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Jeanne

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You said it so much better than I.

Of course I was answering at 5:00am our time, a bit sleepy,grumpy.

But I like the way you answered this one,because you care.

Love

Janet

> >why does nt anyone understand that i am newly dianoised and i am

scared to

> >death . i am angry not at this group i am goingthrough alot of

emotions

> >and i

> >am cut off from everyhting .i dont want to die i am 28 found out

i am

> >pregnant today

>

> Here's the deal. We were all newly diagnosed at some time. We

were all in

> shock, if not complete panic, when the reality of the diagnosis

started to

> set in. Actually, I suspect that is one of the reasons the

founders of

> this group set it up: to help people get through that very scarey

first few

> months--as well as support for all the rest of the months through

treatment

> (or non-treatment, as the case may be). No one wants to die,

whether

> they're 18 or 28 or 88. The virus cuts a swathe through not only

our

> physical health, but for many, our entire lives. Yes, most of us

have

> probably (or will probably) come across some tactless boob who

makes snide

> comments about hcv being a disease of " lowlifes " --you just have to

get over

> the immediate hurt, then get past it, and then laugh about it.

(What can

> be more low-life than saying something like that to someone who's

already

> in distress about the diagnosis??)

>

> It doesn't matter how you, or anyone got it. (I wanted to know

for my own

> edification--but ultimately, it didn't matter one bit. Knowing

didn't

> change things.) As far as I'm concerned, it doesn't matter

whether or not

> someone did something " bad " --NO ONE deserves this virus, not one

person,

> nobody, zip.

>

> In my own experience, the best way to benefit from this wonderful

group is

> to read the messages, take heart in others' successes, laugh with

us when

> someone posts a good joke, watch for the often excellent articles

on the

> ongoing research and other newsy tidbits about the virus, and then

be sure

> to mine the files area for the basics on how to deal with hcv.

Sometimes

> there are things in there our doctors didn't mention--or perhaps

didn't

> even know. LEARN as much as you can about hcv. Knowledge is

power in our

> case, and it just might help prolong your life.

>

> This group is not a substitute for a good doctor, but at least for

me, it's

> been a wonderful adjunct. I've even printed out a few things to

carry in

> to the doctor. Sometimes, you know, doctors are so busy doctoring

that

> they're not spending time on the internet digging up obscure

research papers.

>

> Bernice, if you take good care of yourself, eat well, and avoid

ALL

> alcohol--plus follow your doctors' orders especially as regards

the wee one

> you carry--you will, in all probability, watch your new baby grow

up,

> graduate from university, marry, and have babies of his/her own.

Don't let

> yourself get too wrapped up in depression, self-pity, anger, or

other

> negativity. It will take a toll on your physical health and on

your

> relationships with friends and family. If these emotions are

> uncontrollable, please find a therapist to help with them.

>

> Take heart, Bernice. This is a very supporting group of people,

because

> these people have gone through so much. They're not here to give

handouts,

> mind you, but something more valuable--collective wisdom,

compassion, and

> understanding.

>

>

>

> Jeanne

>

> ===--* My stars!

>

> http://users.eaokonline.com/~vcl20001/

> http://groups.yahoo.com/group/healingcircle2/

>

>

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