Re: BJ Celliac

[Guest guest]

Jamy you may like to join this forum

http://www.glutenfreeforum.com/index.php?act=idx

It is a public one so you can read if you aren't a member but not post. They have a children's section as well .................Meleese x

BJ Celliac

BJ, my grandsone was dxed with sensory integration disorder. That is kind of like add or a mild autisim, but not on the autism spectrum. I have a glutin issue and was finally dxed with celiac. I mentioned to my daughter and she did a test and took my grandson off glutin for 4 weeks. The change in his behavior was amazing! Even his chronic runny nose ended. He just went to a Dr that says he has no genetic marker for celiac. Any inputr?

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[Guest guest]

Jamy,

WOW! That is amazing! I'm glad eating gluten-free helped so much.

I'll have to do some research to refresh myself on what exactly

sensory integration disorder is. I know Sensory Integration is the

ability to take in information through the senses.

I have been through the ringer with doctors and their beliefs on

Celiac vs. non-Celiac gluten sensitivity. This has went on and off

for years, mostly on in the past seven since I was finally diagnosed

with Hashi's. I've had all sorts of tests including a biopsy.

Everything was negative. I don't know anyone in my family for at

least three generations that was suspected of or had Celiac. I

really don't know what " the genetic marker " would be either. Maybe

the dr told your daughter/DIL. The only thing I can think of is that

the antibodies weren't positive. No matter, the only true way that I

know of is via a biopsy. Anyone with Celiac would need to be 100%

diet free of gluten to protect the intestines while us non-Celiac

could cheat and only compromise our absorption of nutrients along

with various symptoms.

I continually read that the genes for Celiac Disease may be

transmitted to some family members and not to others. Usually 10% of

the time close family members have it. Sometimes it's triggered, or

becomes apparent for the first time, after surgery, pregnancy,

childbirth, viral infection, or severe emotional stress. (Celiac is

rare in people with an African American, Caribbean, or Asian

background.) Females seem to have it more than males. Although Celiac

can manifest at any age, the greatest times are around a year old and

people in their thirties to forty.

I remember reading that a person can have neurological symptoms that

include weakness, problems with balance, touch and pain. I imagine

if you read a good article on Celiac you may notice many symptoms

that your grandson has/had. I thought my many miscarriages were

Hashi related, but now wonder if they happened because of the gluten

sensitivity.

The literature is pretty clear that actual Celiac affects a very

small portion of the population - one half of one percent- something

like one in every 300 people. It's an AI disease and will damage the

intestines and has even been linked to intestinal lymphoma, a form of

cancer. While non-Celiac gluten intolerance affects over 15% (1 in

7) of the population, yet have the same effects of malnutrition as

Celiac, but not the intestinal damage. The treatment is the same -

eating non-gluten foods.

I would be interested to hear how things progress for your grandson

as well. BTW, how old is he?

Take care,

Bj

>

> BJ, my grandsone was dxed with sensory integration disorder. That

is kind of like add or a mild autisim, but not on the autism

spectrum. I have a glutin issue and was finally dxed with celiac. I

mentioned to my daughter and she did a test and took my grandson off

glutin for 4 weeks. The change in his behavior was amazing! Even his

chronic runny nose ended. He just went to a Dr that says he has no

genetic marker for celiac. Any inputr?

> ----- Original Message -----

>

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