Re: Another Bad back up, almost ended in ER

[Guest guest]

Hi Willow,

Hang in there!

If his stools seemed watery - it could mean that he does have an

impaction and this is the " leakage " coming around the impaction.

From everything I've read, enemas are not such a great idea for

anyone, especially children. But, I've also never used them and

others here may have more information and advice on that.

How much MOM are you giving? for my 3.5 yr old (about 35 lbs) I

needed to give about 15 mLs a day for " maintenance " (i.e., to keep him

going every couple of days) and went up to 20-25mLs when I suspected

impaction (only at this dose for a day or two, though). I also have

used the Fleet BabyLax glycerin suppositories (but *despise* doing

this from the emotional standpoint -it's too hard for both of us).

More recently, I have given him OxyCleanse (which I found at a local

Co-op Grocery store, but you could probably find in a HFS). It has

magnesium peroxide and vitamin C. I have given him 2 capsules a day

(I imagine you could mix the contents of the capsules into something

your son will take....pureed pears?, stewed prunes?, etc.). To clear

him out, I give him one or two Senna plus stool softener tablets on

the same days as the 2 OxyCleanse capsules, until he passes the large

stool(s) and then has another good stool. (about 2 - 4 days).

If your son doesn't swallow tablets, the senna plus stool softener

probably won't work out because I've tried crushing them to mix with

apple sauce or honey or ANYTHING and it just tastes NASTY. I had

relatively good success giving some KidLax (2 capsules) along with the

magnesium. I think others here have given KidLax in juice.

Have you tried eliminating dairy and wheat/gluten? If only for a

short while to see if it helps at all? Try just offering fruit,

vegetables, and protein sources (without any gluten/dairy additives) -

very few grains (even if they are gluten free) for a week or so and

just see. Egg can also be constipating.

In my experience, once we clear through a potential impaction, it is

absolutely *imperative* to keep up on the magnesium (currently I give

him 1 OxyCleanse (173mg magnesium) and 2 mag glycinate (50mg magnesium

each) from Kirkman - but I plan to phase out the OxyCleanse and add

back in the MegaMag drops (ionic magnesium) once I'm confident things

are going well for him).

I think buffered vitamin C with bioflavinoids (at any HFS and maybe

can find at some drug stores like Walgreens or CVS) is considered to

be a good form of Vit C to give.

I think you mentioned previously that you were giving a magnesium with

calcium supplement. Calcium can also be constipating - you might want

to try a magnesium source with no calcium.

Hopefully you'll get some more advice and support to get you through

this! We all know how difficult it can be!

HTH.

best,

p.s. - what kind of fiber are you giving? There are multiple opinions

here on fiber. I used to give him a soluble fiber supplement (e.g.,

Fiber Choice wafers), but have stopped all supplemental fiber in lieu

of giving a LOT more fruits and vegetables to get the fiber in it's

natural form and source.....fwiw.....

>

> Hi there,

> So I took my son off Miralax about 3 weeks ago. He was given it

> about 6 months ago, due to what appeared in ex ray to be a blockage,

> and severe constipation. (which all the websites on Miralax say not

> to give in that case), anyway, towards the end he was on more then

> twice the adult dose.

>

> Since I took him off, he got super backed up, I started him on pro-

> biotics, fiber, MOM, and prune juice, after the first back up, he

> dumped and dumped, and seemed okay for a while, but his stools

> actually seemed watery, which was weird. (he's still in diapers, age

> 6, special needs). I decreased the fiber, and well, I just can't get

> him to drink the prune juice anymore, no matter how much apple juice

> I mix it with. He's a super picky eater. Then, he is backed up

> again. He is not withholding because for the last two days, every

> word or sound that comes out of his mouth has a bit of a push sound

> to it. He wants to go so bad. He tries and tries all day it seems.

> I gave him a supposittory yesterday at 3pm. Some hard stuff has

> seemed to come out, and a little bit of softer stuff, but not much at

> all. His tummy is still big and hard. He's still backed up. I was

> so worried last night, I called the Advice line and they made him an

> appointment today. But he has gone a little and I have decided to

> take matters into my own hands rather then waste my time at the

> doctors. It's kinda sad, but I don't trust them at all anymore.

> Where are we to turn if we can't trust doctors? I think I am going to

> request to see a gastro specialist, and also a nutritionist to talk

> about things to change in his diet.

>

> I'm thinking of buying an enema. I think the prune juice helped a

> lot, but I can't get him to drink it anymore. I am worried about him,

> can't it be dangerous if he gets a bowell obstruction? My husband

> wants to start back on the Miralax, because at least he not getting

> backed up like this. But I hate Miralax, and everything it stands

> for. I hate that my ped's response to my questions about why every

> time I decreased he got backed up again was, " Well, he might just

> have to stay on it for the rest of his life " . Sigh........ What do

> you think?

>

> Thanks,

> Willow

>

[Guest guest]

I would be cautious on the fiber, if it is motility issue than this

can cause more problems. Can you get some aloe juice and mix it in

something for him to drink! Can you get him to swallow pills? High

dose of vitamin C can get things moving! No he wont have to stay on

it for life, I was told the same was possible for our son!! Our son

at 5yrs was on 2 adult doses a day. First thing is to get him cleaned

out. I would recommend magnesium citrate, but being special needs I

dont think you well be able to get him to drink it. They do have

capsule/powder form at health stores(we found ours at wild oats).

Maybe you can try that. Break the capsules open and mix in some

pudding or something he likes. It takes a lot of the capsules, it is

in mg's versus the grams. But maybe break it up 2-3 times a day until

you can accomplish gram amounts. I sure hope your son does better. If

you can really get him to drink as much water(spring) as possible.

Jennie<><

>

> Hi there,

> So I took my son off Miralax about 3 weeks ago. He was given

it

> about 6 months ago, due to what appeared in ex ray to be a

blockage,

> and severe constipation. (which all the websites on Miralax say

not

> to give in that case), anyway, towards the end he was on more

then

> twice the adult dose.

>

> Since I took him off, he got super backed up, I started him on pro-

> biotics, fiber, MOM, and prune juice, after the first back up, he

> dumped and dumped, and seemed okay for a while, but his stools

> actually seemed watery, which was weird. (he's still in diapers,

age

> 6, special needs). I decreased the fiber, and well, I just can't

get

> him to drink the prune juice anymore, no matter how much apple

juice

> I mix it with. He's a super picky eater. Then, he is backed up

> again. He is not withholding because for the last two days, every

> word or sound that comes out of his mouth has a bit of a push sound

> to it. He wants to go so bad. He tries and tries all day it

seems.

> I gave him a supposittory yesterday at 3pm. Some hard stuff has

> seemed to come out, and a little bit of softer stuff, but not much

at

> all. His tummy is still big and hard. He's still backed up. I was

> so worried last night, I called the Advice line and they made him

an

> appointment today. But he has gone a little and I have decided to

> take matters into my own hands rather then waste my time at the

> doctors. It's kinda sad, but I don't trust them at all anymore.

> Where are we to turn if we can't trust doctors? I think I am going

to

> request to see a gastro specialist, and also a nutritionist to talk

> about things to change in his diet.

>

> I'm thinking of buying an enema. I think the prune juice helped a

> lot, but I can't get him to drink it anymore. I am worried about

him,

> can't it be dangerous if he gets a bowell obstruction? My husband

> wants to start back on the Miralax, because at least he not getting

> backed up like this. But I hate Miralax, and everything it stands

> for. I hate that my ped's response to my questions about why every

> time I decreased he got backed up again was, " Well, he might just

> have to stay on it for the rest of his life " . Sigh........ What do

> you think?

>

> Thanks,

> Willow

>

[Guest guest]

I made my son drink prune juice also, it is a little easier for me because my son in 10 years old and he understands that it helps him, but he hates it. We are now using Sunsweet Plumstart plum juice instead, it seems to be working. We also make sure he eats a lot of watery foods (oranges, grapes, pineapple, cucumbers) Everday. We cannot miss not one day. He also takes epsom salt baths.

Deanna,Fort Worth, TexasMom to Cody age 10. Diagnosed w/EE on 2/6/08. Also severe reaction to Miralax.

Another Bad back up, almost ended in ER

Hi there,So I took my son off Miralax about 3 weeks ago. He was given it about 6 months ago, due to what appeared in ex ray to be a blockage, and severe constipation. (which all the websites on Miralax say not to give in that case), anyway, towards the end he was on more then twice the adult dose. Since I took him off, he got super backed up, I started him on pro-biotics, fiber, MOM, and prune juice, after the first back up, he dumped and dumped, and seemed okay for a while, but his stools actually seemed watery, which was weird. (he's still in diapers, age 6, special needs). I decreased the fiber, and well, I just can't get him to drink the prune juice anymore, no matter how much apple juice I mix it with. He's a super picky eater. Then, he is backed up again. He is not withholding because for the last two days, every word or sound that comes out of his mouth has a bit of a push sound to

it. He wants to go so bad. He tries and tries all day it seems. I gave him a supposittory yesterday at 3pm. Some hard stuff has seemed to come out, and a little bit of softer stuff, but not much at all. His tummy is still big and hard. He's still backed up. I was so worried last night, I called the Advice line and they made him an appointment today. But he has gone a little and I have decided to take matters into my own hands rather then waste my time at the doctors. It's kinda sad, but I don't trust them at all anymore. Where are we to turn if we can't trust doctors? I think I am going to request to see a gastro specialist, and also a nutritionist to talk about things to change in his diet. I'm thinking of buying an enema. I think the prune juice helped a lot, but I can't get him to drink it anymore. I am worried about him, can't it be dangerous if he gets a bowell obstruction? My husband

wants to start back on the Miralax, because at least he not getting backed up like this. But I hate Miralax, and everything it stands for. I hate that my ped's response to my questions about why every time I decreased he got backed up again was, "Well, he might just have to stay on it for the rest of his life". Sigh........ What do you think? Thanks,Willow

[Guest guest]

Hi Willow- -just curious, has he ever been tested for celiac, or for

food sensitivities or allergies?

Using the saline enema, or using babylax, even every day, will not

cause the bowels to become physically dependent on it. You can even

use the enema twice a day for several days in a row, to get the larger

stool to come out, and then you can use it every few days to keep

things moving out until you are able to figure out more as to what is

the underlying cause.

Miralax for the rest of his life... sadly, the doctor may not be

considering that he could end up being one of the many adults who do

take miralax daily, even several times a day, who still have bowel

problems and the miralax isn't solving it! One woman I know on a

different message board, she had taken miralax and for a while, it

seemed to work fine, and then as time went on, it seemed to stop

working...so the dose was increased...still not working... it got to

the point where every single weekend, she was drinking a jug of that

golyte/colyte stuff (large amounts of PEG, mixed with electrolyte

powder)...anyway, even that wasn't working well either.

So has he ever been tested for celiac or any food sensitivities or food

allergies?

W

>

> Hi there,

> So I took my son off Miralax about 3 weeks ago. He was given it

> about 6 months ago, due to what appeared in ex ray to be a blockage,

> and severe constipation.

[Guest guest]

Willow, This is what is so bad about Miralax, it seems that the bowel doesn't respond after taking it, but it will get better, just keep plugging away trying something that will produce, is your son autistic? FYI if you go to a gasto, they will prescribe Miralax, you need to be strong, gather your info from this board on the safety of it. (MSDS) in the files section, showing safety and effectiveness in children has not been established and you simply want to try something else, and Safe, they can't prove it's safe, when the Material Data Sheets say the safety in children is unknown. Sounds like a terrible situation, my heart goes out to your family. As far as the prune juice and smells, textures, etc. Hypersensitivity is a side affect and if you think your child was a picky eater before, wait till the experience the side affects of Miralax, this is what we are trying to tell people, we have, and anyone on here, can go to

the files section and create a poll, over the years, we have created mini-polls and just a handful of people who are chatting at the time will respond, it's truely amazing on how many have the same symptoms. example, Is anyone having issues with food textures.......... yes only on yes only after yes on and after no anyone can do this....... I had a very hard time just washing my dd's hair for two years after the Miralax, she became obsessive that I was going to get soap in her eyes and just the thought of the shampoo being in her hair made her freak out beyond belief, the 911 behavior started immediately after the Miralax, no, no, no, Mama, you're gonna get soap in my eyes, hurry up, get it out, type behavior (It was never an issue, I have a hand held shower head and it wasn't like we ever got soap in her eyes before) and NEVER had an issue with it before, (not

autistic child) it took about 2 years to get better and she developed a weird behavior from that day forward about obsessive behavior of getting all the soap off her hands when it was clearly all washed off..............I feel if this affected a normal child in this way, it would clearly be more prominent to see and identify, It's hard enough trying to state my situation to the medical field who absolutely refuses to make the connection, let alone an autistic child who they can blame the strange behavior on Autism! This is what makes this drug so sinister, the protocol is wrong, enough people haven't contacted the FDA, and will continue if we don't let them know. If you feel you or someone you know has had an adverse reaction to a drug, please contact MedWatch all your information is kept confidential. People can obtain what side affects one experienced but includes no names for the security of the subscriber. http://www.fda.gov/medwatch/ It's best to ask for, Konginstein, he will take the information, they are very familiar with this situation. In 2001 their were only 7 reports, there are now 869, and 550 members on this board, most of them on here seeking advice because they're child was harmed by this medication. There is only a handful just seeking advice before they decide to put their child on it, and another handful of parents investigating this site because they've had their child on this because they've had to because of certain diseases their child has, but they must have had something happen, or noticed something, to be further researching it's safety? Please go into the files section a read over the FDA adverse side affects and you will see.............. I saw a tv show yesterday that changed my whole outlook on diet, it's called "you are what you

eat", I would recommend this to everyone, I think you're on the right track with looking into the diet, you just need to find something non-toxic, and non-petrochemical for your child to take. Jeanie Willow wrote: Hi there,So I took my son off Miralax about 3 weeks ago. He was given it about 6 months ago, due to what appeared in ex ray to be a blockage, and severe constipation. (which all the websites on Miralax

say not to give in that case), anyway, towards the end he was on more then twice the adult dose. Since I took him off, he got super backed up, I started him on pro-biotics, fiber, MOM, and prune juice, after the first back up, he dumped and dumped, and seemed okay for a while, but his stools actually seemed watery, which was weird. (he's still in diapers, age 6, special needs). I decreased the fiber, and well, I just can't get him to drink the prune juice anymore, no matter how much apple juice I mix it with. He's a super picky eater. Then, he is backed up again. He is not withholding because for the last two days, every word or sound that comes out of his mouth has a bit of a push sound to it. He wants to go so bad. He tries and tries all day it seems. I gave him a supposittory yesterday at 3pm. Some hard stuff has seemed to come out, and a little bit of softer stuff, but not much at all. His tummy is still

big and hard. He's still backed up. I was so worried last night, I called the Advice line and they made him an appointment today. But he has gone a little and I have decided to take matters into my own hands rather then waste my time at the doctors. It's kinda sad, but I don't trust them at all anymore. Where are we to turn if we can't trust doctors? I think I am going to request to see a gastro specialist, and also a nutritionist to talk about things to change in his diet. I'm thinking of buying an enema. I think the prune juice helped a lot, but I can't get him to drink it anymore. I am worried about him, can't it be dangerous if he gets a bowell obstruction? My husband wants to start back on the Miralax, because at least he not getting backed up like this. But I hate Miralax, and everything it stands for. I hate that my ped's response to my questions about why every time I decreased he got backed up again was,

"Well, he might just have to stay on it for the rest of his life". Sigh........ What do you think? Thanks,Willow

[Guest guest]

What is everyone using in place of pasta, bread, toast, potato,

(whole grain, wheat) That a huge portion of the human diet, and I am

having a hard time figuring out what to substitute in its place.

> >

> > Hi there,

> > So I took my son off Miralax about 3 weeks ago. He was given

> it

> > about 6 months ago, due to what appeared in ex ray to be a

> blockage,

> > and severe constipation. (which all the websites on Miralax say

> not

> > to give in that case), anyway, towards the end he was on more

> then

> > twice the adult dose.

> >

> > Since I took him off, he got super backed up, I started him on

pro-

> > biotics, fiber, MOM, and prune juice, after the first back up, he

> > dumped and dumped, and seemed okay for a while, but his stools

> > actually seemed watery, which was weird. (he's still in diapers,

> age

> > 6, special needs). I decreased the fiber, and well, I just can't

> get

> > him to drink the prune juice anymore, no matter how much apple

> juice

> > I mix it with. He's a super picky eater. Then, he is backed up

> > again. He is not withholding because for the last two days, every

> > word or sound that comes out of his mouth has a bit of a push

sound

> > to it. He wants to go so bad. He tries and tries all day it

> seems.

> > I gave him a supposittory yesterday at 3pm. Some hard stuff has

> > seemed to come out, and a little bit of softer stuff, but not

much

> at

> > all. His tummy is still big and hard. He's still backed up. I was

> > so worried last night, I called the Advice line and they made him

> an

> > appointment today. But he has gone a little and I have decided to

> > take matters into my own hands rather then waste my time at the

> > doctors. It's kinda sad, but I don't trust them at all anymore.

> > Where are we to turn if we can't trust doctors? I think I am

going

> to

> > request to see a gastro specialist, and also a nutritionist to

talk

> > about things to change in his diet.

> >

> > I'm thinking of buying an enema. I think the prune juice helped a

> > lot, but I can't get him to drink it anymore. I am worried about

> him,

> > can't it be dangerous if he gets a bowell obstruction? My husband

> > wants to start back on the Miralax, because at least he not

getting

> > backed up like this. But I hate Miralax, and everything it stands

> > for. I hate that my ped's response to my questions about why

every

> > time I decreased he got backed up again was, " Well, he might just

> > have to stay on it for the rest of his life " . Sigh........ What

do

> > you think?

> >

> > Thanks,

> > Willow

> >

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

We've had good luck with rice pasta -- Trader Joes has a good rice

penne pasta. I posted my gluten free bread recipe a few days ago.

Pamela's makes a good bread mix too.

Same as recommended below -- serve in courses to get at least a few

bites in. Broccoli and cauliflower are best IMO opinion because the

add to sulfation.

Oatmeal is good for some -- a terrible thing for others. We also cut

corners and get the GFCF pancakes at Trader Joes.

> > >

> > > Hi there,

> > > So I took my son off Miralax about 3 weeks ago. He was given

> > it

> > > about 6 months ago, due to what appeared in ex ray to be a

> > blockage,

> > > and severe constipation. (which all the websites on Miralax

say

> > not

> > > to give in that case), anyway, towards the end he was on more

> > then

> > > twice the adult dose.

> > >

> > > Since I took him off, he got super backed up, I started him

on

> pro-

> > > biotics, fiber, MOM, and prune juice, after the first back

up, he

> > > dumped and dumped, and seemed okay for a while, but his

stools

> > > actually seemed watery, which was weird. (he's still in

diapers,

> > age

> > > 6, special needs). I decreased the fiber, and well, I just

can't

> > get

> > > him to drink the prune juice anymore, no matter how much

apple

> > juice

> > > I mix it with. He's a super picky eater. Then, he is backed

up

> > > again. He is not withholding because for the last two days,

every

> > > word or sound that comes out of his mouth has a bit of a push

> sound

> > > to it. He wants to go so bad. He tries and tries all day it

> > seems.

> > > I gave him a supposittory yesterday at 3pm. Some hard stuff

has

> > > seemed to come out, and a little bit of softer stuff, but not

> much

> > at

> > > all. His tummy is still big and hard. He's still backed up. I

was

> > > so worried last night, I called the Advice line and they made

him

> > an

> > > appointment today. But he has gone a little and I have

decided to

> > > take matters into my own hands rather then waste my time at

the

> > > doctors. It's kinda sad, but I don't trust them at all

anymore.

> > > Where are we to turn if we can't trust doctors? I think I am

> going

> > to

> > > request to see a gastro specialist, and also a nutritionist

to

> talk

> > > about things to change in his diet.

> > >

> > > I'm thinking of buying an enema. I think the prune juice

helped a

> > > lot, but I can't get him to drink it anymore. I am worried

about

> > him,

> > > can't it be dangerous if he gets a bowell obstruction? My

husband

> > > wants to start back on the Miralax, because at least he not

> getting

> > > backed up like this. But I hate Miralax, and everything it

stands

> > > for. I hate that my ped's response to my questions about why

> every

> > > time I decreased he got backed up again was, " Well, he might

just

> > > have to stay on it for the rest of his life " . Sigh........

What

> do

> > > you think?

> > >

> > > Thanks,

> > > Willow

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

We eat a ton of produce and protein (mostly from meat, some from beans, some

from

nuts/nut butters). Like Tracie, we do as much fresh, whole foods as possible.

Frozen is

second choice. We use as little prepared and/or processed foods as possible.

(Shop the

perimeter of the store - where all the fresh stuff is! We only dabble in the

freezer aisle for

a few minutes!) I'm trying to start our backyard garden so that he'll

(hopefully) be even

more interested in the fresh veggies since he'll be growing them and picking

them.

For us, in the beginning, when we first started gluten free, we did use GF bread

(mostly

rice flour based (store-bought). I use various combinations of sorghum,

garfava, tapioca,

buckwheat flours for substitutes in pancake and waffle recipes, and sometimes

for treats

like cookies. We also use commercial GF cookies at times (Trader Joes has a

good GF

ginger snap and GF peanut butter cookie dough). But these are mostly rice flour

based

and I try to limit our rice consumption. We also do the TJ's rice pasta, GF

frozen waffles.

Most of these " GF " options we use in moderation - like Tracie and LeeAnn

mentioned, it

works as great motivator for eating the other stuff first.

We use potatoes liberally. We use beans a lot instead of grains in meals.

(Since we do eat

meat, I don't worry about making sure the beans have a whole grain compliment to

complete the protein.)

We avoid corn for the most part - sometimes some organic corn chips (with

digestive

enzymes), but I think we're going to eliminate it entirely for a while.

I'm trying to find time to learn more about soaking grains, nuts, and flours. I

think Bonnie

recently posted a link with more info on soaking. I also think the Weston A

Price

foundation and Sally Fallon's book (Nourishing Traditions) are good sources of

info on

how to eat more healthfully and nutritiously (for omnivores...and I think both

WAP and S.F.

recommend raw whole milk for those who can do dairy (we can't)....). There's

another

yahoo group for gluten-free, casein-free, native nutrition (GFCFNN) which

follows the

WAP and SF philosophies but is GF/CF as well....

> > >

> > > Hi there,

> > > So I took my son off Miralax about 3 weeks ago. He was given

> > it

> > > about 6 months ago, due to what appeared in ex ray to be a

> > blockage,

> > > and severe constipation. (which all the websites on Miralax say

> > not

> > > to give in that case), anyway, towards the end he was on more

> > then

> > > twice the adult dose.

> > >

> > > Since I took him off, he got super backed up, I started him on

> pro-

> > > biotics, fiber, MOM, and prune juice, after the first back up, he

> > > dumped and dumped, and seemed okay for a while, but his stools

> > > actually seemed watery, which was weird. (he's still in diapers,

> > age

> > > 6, special needs). I decreased the fiber, and well, I just can't

> > get

> > > him to drink the prune juice anymore, no matter how much apple

> > juice

> > > I mix it with. He's a super picky eater. Then, he is backed up

> > > again. He is not withholding because for the last two days, every

> > > word or sound that comes out of his mouth has a bit of a push

> sound

> > > to it. He wants to go so bad. He tries and tries all day it

> > seems.

> > > I gave him a supposittory yesterday at 3pm. Some hard stuff has

> > > seemed to come out, and a little bit of softer stuff, but not

> much

> > at

> > > all. His tummy is still big and hard. He's still backed up. I was

> > > so worried last night, I called the Advice line and they made him

> > an

> > > appointment today. But he has gone a little and I have decided to

> > > take matters into my own hands rather then waste my time at the

> > > doctors. It's kinda sad, but I don't trust them at all anymore.

> > > Where are we to turn if we can't trust doctors? I think I am

> going

> > to

> > > request to see a gastro specialist, and also a nutritionist to

> talk

> > > about things to change in his diet.

> > >

> > > I'm thinking of buying an enema. I think the prune juice helped a

> > > lot, but I can't get him to drink it anymore. I am worried about

> > him,

> > > can't it be dangerous if he gets a bowell obstruction? My husband

> > > wants to start back on the Miralax, because at least he not

> getting

> > > backed up like this. But I hate Miralax, and everything it stands

> > > for. I hate that my ped's response to my questions about why

> every

> > > time I decreased he got backed up again was, " Well, he might just

> > > have to stay on it for the rest of his life " . Sigh........ What

> do

> > > you think?

> > >

> > > Thanks,

> > > Willow

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Listen to your kid on this one! Yucca is the natural way to reduce

the ammmonia level in your blood -- I don't have time to research

links. If you need me to do that post and I will try.

> > >

> > > Hi there,

> > > So I took my son off Miralax about 3 weeks ago. He was given

> > it

> > > about 6 months ago, due to what appeared in ex ray to be a

> > blockage,

> > > and severe constipation. (which all the websites on Miralax say

> > not

> > > to give in that case), anyway, towards the end he was on more

> > then

> > > twice the adult dose.

> > >

> > > Since I took him off, he got super backed up, I started him on

> pro-

> > > biotics, fiber, MOM, and prune juice, after the first back up,

he

> > > dumped and dumped, and seemed okay for a while, but his stools

> > > actually seemed watery, which was weird. (he's still in

diapers,

> > age

> > > 6, special needs). I decreased the fiber, and well, I just

can't

> > get

> > > him to drink the prune juice anymore, no matter how much apple

> > juice

> > > I mix it with. He's a super picky eater. Then, he is backed up

> > > again. He is not withholding because for the last two days,

every

> > > word or sound that comes out of his mouth has a bit of a push

> sound

> > > to it. He wants to go so bad. He tries and tries all day it

> > seems.

> > > I gave him a supposittory yesterday at 3pm. Some hard stuff has

> > > seemed to come out, and a little bit of softer stuff, but not

> much

> > at

> > > all. His tummy is still big and hard. He's still backed up. I

was

> > > so worried last night, I called the Advice line and they made

him

> > an

> > > appointment today. But he has gone a little and I have decided

to

> > > take matters into my own hands rather then waste my time at the

> > > doctors. It's kinda sad, but I don't trust them at all anymore.

> > > Where are we to turn if we can't trust doctors? I think I am

> going

> > to

> > > request to see a gastro specialist, and also a nutritionist to

> talk

> > > about things to change in his diet.

> > >

> > > I'm thinking of buying an enema. I think the prune juice helped

a

> > > lot, but I can't get him to drink it anymore. I am worried

about

> > him,

> > > can't it be dangerous if he gets a bowell obstruction? My

husband

> > > wants to start back on the Miralax, because at least he not

> getting

> > > backed up like this. But I hate Miralax, and everything it

stands

> > > for. I hate that my ped's response to my questions about why

> every

> > > time I decreased he got backed up again was, " Well, he might

just

> > > have to stay on it for the rest of his life " . Sigh........ What

> do

> > > you think?

> > >

> > > Thanks,

> > > Willow

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >