Whose husband??? and disease progression

[Guest guest]

, it seemed for a moment that I had written your third paragraph! I,

too, have to think back a year to get perspective, and as you said, with the

fluctuating nature of LBD sometimes it is hard to get things in perspective.

At the moment Bob is doing so much better. The good days last longer and are

better, and the bad ones aren't as bad. Who knows how long this will last;

I'm just grateful for the reprieve. As for putting on the show when being

evaluated - or visiting with others - we are blessed that our neurologist

understands this phenomenon and doesn't think I'm out in left field. Someone

else once said it seemed as if her husband would put on a show for the

others, but when they were alone he could just relax and be himself.

Bob attends a Special Needs exercise class for an hour 1-3x/wk, depending on

how he feels, and like is in excellent general health. I, too,

anticipate a life expectancy of more than 7 years for him.

A QUESTION for those of you whose loved ones are deteriorating rapidly: Has

it been that way since the beginning? Or do you think the disease was there

for quite awhile and your LO was able to " hide " it for a long time? There

are so many questions about the future and I would really appreciate any

insighs and experience you can offer. The disease is so individualized and

yet there are some comparisons. Thanks.

Cheryl