Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Beth, I understand about the fatigue. My house is suffering terribly because by the time I have time to work on it the only thing I want to do is nap. It's so frustrating. I don't know if it gets any easier because I was diagnosed in February, and about 3 weeks ago had my levothyroxin dose increased from 25 mcgs to 100 mcgs. I see the endo in June so we'll see if it goes even higher. I do have a question someone here might be able to answer. Hashimoto's is an autoimmune disease...does that make us more, less, or neither, likely to have other autoimmune diseases? Thanks for the information, or of where to read up on it. Beth, know you're not alone in this. Cris :)The Lord bless and keep you,May His face shine upon youand be gracious and give you peace.Numbers 6:24-26Mercy Me "Bless Me Indeed"~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Hi Cris, I've been where you are and totally understand...as do many of us. One thing I've learned in battling this disease is you need vast amounts of patience! It's so hard on some days to be patient, especially when you feel horrible. Med increases need to be done slowly, and sometimes it takes weeks before you see full effects or improvement. Are you only on levothyroxin? Are they checking your Free T3 & T4 levels? Where were your last thyroid levels at? They do say that if you have one autoimmune disease that you have a higher risk for developing others...but that doesn't mean that you will. There is hope. After years of feeling horrible & trying to get my thyroid and other hormones balanced, I am finally seeing improvement little by little. Brain fog is gone, fatigue is so much better, etc. So keep listening to your body & fight for the proper treatment...you'll get there Joy Re: New to the group Beth, I understand about the fatigue. My house is suffering terribly because by the time I have time to work on it the only thing I want to do is nap. It's so frustrating. I don't know if it gets any easier because I was diagnosed in February, and about 3 weeks ago had my levothyroxin dose increased from 25 mcgs to 100 mcgs. I see the endo in June so we'll see if it goes even higher. I do have a question someone here might be able to answer. Hashimoto's is an autoimmune disease...does that make us more, less, or neither, likely to have other autoimmune diseases? Thanks for the information, or of where to read up on it. Beth, know you're not alone in this. Cris :)The Lord bless and keep you,May His face shine upon youand be gracious and give you peace.Numbers 6:24-26Mercy Me "Bless Me Indeed"~~~~~~~~~~~~~~~~~~~~~~~~~~*Note: Information is freely exchanged on this board based on patient experiences, and should not be considered a medical recommendation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I have had a similair experience. I am 36 and was diagnosed with Hashi's over 11 years ago now. I sufferred for many years before a diagnosis. I have had 4 children along with some miscarriages. While I was pregnant I lost weight, felt great and looked good. After I had the baby I was skinnier than ever each time but within a few months the pounds started piling one. I nursed my last baby for 14 months and still gained the weight. I gained 60 pounds after my last child was born. I was so upset and still battle to take the weight off. That baby is now 9. The EBV is the virus that causes Mono (Mononuecleosis). Pretty much everyone has it at sometime in your life. Once you get it your body builds antibodies against the virus. I don't know what all these numbers tell you except that you have the antigen's. To tell if you really have mono they usually run a regular CBC and check your WBC count. If that is high then it could indicate that the virus is active. Good luck at your doctor's appointment and I am sure that they will give you some answers. Also if you do some searches online you might find some info too. new to the group Hello all,My name is Colleen--I live in South Jersey. I was diagnosed with Hashi's about a year ago. I've been sick since 2002 and have gone through what most of us have with doctors throwing anti-depressants my way or simply saying "you're a working mom--of course you are tired"...and all of that. I have a great doc now at the U of Penn (four doctors later). So, here are some of my concerns. First, I've gained a good amount of weight in the past three years (and I've had two pregnancies in that amount of time). So, weight is an issue. Since we finally knew about the Hashi's with my last pregnancy the doc monitored me really well and I actually felt great while pregnant and actually lost weight! After the baby was born things went downhill immediately. My arm started to get numb again, more weight gain, fatigue, plus I never stopped bleeding after having the baby which requied two weeks of straight progesteron, etc. I had bloodwork done at 6 weeks post-partum and it read that I was a bit hyper. I was shocked! So, doc had me skip one of my daily 1oo mcg Levoxyl pills in a week. I am now 6 months post partum and super fatigued, worse numbness, forgetfullness, fuzzy, sore throat, etc. I had my bloodwork done and my TSH is 9.921 (.350-5.50). I can't believe I went so far hypo so quickly. I also have Epstein-barr which no one has ever been able to tell me anything about--what role does it play? Can it be treated? etc. Always a mystery. Anyway, here are my EBV numbers: EBV Early Antigen 113 (0-99), EBV Ab VCA 792 (0-99), EBV Nuclear Antigen 647 (0-99). No clue what any of that means. Next...cholesterol. My overall cholesteral is now 212 and my LDL is 141. I do not eat a lot of junk food at all. I eat balanced meals, fruits and veggies and take a multi-vitamin. I will work on my diet more and get more exercise but man, oh man, I am so frustrated!! I see my doc at Penn this Thursday. I'd love to hear your take on any of this.Also, I find it so hard to find information related to hashi's. Can anyone recommend a book or website?Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Welcome Joann! We have just been discussing disability! LOL Unfortunately, I am not on it so I can't be much help. However, I do know that the rules state that you have to have been completely disabled for 6 months with no clinical improvement. Do you have an attorney? I know most of those guys will work on your case and not get paid unless you do. Madeline > > Hello Everyone, I'm new to this group. Sounds like your all such nice > people here. Thanks for allowing me to be a part of it! > I do have a question I'm hoping someone can answer for me. > Is there anyone here in the group on disability for there asthma? > I have it so bad. I have had it for quite sometime now, and it has > turned into emphysema. > I haven't been able to work for the past ten years. I applied for > disability, but I have been denied. I also appealed it, and now I'm > waiting for some kind of response. It would sure be nice to be able to > talk to someone that's possibly going through the same process as > myself. > Thanks > JoAnn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hi , Welcome to the group! Alana > > My name is and I just joined this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Welcome hun!!! -- New to the group My name is and I just joined this group. I haven't had a chanceto read through all of the many posts, but its wonderful knowing thereare other people with the same issues I have. I have moderate asthmaand allergies to just about everything. I work in a very large roomwith a 20 women, three of whom douse themselves with perfume often. I have an air purifier at work - an Austin Air Healthmate Plus Jr.,which I bought specifically to filter out the fumes of perfume andpermanent markers used in the area. "Pure air in 7 seconds" is how itwas advertised.Among many reviews I read, this was an objective review of the airpurifiers available: http://www.consumersearch.com/air-purifiers/reviewI use advair for asthma, and nasarel for allergies, though I just gotdone taking mega doses of prednisone because I now have nasal polyps,which will have to be surgically removed (not looking forward to that).My ENT just gave me 2 samples of Advair, because he said there is nowa new product out that is competing with Advair. Has anyone heardanything about it? He didn't tell me the name of the product.To answer other posts, I'm from Pennsylvania and there is no smokingallowed in restaurants (of course, the casinos are still allowed tohave smoking areas, as well as bars/taverns but it depends upon thepercentage of food/alcohol they serve.Here in PA, we also have to show our drivers license and sign a formwhen buying Sudafed (I buy the generic WalMart version).Thanks for having me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2009 Report Share Posted March 8, 2009 , I'm from PA too. I got nasal polyps also. What part of PA are you from. I have a great doctor at my ENT. If you want to email me privately you can. I had tons of nasal surgeries and hated all of them. The last surgery I had the doctor had me get a cat scan on my head and then put these weird stickers on my forehead and I felt like frankenstein. He did that because he used a computer somehow to do the surgery. Anyway, good luck with everything. Genevive Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 -Thanks Taffy, I do not know what the other people were saying...Farm store? Health food store? Diluting what? Yes, I will have to take time to read the files and folders.... Basil is natural squared stem mint which has cinnamon properties in it....Mints are good for digestion...I understand a detox, a purification, but to cleanse the inside? Many of the plants teas are astrigent.... So much to learn... -- In DimethylSulfoxide-DMSO , " Taffy " wrote: > Hi, : > Just for your consideration, some of the " cures " may truly be in your > cupboard. You might wish to Google the use of cinnamon for controlling > diabetes, I think the recommendation is to start with one quarter teaspoon > per day. > > Raw foods, as much as you can work into your daily diet would be a great > place to start. > > Also, a clean interior is mandatory...you may wish to Google Homozon or > Colosan, ( and there are other similar products) to give your body the best > jump start to good health. > > Cheers, > > Taffy > > > > _____ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 , if you wish to email me off list, I will try to help you with the little bit of knowledge that I have acquired over time…..so as not to bore the list members who already know these details. Certainly, you need to take time to read the files, but perhaps I can help jump start the info for you. Yes, I am busy, not just saying I am busy, but your email rings of the sincerity of someone who needs help….now! Cheers, Taffy email: taffya@... From: DimethylSulfoxide-DMSO [mailto:DimethylSulfoxide-DMSO ] On Behalf Of Dobbins Sent: July-12-09 7:30 AM To: DimethylSulfoxide-DMSO Subject: Re: new to the group -Thanks Taffy, I do not know what the other people were saying...Farm store? Health food store? Diluting what? Yes, I will have to take time to read the files and folders.... Basil is natural squared stem mint which has cinnamon properties in it....Mints are good for digestion...I understand a detox, a purification, but to cleanse the inside? Many of the plants teas are astrigent.... So much to learn... -- In DimethylSulfoxide-DMSO , " Taffy " wrote: > Hi, : > Just for your consideration, some of the " cures " may truly be in your > cupboard. You might wish to Google the use of cinnamon for controlling > diabetes, I think the recommendation is to start with one quarter teaspoon > per day. > > Raw foods, as much as you can work into your daily diet would be a great > place to start. > > Also, a clean interior is mandatory...you may wish to Google Homozon or > Colosan, ( and there are other similar products) to give your body the best > jump start to good health. > > Cheers, > > Taffy > > > > _____ > Quote Link to comment Share on other sites More sharing options...
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