Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Dear , I updated your " Medical History " File. Thanks for sending it. I went to college on Long Island--Stony Brook. I got my first bout of EN during Summer vacation....36 years ago this month. I sincerely hope you are wrong about the menopause making EN worse. I am going on 57 and have not reached menopause yet. If anything, I feel my EN is much milder now. I sure do remember crying because it hurt so bad I couldn't stand or walk to get to work...as though I was in any shape to do work if I did get there. I have not experienced pain like that in a very long time. Perhaps the bedrest is part of why you are feeling better? I preach bedrest all the time, but it is a sermon no one likes to hear.:-( For me it is worth a few days of bedrest to speed the remission process. I hope you continue to feel better! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Wow! 36 yrs ago - I thought 20 yrs was bad. Thanks for writing and welcoming me . I live right next to Stony Brook in Setauket. I know the college very well - love the area. Hormones affect everyone differently...mine just seem to be enhancing everything I have ever had in my life. The past year I have seen more doctors than I would like to count. Hopefully, your EN will not be affected by menopause. Thanks again for welcoming me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Gosh, ...I feel like a feather weight next to you. 36 years!!?!?! wow...=o( (u know I am T-Zing U) 36 minutes, days, seconds....monthes THEY HURT!!!! Someone mentioned recently about a sensation felt where an EN node is present. I get an odd sensation,too. I will feel a pin prick from the inside,then itching like crazy, shortly after it will feel like water is squirting from the site and leaking down my leg. Ahhhh, I'm just weird *lol* ~, I understood you to say " after " 24 monthes I will/can apply for Medicare? Just curious, (why?) what is the logic for that? More than likely I will have the medical asst's I had before till that time. Hmmmm...let's see, what else did I want to address??? ~Ahhhh...Yes, The Ole Mental Pause. Being it is " Stress " sounds logical when one is active w/EN or PG break-outs. It still and always will amaze me how " Stress " can create such a tramatic effect. ~ Welp, that's it for me...gotta go dance in the streets, click me heels and do some back flips, mmmmaybe. *LOL* Ya know, , I am still in shock. wow..................(* > Dear , > > I updated your " Medical History " File. Thanks for sending it. > I went to college on Long Island--Stony Brook. I got my first bout of > EN during Summer vacation....36 years ago this month. > > I sincerely hope you are wrong about the menopause making EN worse. I > am going on 57 and have not reached menopause yet. If anything, I feel > my EN is much milder now. I sure do remember crying because it hurt so > bad I couldn't stand or walk to get to work...as though I was in any > shape to do work if I did get there. I have not experienced pain like > that in a very long time. > > Perhaps the bedrest is part of why you are feeling better? I preach > bedrest all the time, but it is a sermon no one likes to hear.:-( For > me it is worth a few days of bedrest to speed the remission process. > > I hope you continue to feel better! > Love, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 --- np2442@... wrote: > Wow! 36 yrs ago - I thought 20 yrs was bad. > > Until I joined this group I thought I started the EN about 2 years ago, but now I think that I might have gotten it sometime in my childhood. I always had red, painful bumps that my mother called spider bites. It never made sense to me how I could sleep in the same bed as someone and I was the only one *bit*! If this is true than I have been suffering for over 30 years and could explain my constant strep throat (all my life). I still have very high strep levels to this day. Welcome ! Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Thank you for the welcome Terri! Funny how almost everyone at first thought EN was "something" else. Is your's (or anyone else in the group) seasonal? I find that I get them more often in January and late spring (in the Northeast U.S.). Quote Link to comment Share on other sites More sharing options...
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