Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 I have read several articles where fibro is linked to Thyroid problems. I was diagnosed with Hashimoto's about 5 years ago although I had it for many years prior to diagnosis. I had a partial thyroidectomy two years ago. Now, last week I was diagnosed with fibromyalgia too. I probably had it at least for the past two years also. My husbands cousin also has thyroid problems and fibro. Hi , I have Hashimotos Thyroiditis and Fibromyalgia, amongst other things! The Fibromyalgia came only a few months ago. Still learning about it and learning to deal with it. How long have you had it? Did you hear if Fibro has anything to do with Thyroid problems? le AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 No not really but if I focus on others it takes my mind off my own problems. I did something as simple as combing my hair this am and my c5-6 are now bulging and hurt like mad, the tramadol is not doing a thing nor is the heating pad. So now when I sneeze and cough and blow my nose it hurts. I'm just getting old ROFL! Terry I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992 From: asthma [mailto:asthma ] On Behalf Of MendezSent: Sunday, January 25, 2009 11:05 AMTo: asthma Subject: Re: I'm doing better. Still very very tired though. Is everything going okay for you? FREE PROAIR> > > I HAVE MANY PROAIR IF YOU HAVE SCRIPT AND NO INSURANCE I HAVE PROAIR THAT HAS > JUST EXPIRED. BUT IF YOU LOOK ON LINE HAS LONGER SHELF LIFE.> THESE ARE ALL BRAND NEW. MY ASTHMA IS GONE. NEW DOCTOR FOUND THE CAUSE.> ANGEL> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 NO. Angel > > > > The Xoponex inhaler did not work for me in the asthma/allergist > office today > > when I had a full blown attack and only the proventil helped so I > won't be > > switching rescue inhalers sorry. > > > > > > > > Terry > > I know God will not give me anything I can't handle. I just wish > that He > > didn't trust me so much. ~Mother > > Teddy Bear's Early Learning Program > > Established August of 1992 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Angel who are you writing to me are who? To: asthma Sent: Saturday, February 14, 2009 6:40:01 PMSubject: Re: NO. Angel> >> > The Xoponex inhaler did not work for me in the asthma/allergist > office today> > when I had a full blown attack and only the proventil helped so I > won't be> > switching rescue inhalers sorry.> > > > > > > > Terry > > I know God will not give me anything I can't handle. I just wish > that He> > didn't trust me so much. ~Mother > > Teddy Bear's Early Learning Program> > Established August of 1992> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 why would you say that? Proventil is what I get for my albuterol now. queezles wrote: Isn't the Proventil off the market now? > > The Xoponex inhaler did not work for me in the asthma/allergist office today > when I had a full blown attack and only the proventil helped so I won't be > switching rescue inhalers sorry. > > > > Terry > I know God will not give me anything I can't handle. I just wish that He > didn't trust me so much. ~Mother > Teddy Bear's Early Learning Program > Established August of 1992 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Angel was replying to queezles....about Proventil being off the market now. I just answered too..it is not off the market. Cindi Bourg wrote: Angel who are you writing to me are who? From: Angel <angelstarartist> To: asthma Sent: Saturday, February 14, 2009 6:40:01 PM Subject: Re: NO. Angel > > > > The Xoponex inhaler did not work for me in the asthma/allergist > office today > > when I had a full blown attack and only the proventil helped so I > won't be > > switching rescue inhalers sorry. > > > > > > > > Terry > > I know God will not give me anything I can't handle. I just wish > that He > > didn't trust me so much. ~Mother > > Teddy Bear's Early Learning Program > > Established August of 1992 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 It is off the market here because I use to use it. And the Lady where i get my medicine at told me I couldn't get after the first of this year. To: asthma Sent: Saturday, February 14, 2009 7:01:52 PMSubject: Re: Re: Angel was replying to queezles.... about Proventil being off the market now. I just answered too..it is not off the market.Cindi Bourg wrote: Angel who are you writing to me are who? From: Angel <angelstarartist@ yahoo.com>To: asthmayahoogroups (DOT) comSent: Saturday, February 14, 2009 6:40:01 PMSubject: Re: NO. Angel> >> > The Xoponex inhaler did not work for me in the asthma/allergist > office today> > when I had a full blown attack and only the proventil helped so I > won't be> > switching rescue inhalers sorry.> > > > > > > > Terry > > I know God will not give me anything I can't handle. I just wish > that He> > didn't trust me so much. ~Mother > > Teddy Bear's Early Learning Program> > Established August of 1992> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Proventil is not off the market. Proventil has the new propellant now. The old propellant is the one that in not on the market anymore. Albuterol is still on the market..it is just the propellant they changed. We have been through all of this before. hugs! Cindi Bourg wrote: It is off the market here because I use to use it. And the Lady where i get my medicine at told me I couldn't get after the first of this year. From: Rodney & Cindi <rctsielvtc (DOT) net> To: asthma Sent: Saturday, February 14, 2009 7:01:52 PM Subject: Re: Re: Angel was replying to queezles.... about Proventil being off the market now. I just answered too..it is not off the market. Cindi Bourg wrote: Angel who are you writing to me are who? From: Angel <angelstarartist@ yahoo.com> To: asthmayahoogroups (DOT) com Sent: Saturday, February 14, 2009 6:40:01 PM Subject: Re: NO. Angel > > > > The Xoponex inhaler did not work for me in the asthma/allergist > office today > > when I had a full blown attack and only the proventil helped so I > won't be > > switching rescue inhalers sorry. > > > > > > > > Terry > > I know God will not give me anything I can't handle. I just wish > that He > > didn't trust me so much. ~Mother > > Teddy Bear's Early Learning Program > > Established August of 1992 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2009 Report Share Posted August 17, 2009 Wish it was me that was seeing Cheney but it is not. I am also anxious to hear her impression and if it was helpful. New Dr. Cheney patient: Please report. I¹m all ears. Lois > > >> > What makes people try to Fix me? I sometimes just want to crawl >> > into my bed and never come out! >> > Thanks for letting me vent. >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Since cfs is a " wastebasket dx " without any kind of serological dx test many people are diagnosed by primary care physicians( who generally know nothing about the illness) when their patients come into their offices and complain of being " tired " . Fibro is usually more accurately dx since the " tender points " physical exam is done.I have been a CFIDS survivor for over 32 yrs.. and during that time I have had numerous people claim to have it too. Judging by their lifestyles and complete lack of understanding of symptoms( i.e. post exertional fatigue), I believe that MOST of the time they do NOT have it. Which always makes me annoyed. People who actually do have CFIDS and Fibro usually have an instant bonding as they KNOW how the other person is REALLY feeling and what they have been through. It is all the same story that we share. You must have felt terrible after standing and listening to her for 20 minutes. Usually those with CFIDS/FMS find it very difficult to stand for 20 minutes without feeling like they are going to faint and feel worse and have to go and lie down until they feel better. Sometimes I have found that people will say that they have it in order to have a common bond with you. which is wierd butI have experienced it. When they don't I actually find it insulting for those of us who have survived it for a long time. They don't have a clue what it is like. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2010 Report Share Posted January 1, 2010 Barbara, I too have a handicap parking card and I have heard it from more than one person say to me that I don`t look handicapped. I know its bothered me and it shouldnt. Depending on what they have said and of course my mood, my response was either silent or sarcastic and it shouldnt have to be this way. nne~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2010 Report Share Posted January 3, 2010 Perhaps we need to ask how we are supposed to look to prove we are handicapped. My goal is to do this with a smile, then keep on walking. I have to remember these people are trying in their own way to defend their more visibly handicapped relatives. With luck, I'll remember it is a chance to educate them a bit without going into detail. I have friends with heart problems, artificial hips, etc., with stickers. They don't look handicapped either, but they are older than I, so perhaps not accosted as much. Perhaps I'll remember to ask them. Barbara > > Barbara, > > I too have a handicap parking card and I have heard it from more than one person > > say to me that I don`t look handicapped. I know its bothered me and it shouldnt. > > Depending on what they have said and of course my mood, my response was either silent > > or sarcastic and it shouldnt have to be this way. > > nne~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 I still work full time and am only able pop on at lunch so I have like 50 posts a day to wade thru but I value the information I get here so I keep trying , It is very hard to keep up with posts, and you chime in as often as you can!!! ((((hugs)))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 How do we know who is a favorite here? We all have something to contribute, in my view. Barbara S. in CT > > I did not realize you did not respond to me. I have noticed you and felt like you contribute just fine.Please do not feel like you are not a favorite, as I know I am not a favorite here either but I always put my 2 cents worth in.\ > which of the syndromes do you have? I have fibromyalgia, chronic fatigue syndrome, and migraines and gerd and ibs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2010 Report Share Posted February 5, 2010 where do you live?I know how frustating it is to be so ill and Doctors have no Idea. I went to many many drs. before I went to mayo clinic where they diagnosed me the first day at Mayo clinic.. They are amazing and I would encourage any one who hasn't been able to be diagnosed it is very worth going . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2010 Report Share Posted February 7, 2010 I am afraid I am in Adelaide Australia so I am not travelling to the US for treatment unfortunately! I will let you know how my new neuro goes though. My problem is that I have a LOT of things going on that are not FM or CFS and my drs dont understand my disability. I have been questioning what has been happening for 18 months and last week my rhemy says to me why are you in a wheelchair what is stopping you from walking?? I turned around and tried not to crack up with laughter saying I have NO idea you I am only the patient!!! Hopefully the neurologist will have some idea. Both my physios think there is another condition going on which is being masked by CFS and FM pain so who knows? erin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2010 Report Share Posted February 9, 2010 Extremely frustrating. my husband is doing most things for me and although I went to rehab and they taught me how to use pins and tape to pull up my pants this was 15 months ago about and now I am finding that using them is too difficult, I have support workers for showering 2 days a week the rest of the time and for everything else my husband who works 6 days a week HAS to do it. This sucks but we are working with MPs and also advocacy to get more hours who knows what we are suposed to do in the meantime?? Could take months before they give us more support and we cant apply for help until I have seen the neurologist to get a proper diagnosis and hopefully a prognosis I have decided that I dont care if this is going to be forever like this I just want to KNOW that one way or another. Not knowing is worse than knowing simply because knowing you can plan your future a bit better. I have many dreams and goals I would like to achieve and its a bit hard to do any of them until I know a bit more about what is happening with my health........ Let you know what happens appmt is 23rd feb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Thanks for your support I will let you know what happens after the appointments ----- Original Message ----- From: b1write I so sympathize with your situation. Even though I am able to get around fairly well, when I am in pain like tonight (my shoulder barely hurts in comparison with my neck, suddenly), I wish so much that I had someone here to help me. I get two hours a month for housekeeping help, but that is a bare minimum, though better than nothing at all. Quote Link to comment Share on other sites More sharing options...
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