Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Madeline, I have heard of several people that do not see any clinical effects of Xolair for up to a year. I was on it for 6 months with no relief a couple of years ago. Recently a new pulmonologist started me back on it thinking I might be one of the people that takes longer. I have not been on less that 40 mg a day of prednisone in over 9 years so I am really hoping that this time the Xolair helps! I have been on it for 3 months so far this round. Subject: Re: introduction - HI - medsTo: asthma Date: Friday, October 10, 2008, 4:43 AM Kathleen/BarbMy IEg levels are in the 560 range. Way high. The prednisone hassuppressed them some. As of yesterday they were 270. Still way high(should be around 30). We tried the Xolair for 3 months with noclinical effect. It just did not work for me. Recent Activity 4 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Yahoo! Groups Special K ChallengeJoin others who are losing pounds. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 , We have started methotrexate in hopes of facilitating a stepdown on the prednisone. Did they ever try that with you? Madeline > > > Subject: Re: introduction - HI - meds > To: asthma > Date: Friday, October 10, 2008, 4:43 AM > > > > > > > Kathleen/Barb > My IEg levels are in the 560 range. Way high. The prednisone has > suppressed them some. As of yesterday they were 270. Still way high > (should be around 30). We tried the Xolair for 3 months with no > clinical effect. It just did not work for me. > > > > Recent Activity > > > 4 > New MembersVisit Your Group > > > Meditation and > Lovingkindness > A Yahoo! Group > to share and learn. > > Yahoo! Health > Asthma Triggers > How you can > identify them. > > Yahoo! Groups > Special K ChallengeJoin others who > are losing pounds. > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 I am seeing a pulmonologist on Monday with a view of getting on Xolair. My internist did bloodwork looking at my IgE and said that it was 'normal.' I now wonder if this will exclude me from Zolair. Mike Re: introduction - HI - medsTo: asthmayahoogroups (DOT) comDate: Friday, October 10, 2008, 4:43 AM Kathleen/BarbMy IEg levels are in the 560 range. Way high. The prednisone hassuppressed them some. As of yesterday they were 270. Still way high(should be around 30). We tried the Xolair for 3 months with noclinical effect. It just did not work for me. Recent Activity 4 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Asthma Triggers How you can identify them. Yahoo! Groups Special K ChallengeJoin others who are losing pounds. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 They tried it with dexamethasone and unfortunately it didn't make a difference. Subject: Re: Madeline XolairTo: asthma Date: Sunday, October 12, 2008, 8:30 PM ,We have started methotrexate in hopes of facilitating a stepdown onthe prednisone. Did they ever try that with you?Madeline> > From: Madeline <slim8972@.. .>> Subject: Re: introduction - HI - meds> To: asthmayahoogroups (DOT) com> Date: Friday, October 10, 2008, 4:43 AM> > > > > > > Kathleen/Barb> My IEg levels are in the 560 range. Way high. The prednisone has> suppressed them some. As of yesterday they were 270. Still way high> (should be around 30). We tried the Xolair for 3 months with no> clinical effect. It just did not work for me. > > > > Recent Activity> > > 4> New MembersVisit Your Group > > > Meditation and> Lovingkindness> A Yahoo! Group> to share and learn.> > Yahoo! Health> Asthma Triggers> How you can> identify them.> > Yahoo! Groups> Special K ChallengeJoin others who > are losing pounds.> ..> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 My IGE level was not incredibly high but my pulmonologist said that there was no way they could get an accurate reading with me having been on a fairly high dose of prednisone for so long. Subject: Re: Madeline XolairTo: asthma Date: Monday, October 13, 2008, 3:20 PM I am seeing a pulmonologist on Monday with a view of getting on Xolair. My internist did bloodwork looking at my IgE and said that it was 'normal.' I now wonder if this will exclude me from Zolair. Recent Activity 7 New MembersVisit Your Group Yahoo! Health Heartburn or Worse What symptoms are most serious? Meditation and Lovingkindness A Yahoo! Group to share and learn. Featured Y! Groups and category pages. There is something for everyone. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 He didn't tell you what the number was? They always tell me. Maybe because mine is so high. I know that my doc will try it on anyone above the 30 mark if other meds like Singulair or Zyflo don't bring it down. The big problem is getting it covered on your insurance, and since it was an internist and not a pulmonologist or asthma specialist, his view of " normal " may be different from the other docs. I have four docs now who will look at the same CT and tell me four different things. Go figure. Madeline > > From: Madeline <slim8972yahoo (DOT) com> > Subject: Re: introduction - HI - meds > To: asthmayahoogroups (DOT) com > Date: Friday, October 10, 2008, 4:43 AM > > > Kathleen/Barb > My IEg levels are in the 560 range. Way high. The prednisone has > suppressed them some. As of yesterday they were 270. Still way high > (should be around 30). We tried the Xolair for 3 months with no > clinical effect. It just did not work for me. > Recent Activity > * 4 > New MembersVisit Your Group > Meditation and > Lovingkindness > A Yahoo! Group > to share and learn.. > Yahoo! Health > Asthma Triggers > How you can > identify them. > Yahoo! Groups > Special K ChallengeJoin others who > are losing pounds. > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 I am unfamiliar with dexamethasone. Is it similar to methotrexate? Madeline > > > > From: Madeline <slim8972@ .> > > Subject: Re: introduction - HI - meds > > To: asthmayahoogroups (DOT) com > > Date: Friday, October 10, 2008, 4:43 AM > > > > > > > > > > > > > > Kathleen/Barb > > My IEg levels are in the 560 range. Way high. The prednisone has > > suppressed them some. As of yesterday they were 270. Still way high > > (should be around 30). We tried the Xolair for 3 months with no > > clinical effect. It just did not work for me. > > > > > > > > Recent Activity > > > > > > 4 > > New MembersVisit Your Group > > > > > > Meditation and > > Lovingkindness > > A Yahoo! Group > > to share and learn. > > > > Yahoo! Health > > Asthma Triggers > > How you can > > identify them. > > > > Yahoo! Groups > > Special K ChallengeJoin others who > > are losing pounds. > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Nope . . . no numbers. The nurse called my wife who called me. i am seeing a pulmonologist in Anchorage next week. We've had our first 3" of snow and I will have to drive through some nice mountain passes, so the trip may prove interesting. I'll let you know what I hear next week. Thanks for the info. Mike Re: Madeline Xolair He didn't tell you what the number was? They always tell me. Maybe because mine is so high. I know that my doc will try it on anyone above the 30 mark if other meds like Singulair or Zyflo don't bring it down. The big problem is getting it covered on your insurance, and since it was an internist and not a pulmonologist or asthma specialist, his view of "normal" may be different from the other docs. I have four docs now who will look at the same CT and tell me four different things. Go figure.Madeline Recent Activity 7 New MembersVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Memory Loss Are you at risk for Alzheimers? Real Food Group Share recipes and favorite meals w/ Real Food lovers. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I am on xolair. I have been on it for eight months and am just NOW starting to see improvement. I haven't been to the ER since July which is a record for me! I am a nonresponder to steroids so prednisone does nothing for me. Also, I have to change my steroid inhalers about every three to four months. I just started Alvesco which meant I had to go back on foradil because it doesn't have the combo effect like Advair and symbicort (both of which I have used to no avail) Right now I take xolair, alvesco, foradil, cromolyn, allegra D, zyflo, and lopressor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I am on xolair. I have been on it for eight months and am just NOW starting to see improvement. I haven't been to the ER since July which is a record for me! I am a nonresponder to steroids so prednisone does nothing for me. Also, I have to change my steroid inhalers about every three to four months. I just started Alvesco which meant I had to go back on foradil because it doesn't have the combo effect like Advair and symbicort (both of which I have used to no avail) Right now I take xolair, alvesco, foradil, cromolyn, allegra D, zyflo, and lopressor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I am on xolair. I have been on it for eight months and am just NOW starting to see improvement. I haven't been to the ER since July which is a record for me! I am a nonresponder to steroids so prednisone does nothing for me. Also, I have to change my steroid inhalers about every three to four months. I just started Alvesco which meant I had to go back on foradil because it doesn't have the combo effect like Advair and symbicort (both of which I have used to no avail) Right now I take xolair, alvesco, foradil, cromolyn, allegra D, zyflo, and lopressor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Please do Mike, and be careful on that drive. I grew up in Wyoming. So, I do have an inkling of what you are talking about! Madeline > > Nope . . . no numbers. The nurse called my wife who called me. i am seeing a pulmonologist in Anchorage next week. We've had our first 3 " of snow and I will have to drive through some nice mountain passes, so the trip may prove interesting. I'll let you know what I hear next week. Thanks for the info. > > Mike > > > > Re: Madeline Xolair > > > He didn't tell you what the number was? They always tell me. Maybe > because mine is so high. I know that my doc will try it on anyone > above the 30 mark if other meds like Singulair or Zyflo don't bring > it down. The big problem is getting it covered on your insurance, > and since it was an internist and not a pulmonologist or asthma > specialist, his view of " normal " may be different from the other > docs. I have four docs now who will look at the same CT and tell me > four different things. Go figure. > Madeline > > > Recent Activity > * 7 > New MembersVisit Your Group > Meditation and > Lovingkindness > A Yahoo! Group > to share and learn. > Yahoo! Health > Memory Loss > Are you at risk > for Alzheimers? > Real Food Group > Share recipes > and favorite meals > w/ Real Food lovers. > . > Quote Link to comment Share on other sites More sharing options...
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