EE at its worst. I think I will keep him going to her vs the original gi doc. She asked a lot of questions about the Miralax, I tried not to overkill, the docs always shut down on me if I do. I told her that I know that Miralax does not have a protein so science shows you cannot be allergic to it, but I told her I think my son has a sensitivity to all medications and that one being the worst. She really did not respond. She just said if we can keep his constipation under control (soft stools) naturally, then there is no need for any meds. She said MOM is safe for him to take as needed, she has heard no complaints from anyone on that med. She did say a lot of parents do not like the Miralax. IMAGINE THAT! Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food

Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, GBS (Guillian Barre Syndrome), now EBV-Mono (Epstein Barr Viurs and Mono). Re: Probiotics We've tried numerous probiotics - the ones that I think are probablythe best are the ones with a variety of strains and at a highconcentration per dose, such as Kirkamn Super Pro Bio, Nature's WayPrimadophilus Optima, and Metagenics Ultra Bio (or something to thateffect - haven't used that one in a long time). Also, VSL#3, which wehave not tried, is one that lots of people with GI issues seem tobenefit greatly from.These are all also generally the most expensive probiotics.FWIW, I have begun dabbling in raw fermented vegetables. For about$5.00, one can buy a pretty large head of organic cabbage and can makeat least one quart of fresh, fermented sauerkraut that is teeming withLIVE, ACTIVE, all natural probiotic cultures *AND* a LOT of beneficialnutrient from the

cabbage itself. I'm not yet sure about getting DSto eat it as we're just starting our second batch (the first batch wastoo salty to eat!). But, even if I can get him to take cabbage juicetonic mixed with regular juice, I expect it to be a great improvement.(if I can get cabbage growing in my garden next year - I'll be makingthis stuff for the price of a little sea salt!)I have begun to believe that just supplementing with probioticcapsules/tablets will NEVER result in proper colonization of the GItract. I've read somewhere (don't have time to look up again rightnow, sorry!) that studies have shown that the stuff generally goesright through and doesn't stick around in the gut. I believe (butdon't quote me on this) that Owens at the Trying Low Oxalateslist has commented in the past about the growing evidence of probioticsupplements not actually colonizing as well.Anyway, if your child can tolerate dairy,

I'd highly recommendthinking about making raw milk yogurt at home. If dairy doesn't workout (it doesn't for us), I'd highly recommend thinking about fermentedveggies. One can also make dairy-free coconut milk yogurt at home -which will be my next endeavor.There's something to be said for taking in as much of these thingsnaturally as possible - in their proper, natural context (e.g., liveactive cultures in the presence of the nutrients of the fermentedcabbage) - rather than taking in a form that has been isolated out ofit's natural context and processed.Some HFS now sell fermented veggies (including fermented pickles,kimchi, saurkraut, etc.) but they must be truly RAW and never exposedto the canning process or other high heat and should not becooked/heated as this will kill the probiotics.hth, =)>> I was wondering if anyone would mind sharing what type of probiotics or > probiotic supplement they are using? My daughter has had bowel > troubles since birth, but mostly since 4 months old. Now she is 21 > months and seems to be holding it, even when it is nearly diarrhea! I > have been giving my daughter Culturelle for about 10 days now along > with Natural Calm and Benefiber. But I am wondering if I should try > another probiotic supplement that has a combo of probiotics in it > rather than just the Lacto GG? I have been looking into probiotics and > wow, its overwhelming how many different types there are! All I knew > about them before now was what I had seen in the Activa commercials > My daughter doesn't like yogurt so we have to do some type of >

supplement instead.> > Thanks for any help!> Sandy>