Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi , I'm and I'm mostly a lurker. I just had to respond to you , as our cases are very similar. I developed Alopecia universalis at age 20, still have it but cope very well. Three years ago at age 48, I was diagnosed with hashis.At this point I could barely stand and it took 3 visits for the gp to make the diagnosis. The weight gain, is probably the worst part of all this. Although I think I may have developed sleep apnoea, Snoring and waking up through the night. I know that I have autoimune problems which are genetic. I have 3 aunties 2 cousins and an uncle, all with thyroid, Alopecia and other problems. I would just like to say, you can feel better, although thyroxine was not for me. I decided on the natural route and now take Armour thyroid which is 100% better for me, Sorry to be long winded, Kind Regards, Sandy(UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi , So glad to hear from you. I, too, have Hashimoto's and was diagnosed in October after being admitted to the hospital with an abnormal EKG, heart rate of 44 and an almost non-existent blood pressure. Take 88mch of Levoxyl and still have not been feeling any better. Called the endo the other day to tell her of my vision being blurred and tired eyes. I went for blood work and do not have the results as of yet. I was so happy to hear that someone else has blurred vision. I thought I was having a stroke !! I also take an anti depressant...Prozac 60 mg every day. Endo does not seem to think that is affecting medication. Don't know about Zoloft though. Sometimes I think I am going crazy. My husband is not supportive at all. " you take a pill, you should feel better " mentality. That causes me more stress and I already feel lousy. Thanks for sharing your story with us. We all need to support each other through this chronic disease. Amazing how Hashi affects everyone just a little differently. Rita G --- moniquetreschic wrote: > Hello, my name is . > > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new > journey > successful. > > I offer a succinct history of my medical journey, > because to go into > details would be condusive to sleep (for you and > me). > > - Age ten developed Alopecia Universalis (have had > it ever since). > I've coped well,thank you. Married twice to two > lovely men and very > confident in my lifework and interaction with the > world. I wear > beautiful wigs and I don't have to shave my legs. Ha > ha. > > - Age 45 developed breast cancer. Had masectomy > (left side) and > quickly had a clean bill of health. (3 years and > counting!) No chemo > and no radiation treatment. (Side note: my second > husband had > prostate cancer same time I had breast cancer - > needless to say, > that was not the sunfilled rosy chapter of life so > far). All is > better now. > > - Age 48 had HUGE fibroid tumors in uterus and had > uterus removed > due to one fibroid pushing into stomach wall and > causing lots of > strange dining experiences. > > - Age 49 (tada! well 49 in a few weeks) I have been > on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH > originally 7.5 and > GP questioned if I should be treated! I said > ABSOLUTELY. WHY? > > 1. I have gained 50 lbs in 5 years...though husband > and I became > vegans 3 years ago!!! Doctor's always questioning > my diet????? > Hello! What else could I remove from said diet?? I > live near > fishing village on east coast of Massachusetts and > do eat fresh fish > (OK, pesco vegan wino). > > 2. Became so excessively tired that my husband > sometimes drove me > home from work as I lay in the backseat of the car. > > 3. Eye's water constantly as though I am crying > excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision > has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft - > now I'm reading > that this may combat effectiveness of levothyroxine > - yes????) > > 5. Developed sleep apnea, diagnosed in sleep clinic > and I'm > receiving breathing mask tomorrow. > > 6. Never had children because of " supposed " > infertility issue. Moot > point now. > > Diagnosed with Hashi's by pure chance, pre-breast > reconstructions > surgeon did pre-op immunity diagnosis. I cancelled > reconstruction > to deal with Hashi's. > > Does anyone see a pattern here??? Could I have been > a carrier of a > more subtle form of Hashimoto since childhood? Has > everything I've > experienced been a product of this??? > > Seeing endo (after requesting referral from GP and > receiving > approval) in 3 weeks. Excited of new journey > because I want to lose > weight, get of antidepressants and klonopin I take > for sleep apnea. > > What should I ask my endo? What key questions must > I bring to my > first meeting so that I can beat this??? That do > you think of > levothyroxine? > > Other bit of info, in case you can tell me why this > is, after taking > 25mg of levothyroxine for six weeks TSH dropped to > only 6.75. > Doctor disappointed. Is this indicative of Zoloft > effect? > > Would love to hear about your successes, struggles > and incredible > breakthroughs. > > My heart goes out to all of you because I still have > one, > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Rita: I read back through your messages--you seem to have a variety of problems: night sweats, SVT, low blood sugar, as well as Hashimoto's. And you weren't absorbing the Synthroid so your doctor gave you Levoxyl but you don't feel any better on that, either. My advice: there seem to be a certain percentage of people who don't do well on synthetics. I'm like that--Synthroid, Levoxyl, Levothroid... all make me sick. On "NaturalThyroidHormones" or the "Thyroid" lists on Yahoo, there are a lot of energetic defenders of Armour Thyroid. The reason they're like that is that the difference in our bodies between the synthetics and Armour is like night and day, even though many others do quite well on Synthroid, etc. If the Levoxyl continues to have little effect, I suggest you try Armour. At the very least, try a combo of Levoxyl and Cytomel (a T3 medicine). As for the night sweats: I don't know if they're thyroid related or not. You do not mention your age. They could be a perimenopausal symptom--in all women, estrogen is lower at night than during the day, which is why night sweats can occur years before daytime hot flashes. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thanks for writing. Yes, amazing similarity in our stories. So are you saying that despite taking the thyroid, weight remains an issue for us lucky folks? sandy wrote: Hi ,I'm and I'm mostly a lurker.I just had to respond to you , as our cases are very similar.I developed Alopecia universalis at age 20, still have it but cope very well.Three years ago at age 48, I was diagnosed with hashis.At this point I could barely stand and it took 3 visits for the gp to make the diagnosis. The weight gain, is probably the worst part of all this. Although I think I may have developed sleep apnoea, Snoring andwaking up through the night. I know that I have autoimune problems which are genetic. I have 3 aunties 2 cousins and an uncle, all with thyroid, Alopecia and other problems.I would just like to say, you can feel better, although thyroxine was not for me. I decided on the natural route and now take Armour thyroid which is 100% better for me,Sorry to be long winded,Kind Regards,Sandy(UK) Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Had same reaction from my husband in the past year. He's starting to think I'm a hypochondriac! Now I pass on literature to him to read - even a book. If he doesn't read it, I read it out loud to him. Men have no patience for things that take time to change. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Had same reaction from my husband in the past year. He's starting to think I'm a hypochondriac! Now I pass on literature to him to read - even a book. If he doesn't read it, I read it out loud to him. Men have no patience for things that take time to change. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Welcome, ! I think you are right in many of your assumptions. It's common for Hashi's to " lurk " for a while before it's finally diagnosed, so you may have had it a long while. I wouldn't say everything you've experienced (especially the cancer) has been a by-product of it, but certainly the depression might. I tried to find some info. on the interference of depression meds with thyroid absorption and on brief look, found nothing. I'd guess that the 25 mcg dose is too teeny (that's a really small dose) and you're needing much more to get any effect (it's always a good idea to start low and build up though). Also, there is research indicating that adding T3 (in the form of Cytomel or Armour) is more effective in combating depression than taking Levothyroxine (T4) alone. So you may want to ask about that if you don't feel much relief from raising your T4 alone. Here are some interesting links... I love the last one, gang, where the docs are chit-chatting and make it obvious that more thyroid research is needed! However, a few of them actually sound like good docs... we should hunt them down, ha ha! http://holisticonline.com/Remedies/Depression/dep_drug-therapy.htm http://www.docguide.com/news/content.nsf/news/ 8525697700573E1885256AF0006AD870 http://www.dr-bob.org/tips/split/Thyroid-replacement.html > 4. On antidepressants for several years (Zoloft - now I'm reading > that this may combat effectiveness of levothyroxine - yes????) > > Does anyone see a pattern here??? Could I have been a carrier of a > more subtle form of Hashimoto since childhood? Has everything I've > experienced been a product of this??? > > What should I ask my endo? What key questions must I bring to my > first meeting so that I can beat this??? That do you think of > levothyroxine? > > Other bit of info, in case you can tell me why this is, after taking > 25mg of levothyroxine for six weeks TSH dropped to only 6.75. > Doctor disappointed. Is this indicative of Zoloft effect? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 - 25 mcg is a very small dosage and should only be a starting point. Also, consider Armour as it has both T4 and T3 as well as other thryoid hormones - all needed by our bodies. ~Anita wrote: Thanks for writing. Yes, amazing similarity in our stories. So are you saying that despite taking the thyroid, weight remains an issue for us lucky folks? Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 There are a number of studies that show that Hashimoto's causes depression. That's above and beyond any depression hypothyroidism can cause. That is, in studies comparing euthyroid people with Hashimoto's with people with goiters but no Hashimoto's, the Hashimoto's people scored worse on depression scores. So hopefully, when your Hashimoto's is treated, your depression will go away. I don't have these references right now, though. Your dose of 25mcg is really really low, so it's no surpise it didn't do much.suuzin wrote: Welcome, !I think you are right in many of your assumptions. It'scommon for Hashi's to "lurk" for a while before it'sfinally diagnosed, so you may have had it a long while. I wouldn't say everything you've experienced (especiallythe cancer) has been a by-product of it, but certainly the depression might. I tried to find some info. on theinterference of depression meds with thyroid absorptionand on brief look, found nothing. I'd guess that the 25 mcg dose is too teeny (that's a really small dose)and you're needing much more to get any effect (it'salways a good idea to start low and build up though).Also, there is research indicating that adding T3 (in theform of Cytomel or Armour) is more effective in combatingdepression than taking Levothyroxine (T4) alone. So youmay want to ask about that if you don't feel much relief from raising your T4 alone. Here are some interesting links... I love the last one, gang, where the docs are chit-chatting and make it obvious that more thyroid research is needed! However, a few of them actually sound like good docs... we should hunt them down, ha ha!http://holisticonline.com/Remedies/Depression/dep_drug-therapy.htmhttp://www.docguide.com/news/content.nsf/news/8525697700573E1885256AF0006AD870http://www.dr-bob.org/tips/split/Thyroid-replacement.html> 4. On antidepressants for several years (Zoloft - now I'm reading > that this may combat effectiveness of levothyroxine - yes????)> > Does anyone see a pattern here??? Could I have been a carrier of a > more subtle form of Hashimoto since childhood? Has everything I've > experienced been a product of this???> > What should I ask my endo? What key questions must I bring to my > first meeting so that I can beat this??? That do you think of > levothyroxine?> > Other bit of info, in case you can tell me why this is, after taking > 25mg of levothyroxine for six weeks TSH dropped to only 6.75. > Doctor disappointed. Is this indicative of Zoloft effect?> Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Hi, night sweats are thyroid related. Joanp.s. I am on armour and feel human again. I am one of those that didn't do good on synthroid.sincerely,Joan Bennet wrote: Rita: I read back through your messages--you seem to have a variety of problems: night sweats, SVT, low blood sugar, as well as Hashimoto's. And you weren't absorbing the Synthroid so your doctor gave you Levoxyl but you don't feel any better on that, either. My advice: there seem to be a certain percentage of people who don't do well on synthetics. I'm like that--Synthroid, Levoxyl, Levothroid... all make me sick. On "NaturalThyroidHormones" or the "Thyroid" lists on Yahoo, there are a lot of energetic defenders of Armour Thyroid. The reason they're like that is that the difference in our bodies between the synthetics and Armour is like night and day, even though many others do quite well on Synthroid, etc. If the Levoxyl continues to have little effect, I suggest you try Armour. At the very least, try a combo of Levoxyl and Cytomel (a T3 medicine). As for the night sweats: I don't know if they're thyroid related or not. You do not mention your age. They could be a perimenopausal symptom--in all women, estrogen is lower at night than during the day, which is why night sweats can occur years before daytime hot flashes. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I just turned 58 on Jn 20th. Have been post-menopausal for 4 yrs now. Hate this feeling of not being in control of my mind and body. Still feel so " foggy " at times. Thanks for listening. Rita G --- Bennet wrote: > Rita: I read back through your messages--you seem to > have a variety of problems: night sweats, SVT, low > blood sugar, as well as Hashimoto's. And you weren't > absorbing the Synthroid so your doctor gave you > Levoxyl but you don't feel any better on that, > either. > > My advice: there seem to be a certain percentage > of people who don't do well on synthetics. I'm like > that--Synthroid, Levoxyl, Levothroid... all make me > sick. On " NaturalThyroidHormones " or the " Thyroid " > lists on Yahoo, there are a lot of energetic > defenders of Armour Thyroid. The reason they're like > that is that the difference in our bodies between > the synthetics and Armour is like night and day, > even though many others do quite well on Synthroid, > etc. If the Levoxyl continues to have little effect, > I suggest you try Armour. At the very least, try a > combo of Levoxyl and Cytomel (a T3 medicine). > > As for the night sweats: I don't know if they're > thyroid related or not. You do not mention your age. > They could be a perimenopausal symptom--in all > women, estrogen is lower at night than during the > day, which is why night sweats can occur years > before daytime hot flashes. > > Rita Garvey wrote: > Hi , > So glad to hear from you. I, too, have Hashimoto's > and was diagnosed in October after being admitted to > the hospital with an abnormal EKG, heart rate of 44 > and an almost non-existent blood pressure. > Take 88mch of Levoxyl and still have not been > feeling > any better. Called the endo the other day to tell > her > of my vision being blurred and tired eyes. I went > for > blood work and do not have the results as of yet. > I was so happy to hear that someone else has blurred > vision. I thought I was having a stroke !! > I also take an anti depressant...Prozac 60 mg every > day. Endo does not seem to think that is affecting > medication. Don't know about Zoloft though. > > Sometimes I think I am going crazy. My husband is > not > supportive at all. " you take a pill, you should > feel > better " mentality. > That causes me more stress and I already feel lousy. > > Thanks for sharing your story with us. We all need > to > support each other through this chronic disease. > Amazing how Hashi affects everyone just a little > differently. > > Rita G > > > > > --- moniquetreschic > wrote: > > > Hello, my name is . > > > > I was recently diagnosed with Hashi's (8 weeks). > > Hoping to connect > > with you and gather information on making this new > > journey > > successful. > > > > I offer a succinct history of my medical journey, > > because to go into > > details would be condusive to sleep (for you and > > me). > > > > - Age ten developed Alopecia Universalis (have had > > it ever since). > > I've coped well,thank you. Married twice to two > > lovely men and very > > confident in my lifework and interaction with the > > world. I wear > > beautiful wigs and I don't have to shave my legs. > Ha > > ha. > > > > - Age 45 developed breast cancer. Had masectomy > > (left side) and > > quickly had a clean bill of health. (3 years and > > counting!) No chemo > > and no radiation treatment. (Side note: my second > > husband had > > prostate cancer same time I had breast cancer - > > needless to say, > > that was not the sunfilled rosy chapter of life so > > far). All is > > better now. > > > > - Age 48 had HUGE fibroid tumors in uterus and had > > uterus removed > > due to one fibroid pushing into stomach wall and > > causing lots of > > strange dining experiences. > > > > - Age 49 (tada! well 49 in a few weeks) I have > been > > on slow uptake > > of levothyroxine for 8 weeks. 25mg start. TSH > > originally 7.5 and > > GP questioned if I should be treated! I said > > ABSOLUTELY. WHY? > > > > 1. I have gained 50 lbs in 5 years...though > husband > > and I became > > vegans 3 years ago!!! Doctor's always questioning > > my diet????? > > Hello! What else could I remove from said diet?? > I > > live near > > fishing village on east coast of Massachusetts and > > do eat fresh fish > > (OK, pesco vegan wino). > > > > 2. Became so excessively tired that my husband > > sometimes drove me > > home from work as I lay in the backseat of the > car. > > > > 3. Eye's water constantly as though I am crying > > excessivly. > > > > 3a. Vision blurred. Eyes constantly tired. > Vision > > has been > > improving dramatically since taking levothyroxine. > > > > > 4. On antidepressants for several years (Zoloft - > > now I'm reading > > that this may combat effectiveness of > levothyroxine > > - yes????) > > > > 5. Developed sleep apnea, diagnosed in sleep > clinic > > and I'm > > receiving breathing mask tomorrow. > > > > 6. Never had children because of " supposed " > > infertility issue. Moot > > point now. > > > > Diagnosed with Hashi's by pure chance, pre-breast > > reconstructions > > surgeon did pre-op immunity diagnosis. I > cancelled > > reconstruction > > to deal with Hashi's. > > > > Does anyone see a pattern here??? Could I have > been > > a carrier of a > > more subtle form of Hashimoto since childhood? > Has > > everything I've > > experienced been a product of this??? > > > > Seeing endo (after requesting referral from GP and > > receiving > > approval) in 3 weeks. Excited of new journey > > because I want to lose > > weight, get of antidepressants and klonopin I take > > for sleep apnea. > > > > What should I ask my endo? What key questions > must > > I bring to my > > first meeting so that I can beat this??? That do > > you think of > > levothyroxine? > > > > Other bit of info, in case you can tell me why > this > > is, after taking > > 25mg of levothyroxine for six weeks TSH dropped to > > only 6.75. > > Doctor disappointed. Is this indicative of Zoloft > > effect? > > > > Would love to hear about your successes, struggles > > and incredible > > breakthroughs. > > > > My heart goes out to all of you because I still > have > > one, > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Well, then I may have developed this starting 14 years ago, when I was 35. I began to have night sweats several nights a week and no one, absolutely no one could tell me why or believed me because I was too young. It took 5 years to find a doctor who put me on klonopin to sleep at night and that seem to help. I just learned through a sleep clinic that all klonopin does is let me sleep so i'm oblivious to the fact that i'm having trouble breathing through my 95% obstructed throat - i can't wait to see the endo in two weeks and go through this whole history. It's sounding like Armour may be a better solution for me since I am now breaking out in hives. My dosage was increased to 50mg/day. Sorry to go on and on...but I'm guess I"m in the anger phase.........:)"joan n.y.c./phx.az." wrote: Hi, night sweats are thyroid related. Joanp.s. I am on armour and feel human again. I am one of those that didn't do good on synthroid.sincerely,Joan Bennet wrote: Rita: I read back through your messages--you seem to have a variety of problems: night sweats, SVT, low blood sugar, as well as Hashimoto's. And you weren't absorbing the Synthroid so your doctor gave you Levoxyl but you don't feel any better on that, either. My advice: there seem to be a certain percentage of people who don't do well on synthetics. I'm like that--Synthroid, Levoxyl, Levothroid... all make me sick. On "NaturalThyroidHormones" or the "Thyroid" lists on Yahoo, there are a lot of energetic defenders of Armour Thyroid. The reason they're like that is that the difference in our bodies between the synthetics and Armour is like night and day, even though many others do quite well on Synthroid, etc. If the Levoxyl continues to have little effect, I suggest you try Armour. At the very least, try a combo of Levoxyl and Cytomel (a T3 medicine). As for the night sweats: I don't know if they're thyroid related or not. You do not mention your age. They could be a perimenopausal symptom--in all women, estrogen is lower at night than during the day, which is why night sweats can occur years before daytime hot flashes. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I don't blame you for being angry! It's certainly frustrating. Join those two groups I suggested, NaturalThyroidHormones and Thyroid, and I think you'll learn a bit. wrote: Well, then I may have developed this starting 14 years ago, when I was 35. I began to have night sweats several nights a week and no one, absolutely no one could tell me why or believed me because I was too young. It took 5 years to find a doctor who put me on klonopin to sleep at night and that seem to help. I just learned through a sleep clinic that all klonopin does is let me sleep so i'm oblivious to the fact that i'm having trouble breathing through my 95% obstructed throat - i can't wait to see the endo in two weeks and go through this whole history. It's sounding like Armour may be a better solution for me since I am now breaking out in hives. My dosage was increased to 50mg/day. Sorry to go on and on...but I'm guess I"m in the anger phase.........:)"joan n.y.c./phx.az." wrote: Hi, night sweats are thyroid related. Joanp.s. I am on armour and feel human again. I am one of those that didn't do good on synthroid.sincerely,Joan Bennet wrote: Rita: I read back through your messages--you seem to have a variety of problems: night sweats, SVT, low blood sugar, as well as Hashimoto's. And you weren't absorbing the Synthroid so your doctor gave you Levoxyl but you don't feel any better on that, either. My advice: there seem to be a certain percentage of people who don't do well on synthetics. I'm like that--Synthroid, Levoxyl, Levothroid... all make me sick. On "NaturalThyroidHormones" or the "Thyroid" lists on Yahoo, there are a lot of energetic defenders of Armour Thyroid. The reason they're like that is that the difference in our bodies between the synthetics and Armour is like night and day, even though many others do quite well on Synthroid, etc. If the Levoxyl continues to have little effect, I suggest you try Armour. At the very least, try a combo of Levoxyl and Cytomel (a T3 medicine). As for the night sweats: I don't know if they're thyroid related or not. You do not mention your age. They could be a perimenopausal symptom--in all women, estrogen is lower at night than during the day, which is why night sweats can occur years before daytime hot flashes. Rita Garvey wrote: Hi ,So glad to hear from you. I, too, have Hashimoto'sand was diagnosed in October after being admitted tothe hospital with an abnormal EKG, heart rate of 44and an almost non-existent blood pressure.Take 88mch of Levoxyl and still have not been feelingany better. Called the endo the other day to tell herof my vision being blurred and tired eyes. I went forblood work and do not have the results as of yet. I was so happy to hear that someone else has blurredvision. I thought I was having a stroke !!I also take an anti depressant...Prozac 60 mg everyday. Endo does not seem to think that is affectingmedication. Don't know about Zoloft though.Sometimes I think I am going crazy. My husband is notsupportive at all. "you take a pill, you should feelbetter" mentality.That causes me more stress and I already feel lousy.Thanks for sharing your story with us. We all need tosupport each other through this chronic disease. Amazing how Hashi affects everyone just a littledifferently.Rita G--- moniquetreschic wrote:> Hello, my name is .> > I was recently diagnosed with Hashi's (8 weeks). > Hoping to connect > with you and gather information on making this new> journey > successful.> > I offer a succinct history of my medical journey,> because to go into > details would be condusive to sleep (for you and> me).> > - Age ten developed Alopecia Universalis (have had> it ever since). > I've coped well,thank you. Married twice to two> lovely men and very > confident in my lifework and interaction with the> world. I wear > beautiful wigs and I don't have to shave my legs. Ha> ha.> > - Age 45 developed breast cancer. Had masectomy> (left side) and > quickly had a clean bill of health. (3 years and> counting!) No chemo > and no radiation treatment. (Side note: my second> husband had > prostate cancer same time I had breast cancer -> needless to say, > that was not the sunfilled rosy chapter of life so> far). All is > better now.> > - Age 48 had HUGE fibroid tumors in uterus and had> uterus removed > due to one fibroid pushing into stomach wall and> causing lots of > strange dining experiences.> > - Age 49 (tada! well 49 in a few weeks) I have been> on slow uptake > of levothyroxine for 8 weeks. 25mg start. TSH> originally 7.5 and > GP questioned if I should be treated! I said> ABSOLUTELY. WHY?> > 1. I have gained 50 lbs in 5 years...though husband> and I became > vegans 3 years ago!!! Doctor's always questioning> my diet????? > Hello! What else could I remove from said diet?? I> live near > fishing village on east coast of Massachusetts and> do eat fresh fish > (OK, pesco vegan wino).> > 2. Became so excessively tired that my husband> sometimes drove me > home from work as I lay in the backseat of the car.> > 3. Eye's water constantly as though I am crying> excessivly. > > 3a. Vision blurred. Eyes constantly tired. Vision> has been > improving dramatically since taking levothyroxine. > > 4. On antidepressants for several years (Zoloft -> now I'm reading > that this may combat effectiveness of levothyroxine> - yes????)> > 5. Developed sleep apnea, diagnosed in sleep clinic> and I'm > receiving breathing mask tomorrow.> > 6. Never had children because of "supposed"> infertility issue. Moot > point now.> > Diagnosed with Hashi's by pure chance, pre-breast> reconstructions > surgeon did pre-op immunity diagnosis. I cancelled> reconstruction > to deal with Hashi's.> > Does anyone see a pattern here??? Could I have been> a carrier of a > more subtle form of Hashimoto since childhood? Has> everything I've > experienced been a product of this???> > Seeing endo (after requesting referral from GP and> receiving > approval) in 3 weeks. Excited of new journey> because I want to lose > weight, get of antidepressants and klonopin I take> for sleep apnea.> > What should I ask my endo? What key questions must> I bring to my > first meeting so that I can beat this??? That do> you think of > levothyroxine?> > Other bit of info, in case you can tell me why this> is, after taking > 25mg of levothyroxine for six weeks TSH dropped to> only 6.75. > Doctor disappointed. Is this indicative of Zoloft> effect?> > Would love to hear about your successes, struggles> and incredible > breakthroughs.> > My heart goes out to all of you because I still have> one,> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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