Re: Swollen Ankles

[Guest guest]

Dear Tracey,

Is your Dad up and walking around with the EN or is he spending most

of his time in bed and on the couch? I find that until one is in a

full remission, the swelling can ebb and flow. For me wearing a

support stocking helps--and the best time to put it on is when the

swelling is at it's least usually in the morning after a long sleep.

It is a matter of defination, but many of us --myself included--like

to proclaim ourselves in remission when we are not quite there yet.

The lumps subside and are cool, but the swelling is not gone down to

zero yet. If I don't get the rest and use the stocking, I can start

the whole cycle over again. EN does take it's own sweet time for me,

and from what I've read, for many others.

Love,

[Guest guest]

This happens to me all the time when I have a real bad EN flare up.

In fact, I have my so called " special " socks I where to work then

since I'm required to where either hose (no way) or socks to work.

These ankle socks are so stretched out that they don't touch my

ankles. Not pretty, but I wear pants to work and no one sees the

socks. They work great for me and don't add the extra pain if I were

to wear something that was not stretched.

Zoo

PS...elevating the legs as much as possible will help bring the

swelling down. I've finally realized about 9 mths ago, you need to

have serious rest with EN flare ups and/or swelling. If not, it will

take forever for it to go away.

> My Dad had a really bad flare up of EN about two weeks ago. The

> bumps are going away and he doesn't have a fever, but his ankles

get

> really swollen and then go down a bit and then swollen again.

>

> Does anyone else experience this after a flare up?

>

> Thanks,

> Tracey

[Guest guest]

zoo:

when my pg leg tries to flare, i also get swelling in the lower leg.

doc put me on an RX called

Aldactazide/Hydrochlorot/Spironolacto....gosh, hate to have to type

that, it goes all the way across the label. this stuff is great for

reducing water retention in the lower extremities (and it is super

cheap for an RX). reduces swelling and also has some positive effects

in that is helps in reducing fibrosis on the heart. one of the very

few meds i take with no side effects or long term potential

problems. ask you doc about trying this.

jeff

> This happens to me all the time when I have a real bad EN flare

up.

> In fact, I have my so called " special " socks I where to work then

> since I'm required to where either hose (no way) or socks to work.

> These ankle socks are so stretched out that they don't touch my

> ankles. Not pretty, but I wear pants to work and no one sees the

> socks. They work great for me and don't add the extra pain if I

were

> to wear something that was not stretched.

>

> Zoo

>

> PS...elevating the legs as much as possible will help bring the

> swelling down. I've finally realized about 9 mths ago, you need to

> have serious rest with EN flare ups and/or swelling. If not, it

will

> take forever for it to go away.

>

[Guest guest]

Hi Tracey,

Just curious, " Internal " Disease Doc or did you mean " Infectious "

Disease Doc? Just wondered because I have never heard of an Internal

Disease Doc. I have heard of an Internal Medicine Doc, I have one as

a primary care doc. I had to ask, the difference is significant when

it comes to autoimmunity.

jeff

> Jeff,

> Thanks, I will pass this info on to my Dad. His right ankle is so

swollen he can hardly walk. We are still in the diagnosis stage of

why my Dad has EN. He went to the Internal Disease Doc this morning

for his diagnosis. I am anxiously waiting by the phone.

>

> Thanks again for your reply.

> Take Care,

> Tracey