Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Also, I missed seeing the URL for the actual site - can someone send it t I missed it too, a repeat PLEASE. Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 we narrow the field to a particular group with "Caregivers", and I believe we want this to be much broader and reach everyone we can reach with our information. Many people would assume that with "Caregivers" it would be an interchange for problems with caregiving only. Hmm, another good point. Thinking, thinking. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi folks I must have missed a step in the conversation at some point - what happened to the possibility of lbdalliance.org? I like the idea of an alliance (between LOs and caregivers and physicians). But lewybody.org would work too. Also, I missed seeing the URL for the actual site - can someone send it too me privately so the whole list will not have to suffer for my inattentiveness? Thanks, Christie ********************************************************************************** L. Brown Asst. Prof. of Marketing University of Michigan Business School 701 Tappan Street Ann Arbor, MI 48109-1234 Phone: Fax: E-mail: clbrownumich (DOT) edu ********************************************************************************** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 I vote for grabbing LewyBody.org Thank you again for doing all this! Mai-Liis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 I vote for grabbing LewyBody.org DITTO. Let's grab it while we can!! We can always cancel if we change our minds, can't we? Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 I think that is a good idea! Donna " Waking up in the morning would be a whole lot easier if it involved flopping into bed, burying my head in my pillow, and closing my eyes. " Jeffery D. Trock { From Ruminations at topfive.com} I vote for grabbing LewyBody.org DITTO. Let's grab it while we can!! We can always cancel if we change our minds, can't we? Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Christie wrote: " Also, I missed seeing the URL for the actual site -... " Hi! If you mean the temporary home of the site, it is http://www.geocities.com/caeburge/lbdpastel.html It is evolving and under-construction so please bear with me and the kind writers who are contributing the text for the site. -Cae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 WoW! I like the site and it even " goes somewhere. " Donna " Waking up in the morning would be a whole lot easier if it involved flopping into bed, burying my head into the pillow, and closing my eyes. " Jeffery D Trock {From Ruminations at topfive.com} Christie wrote: " Also, I missed seeing the URL for the actual site -... " Hi! If you mean the temporary home of the site, it is http://www.geocities.com/caeburge/lbdpastel.html It is evolving and under-construction so please bear with me and the kind writers who are contributing the text for the site. -Cae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Dear folks, Was off the Internet for a couple of weeks due to a broken computer, and I came back to find the most fantastic website. What a great job you've done! The names you've come up with are great; what happened to pop into my mind was something like: The Foundation for LBD....Dedicated to promote understanding of Lewy Body Disease. Or, Lewy Body Disease Foundation. Or. Foundation for Lewy Body Disease. So sorry for the heartaches and headaches that everyone has been going through. This has to be one of the most heartbreaking disease ever. And it's almost miraculous the way you all seem to keep your sense of humor. Cheryl, you asked about anesthesia meds. My mom had to have general anesthesia while she was in the moderate stage of the disease. We were sure it would be a disaster, but spoke with the anesthesiologist about the situation, and she woke up from the surgery pretty much the same as she had been before. I don't know the meds he gave her though, sorry. A side note to Christie Brown--Having graduated from the U of M School of Nursing back in...well, quite a few years ago...I was very glad to read that they were able to make a quick and accurate diagnosis for your dad! Best wishes to all, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Count me in for this one too. I agree with Ev. Carol > > > we should keep our site consistent with our web address and call ourselves > > LEWY BODY DISEASE ASSN > > I definitely agree....above says it all. > Ev Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.