US needs to change CDC's 'advice'

[Guest guest]

I don't know if this has been posted or not:

This would be a start! RE: CFIDS/FM/ME

The U.S. CDC has had two decades to get our disease right. They have not. The

barrier is not scientific or medical, but political. The Canadian Consensus

Document for ME/CFS can begin showing physicians how to treat patients right

now.

It addresses the complexity of the illness, offers tests and treatments, and

contains a medical bibliography from refereed professional journals. The

authors, as a group, have treated over 20,000 patients. It’s time for the U.S.

to adopt the Canadian Consensus Document (Journal of CFS, 2003). You can click

HERE for a summary pamphlet. To join the movement for the U.S. to adopt the

Canadian Consensus Document, just click CAMPAIGN to get started.

Or you can go straight to the petition by clicking HERE.

Since Congress pays more attention to petitions with real signatures on them,

you can copy and print out a petition and then mail it(even if there’s only one

signature) to the address on the Campaign webpage (link above).

Signed petitions can also be FAXED. Send an email to the address (on the

Campaign webpage) for a FAX number.

If downloading and signing a petition is too difficult, it’s okay to copy the

petition into an email, add “I agree to this” and “sign” your name. Then email

it to the intlconsensus address listed on the Campaign website.

Be sure to email your Congressman and Senators (the ones from your jurisdiction;

they don’t generally take emails from outside their jurisdiction) – a sample

letter and instructions for finding their addresses are HERE. (You can also FAX

them.)

And if you want to compare the Canadian Consensus Document with the CDC’s own

set of pamphlets, the “CFS Toolkit for Professionals”, go HERE.

Together, we can get this excellent document, which includes three pages of

diagnostic tests and seventeen pages of potential treatments, adopted in the

U.S.