PG - This is what worked for me - and what didn't

[Guest guest]

I have peristomal PG so topicals are not an option. I had limited

success with Remicade and Neoral cyclosporine. After a few years, I

developed a resistance to the Remicade and it stopped being

effective and the Neoral was causing problems for my kidneys. I used

Thalidomide for 9 months but it didn't work at all. For some people

it works wonders so it was worth a try. Worst side effect of

Thalidomide? I ate like an elephant and couldn't figure out why.

Latest therapy is Enbrel. I inject myself twice a week. Improvement

has been very encouraging. New healthy skin is forming and no smelly

pus. I'll keep you PG folks posted.

[Guest guest]

Dear Holly,

Thanks for the update. Glad you are improving! I am going to add this

info to our PG forum. I'll get it done tomorrow. Right now I need to

take a shower and finish watching a video. ;-)

Happy Weekend Everyone!

Love,

[Guest guest]

Yeah, the treatments really do vary. There are injections they can

put right into the pg too, but they didn't work for me. I hear more

and more about Embrel. It is used for quite a range of issues, even

Crohns. Your story is much like mine, trial and error with meds

until you find one that works with at least tolerable sx's. Sure

glad it is working for you!

jeff

> I have peristomal PG so topicals are not an option. I had limited

> success with Remicade and Neoral cyclosporine. After a few years,

I

> developed a resistance to the Remicade and it stopped being

> effective and the Neoral was causing problems for my kidneys. I

used

> Thalidomide for 9 months but it didn't work at all. For some people

> it works wonders so it was worth a try. Worst side effect of

> Thalidomide? I ate like an elephant and couldn't figure out why.

> Latest therapy is Enbrel. I inject myself twice a week. Improvement

> has been very encouraging. New healthy skin is forming and no

smelly

> pus. I'll keep you PG folks posted.