Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Eve! After the angioplasty surgery the hospital staff gave my husband dilaudnum and when that didn't work, they tried two doses of valium. Just made things worse. My husband came out of this OK, even continued coaching until last March. He had 90% of one main heart artery blocked and hasn't had more problems with blocked arteries. Two years prior to his LBD diagnosis we had a terrible time controlling his blood pressure (would be too high or too low on a daily basis). A year prior to his LBD diagnosis he was evaluated for sleep apnea. His only long term medication was for high blood pressure, which was changed many times over the 30 years. We've been married 25 years and I wouldn't change anything (except this disease) either. I am thankful we have a good internal med dr and a good neurologist though. lula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Eve, Hello! I was in about the same boat as you when my Grandmother came out from open heart surgey. She underwent an aortic valve replacement in May. They had to go in twice because of complications. She was completely different. I couldn't understand it. I had just taken her to a neurologist a few months before because we suspected Parkinson's (she has a tremor). The Dr just wrote a note saying that there wasn't anything *signifiant* showing up on the tests. But, even w/ that letter I told the Dr's before she went into surgery that she was a *possible* Parkinson's patient. Not once did they tell me anything about side effects of the anthesia. When she woke up she was complaining of terrible pain and she wanted to leave. We had quite a time w/ her. About a month after her surgery we could tell a big change for the better in her and that is when we had the follow-up appt w/ the neurologist and when we received the LBD diagnosis. She was walking about a mile a day to help healing w/ the heart surgery, then she had the LBD act up on her. In December she was soo bad that we had to take her to the hospital. There the Internist, that we had just seen once, starting working w/ her medications. She has gotten drastically better since then. Now she can walk alone, go to the bathroom unassisted, eat mostly by herself, and do a few other things that makes taking care of her bunches easier. Unfortuantely, she has several other things that are wrong w/ her and we don't know how those things will affect her. We will just have to wait and see. Right now, I am just enjoying the relief. Eve, my best wishes are w/ you and your loved one. May you have a great day! Nansea > Lula, > > I had not mentioned it before, but talk about deja vu! > > Joe's surgery in April 1996 was very unusual in that the small artery from the aorta to the small intestine appeared to be clogged - but all the others were completely clear and he has low cholestrol and low blood pressure. When they got in there the artery was like wet tissue paper and they could not even attach to bypass. It was touch and go that day, and when Joe came out of intensive care, he was like a wild man - pulling out everything, yelling to catch that big dog, not liking me or his children, would not cooperate with anything or anybody - and the more sedation we gave him, the more violent and erratic he got [which I later found out that dimerol was the worst thing you can give to anyone with Parkinsons]. This sweet tempered man was a monster, and we were all devastated. > > When we got him home, he had poor and double vision and all the other things I described previously. It was like Joe went into that hospital and a faint copy came out. > > Last night I mentioned in my email about environmental causes - what we take etc. Our specialist in Portland has those four case studies, and two of them, besides Joe, that had been on migraine medication in the 1960's and 70's that was later taken off the market because of severe side effects in some people, also had the very same artery problem and now have Parkinsons or maybe LBD. > > By the way, Joe [and I too] have always been SUPER organized. It is really difficult for me to go around and find his and our things in disarray from the way we always lived before, and he does not seem to even realize it. > > BUT-- we have been married for 51 years - most of them glorious - and if I had to do it all over again, I would go back and marry him sooner! > > Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Eve, I really curious about Joe's migrane headaches. My husband Mark also suffered from migranes for many years before being diagnosed with LDB. They were described as "cluster headaches" and usually occured in the fall and winter seasons. When we began seeing the Doctor of Chinese Medicine, she said that is when she would have liked to have seen Mark. She said it was the body screaming for help - an indication that something was going wrong. Regards, Kathy Surgery! Lula, I had not mentioned it before, but talk about deja vu! Joe's surgery in April 1996 was very unusual in that the small artery from the aorta to the small intestine appeared to be clogged - but all the others were completely clear and he has low cholestrol and low blood pressure. When they got in there the artery was like wet tissue paper and they could not even attach to bypass. It was touch and go that day, and when Joe came out of intensive care, he was like a wild man - pulling out everything, yelling to catch that big dog, not liking me or his children, would not cooperate with anything or anybody - and the more sedation we gave him, the more violent and erratic he got [which I later found out that dimerol was the worst thing you can give to anyone with Parkinsons]. This sweet tempered man was a monster, and we were all devastated. When we got him home, he had poor and double vision and all the other things I described previously. It was like Joe went into that hospital and a faint copy came out. Last night I mentioned in my email about environmental causes - what we take etc. Our specialist in Portland has those four case studies, and two of them, besides Joe, that had been on migraine medication in the 1960's and 70's that was later taken off the market because of severe side effects in some people, also had the very same artery problem and now have Parkinsons or maybe LBD. By the way, Joe [and I too] have always been SUPER organized. It is really difficult for me to go around and find his and our things in disarray from the way we always lived before, and he does not seem to even realize it. BUT-- we have been married for 51 years - most of them glorious - and if I had to do it all over again, I would go back and marry him sooner! Eve Quote Link to comment Share on other sites More sharing options...
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