New Pyrroluria Yahoo List

[Guest guest]

I set up a Pyrroluria list this evening on Yahoo.

Hope you will join us in the discussion.

Here is the list description.

Please pass this on to any friends you think would be interested.

Thanks!!

Garnet

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Pyrroluria Yahoo List

http://health.groups.yahoo.com/group/Pyrroluria/

Subscribe: Pyrroluria-subscribe

The purpose of this list is to share information, experiences and

support each other in the exploration of a little documented condition

commonly called PYRROLURIA . Because heme synthesis is involved some

feel it should be included as a form of Acute Intermittent Porphyria.

This condition is associated with many degenerative conditions and

disorders: Autism, Multiple Chemical Sensitivity, Fibromyalgia, Mood

Disorders, Chronic Fatigue Syndrome, Cancer and Heart Disease to name a few.

Until there is a body of peer reviewed scientific literature to prove

beyond a doubt both the existence of the disease and efficacy of

proposed treatments, such conditions are relegated to the category of

psuedo-diseases and considered fringe by mainstream practitioners and

investigators. With this in mind it is not surprising that patients

resort to the exceptionally talented pool of holistic practitioners for

help with diagnosis and treatment. For their dedication and perseverance

we are eternally grateful.

Thought to result from elevated Kryptopyrrole

[2,4-dimethyl-3-ethylpyrrole] or Hemepyrrole

[3-ethyl-5-hydroxy-4,5-dimethyl-delta 3-pyrroline-2-one] poor tolerance

to physical and emotional stress are associated with the detection of

Kryptopyrrolactam and Hemopyrrolactam in the urine. The symptoms of

excess urinary kryptopyrrole first manifest themselves as behavioral

abnormalities.

Although children tend to be more easily diagnosed than adults symptoms

range from behavioral, drug and chemical sensitivity, mood swings,

depression, sensitivity to light, noise, tactile stimuli, chronic

schizophrenia, pain, seizures, adrenal tenderness on deep palpation,

physical debilitation, paranoia and even certain types of criminal behavior.

Malvaria,Pyroluria, Pyrroluria, Pyrolleuria, Pyrrole Disorder, Elevated

Kryptopyrrole, B6 & Zinc Deficiency are associated terms.

Urinary pyrroles have several names: mauve factor, kryptopyrrole,

hemopyrrole, indole, and hydroxyhemopyrrolenone.