Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 > Hi! I've never joined a group over the internet, and I'm also a " computer illiterate! " so please bear with me! My name is Norma, and I have had spinal problems since I was sixteen. << Hello Norma, I just joined myself around 2 weeks ago - my first on-line group ever (and yes I am also " computer illiterate " !). I too am stuck with a bad back. My particular problem is a joint that has degenerated in my lumbar spine. I have on-going pain and am very limited by it because I can't walk far or fast, or sit up for any length of time. I think we have both been very lucky to find this group, as they are a super nice and supportive bunch of people. I have only been a member for 2 weeks and I have gotten an unbelievable amount of sympathy, advice and information here. Would love to talk about backs - yours, mine, backs in general - anytime! Diane (Vancouver, B.C.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 { Extraneous text deleted by Moderator } Hi to Norma and Diane: Welcome to the group! You will find lots of support here from people who have pain resulting from all sorts of health problems. Already you have met each other and have a mutual concern...backs! I don't have a back problem but rather a whole-body problem stemming from failure of the pituitary gland (called panhypopituitarism). I also have fibromyalgia, osteoporosis, GERD, and heart valve disease. My pain comes, I believe, mostly from the fibromyalgia which gives me very, very painful muscles. Sometimes, I just have to remain in a reclining position because my muscles don't want to be cooperative. I'm so glad to know both of you. Take care! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hello Chantel, I read your post and it really touched me. It sounded a lot like me. I've been down the same road. There are reasons for being Hyper- sensitive to pain. After sufering with chronic pain for some time the body becomes hyper-sensitive. The brain is on overdrive in the pain department. When I was diagnosed with Myofascial Pain Syndrome they explained it to me that way. Every touch is magnified into pain by the brain. There is help! It sounds like your doctor is un-informed. I'm not a doctor so I can't diagnose you, but it sounds all to familiar. There are lots of web sites for this. Try checking one out and see if it sounds like what your experiencing. I look forward to getting to know you. This group is wonderful. Lots of careing and compassionate people who are full of information and support. I've been a member for many years now and I don't know what I'd do without the people here. Kathleen in Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Hi : Panhypopituitarism means that the entire pituitary is either missing (due to tumor, head trauma, etc.) or has failed completely. When the pituitary can't function, all the endocrine glands can't function either. It is considered a rather rare disease which makes it difficult to find pituitary specialists. My pituitary disease came from a rupture of the sella turcica, the bony area that surrounds the pituitary, and that allowed spinal fluid to enter the space and erode the gland tissue. All this happened over a long period of time during which I kept trying to find a doctor to diagnose my problem instead of giving me another anti-depressant. I'm really glad the group is helping you. I don't know what I would do if I didn't have a group to discuss things with. None of my friends are the least bit interested in discussing anything regarding sickness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2005 Report Share Posted January 16, 2005 Hi, I don't think this is hashimoto's. You might check for other things. Too much meds? or Bells palsy. Panic attacks, yes, can be hashi. But I only experienced them after being medicated. Then when I got the meds right,(or feel right) the attacks went away. joanBecky wrote: > I also had palpitations, tingling at one side of my head and> difficulty in breathing and started having panic attacks. I have also had those, and they were so bad that my blood pressurewent UP - 172/112. My ACE inhibitor was doubled, and then addedcalcium channel blocker, which was tweaked up as well. This was inlate Nov, early Dec, before I was diagnosed so I had no Idea what washappening. I ended up quitting my job because the anxiety was so bad.I am mostly over the panic attacks, thank goodness, but not workingmakes things lean around here financially. I hope you get someanswers for yours, Yonca. (((HUG)))Right now I don't know if the tingling was from hashi's or due to therotator cuff, as my tinglng went up my left side of my face, all theway down into my left hand and fingers. I'd had EEG's last yearsaying that I had no impingement, so there's a good chance this may bedue to hashi's, but I'm only guessing. Hope you feel better soon!Becky *Note: Information is freely exchanged on this board based on patient experiences, and should not be considered a medical recommendation. sincerely, Joan nyc/phx.az. Please go to the following websites: http://www.regday.org Arizona searchers Http://groups.yahoo.com/group/arizonasearch_support __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Hi Robin, Sounds like you are on top of things. I believe $ynthroid to be an inferior med because of the binders, fillers and dyes added to it. Look at the listed side effects. Unthroid has never had potency problems or even one recall. I had several reactions to both $ynthroid and Levoxyl. Both these meds can cause of hair loss. High FT3 can cause fatigue also. I'm living proof -it left me feeling like I just needed a bite more to feel better -then before I realized what was going on -I was over medicated. So, please be careful, many Hashi patients need both the T4 and T3 in the mid/upper range to feel good or at least in the same part of the ranges. (both in mid range.) BTU, BJ > > Hi - I am new here so I guess I will tell a little about myself. I > was diagnoised with hypo about a year and half ago but I'm actually > wondering just how long before I was diagnoised that I had > hypo/hashi's. Looking back I had alot of symptoms starting 6 years > ago. Anyway, my PCP put me on Synthoid low dose .25 mcg, then raised > to .50 mcg after my complaints that I still did not feel any better. > She wouldn't raise me anymore as my labs were in the " normal range " > Went to see an endo who raised me to .75 mcg. At a six months check > up with him, my TSH went up again, still had alot of symptoms and I > asked about Armour and he laughed ( he said more but I won't get > into it now). So that was the end of him. I then starting seeing a > doc that was in with my PCP and she talked to my PCP and they agreed > I could try Armour. It's been 4 months and most of my symptoms have > disappeared except the fatigue. That seems to be getting worse. I > do have alot of stress (child with ADD/ODD and his behavior is > getting worse). Last week my doc wanted me to reduce my Armour back > down to 3 grains (was at 3.3) and add .25 mcg of Synthroid because > my FT4 was in the lower part of the normal range and my FT3 was over > the range. (Due to a nurse who messed up I had to take my labs on a > day that I has already taken my morning dose of Armour). I don't > know how much higher my T3 was because of this but this is why my > doc lowered my dose of Armour and added the synthetic T4. > > I wrote her a letter today to ask her to raise me 1/4 of a grain and > to test my adrenals and ferritin. I sure hope that I have convinced > her of the need. > > Any comments are welcome. > > Thanks, > Robin V. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 BJ - thanks for your advice. I am trying to take it slow but when I'm really tired I just want to loose that feeling and want to raise. My pharmacy filled my synthetic T4 with generic even though my doc wrote Synthroid on the script. I figured that it really didn't matter with Synthroid being a inferior T4 anyway. Next time I will ask her to prescribe Unithroid of Levoxyl and write " fill as prescribed and no generic substituion or medically necessary " whatever works so I don't get generic. What do you think of generic T4? Robin > > > > Hi - I am new here so I guess I will tell a little about myself. I > > was diagnoised with hypo about a year and half ago but I'm actually > > wondering just how long before I was diagnoised that I had > > hypo/hashi's. Looking back I had alot of symptoms starting 6 years > > ago. Anyway, my PCP put me on Synthoid low dose .25 mcg, then > raised > > to .50 mcg after my complaints that I still did not feel any > better. > > She wouldn't raise me anymore as my labs were in the " normal range " > > Went to see an endo who raised me to .75 mcg. At a six months > check > > up with him, my TSH went up again, still had alot of symptoms and I > > asked about Armour and he laughed ( he said more but I won't get > > into it now). So that was the end of him. I then starting seeing a > > doc that was in with my PCP and she talked to my PCP and they > agreed > > I could try Armour. It's been 4 months and most of my symptoms have > > disappeared except the fatigue. That seems to be getting worse. I > > do have alot of stress (child with ADD/ODD and his behavior is > > getting worse). Last week my doc wanted me to reduce my Armour > back > > down to 3 grains (was at 3.3) and add .25 mcg of Synthroid because > > my FT4 was in the lower part of the normal range and my FT3 was > over > > the range. (Due to a nurse who messed up I had to take my labs on a > > day that I has already taken my morning dose of Armour). I don't > > know how much higher my T3 was because of this but this is why my > > doc lowered my dose of Armour and added the synthetic T4. > > > > I wrote her a letter today to ask her to raise me 1/4 of a grain > and > > to test my adrenals and ferritin. I sure hope that I have > convinced > > her of the need. > > > > Any comments are welcome. > > > > Thanks, > > Robin V. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 Robin, I know how difficult it is to try to function with NO energy and have three children. It would be nice if you could zap our children's energy and give it to us. At my worst, I resorted to processed food in order to just be able to get a meal together. Therefore, I know how very badly you must feel. IMHO, I would go down on the Armour and go up on the T4 to balance the T4/T3 levels. I would be willing to bet that you will see a difference. Levoxyl did NOT help me either. (mmanufactured by King Pharmaceuticals) Unithroid is made by Jerome s Pharmaceuticals; Lannett now markets it. They are identical to the Unithroid tablets previously sold by Pharma. They market both generic and name brand. They are the same exact product; only the name brand costs over twice as much. (If this is not correct -someone jump in and let us know, but as of my last research it was.) The pharmacy that I go to stocks the generic so my co-pay is only $3 instead of $9. Levothroid is made by Forest Pharmaceuticals, which also, manufactures Armour Thyroid and Thyrolar. IF you get a script for Levothyroxine or L-thyroxine; you will most likely be getting a generic $ynthroid. ($ynthroid is manufactured by Abbott Laboratories) All synthetic T4 is the same medicine -it's the fillers, binders, and dyes that are different and cause the problem. FYI, a new T3 med is suppose to be developed and ready next year some time. Not sure of the name, but it's made by New River Pharmaceuticals. It's suppose to be similiar to Cytomel only longer lasting; like a slow released T3 that's not compounded. I think this will be of benefit to many. Take care, bj > > > > > > Hi - I am new here so I guess I will tell a little about > myself. I > > > was diagnoised with hypo about a year and half ago but I'm > actually > > > wondering just how long before I was diagnoised that I had > > > hypo/hashi's. Looking back I had alot of symptoms starting 6 > years > > > ago. Anyway, my PCP put me on Synthoid low dose .25 mcg, then > > raised > > > to .50 mcg after my complaints that I still did not feel any > > better. > > > She wouldn't raise me anymore as my labs were in the " normal > range " > > > Went to see an endo who raised me to .75 mcg. At a six months > > check > > > up with him, my TSH went up again, still had alot of symptoms > and I > > > asked about Armour and he laughed ( he said more but I won't get > > > into it now). So that was the end of him. I then starting > seeing a > > > doc that was in with my PCP and she talked to my PCP and they > > agreed > > > I could try Armour. It's been 4 months and most of my symptoms > have > > > disappeared except the fatigue. That seems to be getting > worse. I > > > do have alot of stress (child with ADD/ODD and his behavior is > > > getting worse). Last week my doc wanted me to reduce my Armour > > back > > > down to 3 grains (was at 3.3) and add .25 mcg of Synthroid > because > > > my FT4 was in the lower part of the normal range and my FT3 was > > over > > > the range. (Due to a nurse who messed up I had to take my labs > on a > > > day that I has already taken my morning dose of Armour). I don't > > > know how much higher my T3 was because of this but this is why > my > > > doc lowered my dose of Armour and added the synthetic T4. > > > > > > I wrote her a letter today to ask her to raise me 1/4 of a grain > > and > > > to test my adrenals and ferritin. I sure hope that I have > > convinced > > > her of the need. > > > > > > Any comments are welcome. > > > > > > Thanks, > > > Robin V. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Hi Bonnie, I am new too. I have hashimoto and two nodules. A scan and iodine test were inconclusive. I experienced throat tightness. Felt like a tight necklace or someone was choking me. The nodules caused that feeling and swallowing problems. Hashimoto symptoms vary. Mine disappear, re-appear and new ones crop up. I was dx with hashimoto at an out of state teaching hospital. According to the medical people in my family, a teaching hospital is the best place to be treated. Some of my family members have cancer and stay in hotels near a teaching hospital when vacationing in case of emergency. Thyroid surgery has become less invasive and fatality is low. My mother in law's cancerous thyroid removed 60 years ago. My cousin's was removed 40 yrs ago. Neither had a problem. When it comes to residents operating, private practice specialists use them too. I do not know if my nodules shrunk, but found taking Levoxyl helps. I take a multi vitamin with minerals (contains iodine), Coemzyme Q10 (500 mg), Folic (400 mg) , E (400),C (500-1000), Fish Oil, Evening Primose and Calcium with D ( 500 mg 2x daily). I hope I answered most of your questions. Nan Hello, I just joined the group and thought I would dive right in with some questions. I have a thyroid nodule that has been growing at the rate of 1mm a year for over 10 years. It's now about 3cm. I had it biopsied at a major medical center and they said it was definitely noncancerous. I also have Hashimoto's thyroiditis. For about two years I actually feel something in my throat. The feeling is hard to describe. Sometimes it feels like a solid thing in my throat. Sometimes it just feels like a tightness. My questions are: 1. For those of you who have Hashimoto's thyroiditis what are your symptoms? 2. For those of you who have a thyroid nodule - can you feel it? 3. What nutritional regimen has worked for you with Hashimoto's? Has anyone followed a nutritional regimen that has caused their nodule to shrink? 4. What alternative medicine regimens have you found to be effective with Hashimoto's? With shrinking a thyroid nodule? 5. I am thinking about surgery. The mortality rates in teaching hospitals seem to be the lowest, but you would have a resident etc. on the team operating on you. For this reason is it better to not have thyroid surgery at a teaching hospital? 6. If you have Hashimoto's, would you take a multivitamin with iodine? How about taking a multivitamin that has iodine with a thyroid nodule? Please don't be intimidated by the 6 questions. Pick your favorite to answer. Sincere thanks for the information. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 , Good luck with your scan. One thing I want to mention is I had chest pains while taking Armour and Cytomel. My endo said both medications cause chest pains. The explanation was too scientific for me to remember. Anyway, she said switching to Levoxyl, Synthroid, etc would end the chest pains. She was correct. I experience fatigue, insomnia, paralysis, body pain, weakness, throat, sinus and ear problems, weight loss and gain, cold and hot spells depending on medication dose. Racing heart beat, anxiety, depression, headaches, eye, disgestive and gyn problems, boils, carpal tunnel, itching, dry skin, stiffness, thinking, concentration, memory problems, low temperature and blood pressure, adrenal and glucose problems. Nan Hi Bonnie. I am in the same boat as you but I am just finding out I have an enlarged thyroid. I have an ultra sound test next week to find out about it. So I would also love to hear the answers to all your questions also. I do believe I have something going on in my throat and its been going on for years. Its seems I have a hard time swallowing. Like something is hung in my throat. I do think what ever it is its causing me ear problems. I have fluid on my ears all the time it seems. I have been treated for hypo thyroid for years and I just found out that I am Hashi. Here are some of my main symptoms at this time. Tired all the time. Cant get to sleep at nights Ear problems Racing heart anxiety Hot all the time. cant deal with the heat. That's about all the questions I can answer at this time. I have no special diet I am following right now. I will tell you I was on Weight Watchers about 6 months ago and I did lose a few pounds but there were no changes in symptoms. I still had them while on the diet. They did change me to Armour about 6 weeks ago and my racing heart and anxiety has calmed down but that's about it. I do think maybe with this Armour I am on the right track but just not found that right dose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 What says below is very true. In addition to the dr. and pharmacist, I have found a site that has a program on it that allows you to list your meds and read any possible interactions. Like I know a lot of my meds interact by making me sleepy, and given the sleeping problems I have, this is acceptable. You can also put in medical conditions and a lot of other stuff. I love being able to see interactions myself. Hugs, Michele - Nana to Twins is and , 3 yrs., Zachary, 5 yrs., Ethan, 9 yrs., and Tony, 13 yrs. > -----Original Message----- > From: Mckenzie-Christensen > Sent: Sunday, September 13, 2009 5:18 AM >> As to meds for pain/sleep Ive tried tramadol (which I > couldn't tolerate) Lyrica (which I am on) Endep (which I am > on) Norspan patch which was switched to durajesic panadol > helps for in between pain, I tried cymbalta but it interacted > with the endep and left me in a wheelchair Theres also a > cream I find helps called goanna arthritis cream. My main > thing I would say about meds is that everyone is different > and its up to you and your dr to work out what works for you. > Also if you are sensitive to them (which I am) then start > with a really small dose (I start with less than the dr tells > me) and then slowly build up. also be careful which ones you > mix and make sure you have a dr (or ask a pharmacist) that > knows what ones can go together. This is what happened to me > - the endep and cymbalta were mixed and I have been very sick > since last july. I had stopped the endep for 24 hrs which is > what my dr told me to do and it still interacted. > (snipped) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 Hi : What's CF? Pamela Neckpain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 Would you be willing to share the site? _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Michele Townsend What says below is very true. In addition to the dr. and pharmacist, I have found a site that has a program on it that allows you to list your meds and read any possible interactions. Like I know a lot of my meds interact by making me sleepy, and given the sleeping problems I have, this is acceptable. You can also put in medical conditions and a lot of other stuff. I love being able to see interactions myself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 CF= chronic fatigue ----- Original Message ----- From: pamelaneckpain@... Hi : What's CF? Quote Link to comment Share on other sites More sharing options...
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