Re: Seeking advice/Jeanie

[Guest guest]

Just by bringing them to the ER or a physican, and letting them see it, they need to document what reaction that he had. My papers state Toxic reaction to Miralax, I brought her to the ER, they might want you to spend the night so someone can document what you are seeing.............they will probably want to do the tests I talked about to confirm if they are seizures, do your research before you agree to anything, and ask them how they tell the difference between a person seizing? vs. shaking because the medication they gave him is toxic? You can also tell them about the hundreds of people on this board that has had the same thing happen. For some reason, all the blood tests seem to come up normal which makes this evil chemical make it's way even further around this country and into more children. I am so sorry about your son, this is horrible beyond belief. It really needs to be documented though, when someone has a reaction to a medication, the doctor's are SUPPOS

E to contact the FDA, but this rarely happens. So that's why I can't stress enough, for people to contact the FDA, they won't know unless we tell them. Our children will never receive the merit they so deserve and more children will be damaged if we don't

Jeanie

--------- Seeking advice

I am new to the group and wonder if anyone here can relate to and/oradvise on my experience. My little boy (3yo in May) had a pattern of a BM every 6-7 days. Hewas and still is otherwise a perfect picture of health! Picky andsuper fastidious, but totally healthy His infrequent BM pattern began as soon as solid foods wereintroduced. He was solely breastfed until 10mos. and did not warm tosolids until 18mos. So for a good while, the BM's were infrequent, butsoft enough and not bothersome to him. I did not feel his infrequency"issue" was a problem that warranted treatment until about one monthago when he cried a lot during a BM.Because 2 family members of mine had experienced success with miralax,I asked our doc about it and he said that given my son's aversion toany oral meds and his erratic, toddler-like food tendencies, miralaxseemed like a good option. The docs I know have nothing bad to sayabout miralax

..So far, we have had no major problems. Then I found this group and amnow wondering if I should be doing something different. I was givinghim one capful daily and he began to go every 2-4 days. Also, the BM(sorry for the graphic description) is now super paste like. It isnot as runny as diarrhea, but it is not solid at all. He goes no probnow...no straining, red face, or cries. However, I recently worriedthat his BMs were too loose, so I tried this week to go to every otherday and now it has been 5 days with no BM. So, what should I do now? Do I just stop the miralax even though itwas the only relief we have had (runny poop and all)? Do I go back tothe daily dose but try it with less? If so, how much less? Is it"normal" that even with the full daily dose, he was not a daily pooper? Please note that he loves to eat prunes, pears,and raisins, fairlyregularly. However, I can not get him to drink juice of any kind. He

BR>hates anything super sweet. The only way he takes the miralax is witha white tea (Honest Tea-Pearfect) that I buy at Whole Foods. I can notsuccessfully disguise flax from him (unless someone here has a trick Ican try) and he will not swallow ANY oral med/liquid unless he thinksit's yummy and he is in control. If I were to force a liquid down histhroat, he would vomit it back up within 20 seconds (a tested theory) Oh and for what it's worth to this diagnostic picture, he stillnurses a few times a day.I would very much appreciate anyone's kind feedback, experience, oradvise.Thanks in advance,is

[Guest guest]

I will do everything I can. I have not yet contacted the FDA, but I will. I have been trying to get the doctor's to diagnose my son with a toxic reaction to Miralax. They won't. See, they called it a virus. He has had constipation since age 2. Jan 3 2008 was the first time he saw a GI. He scheduled him for a colonoscopy and a scope. On the scope they found EE (Eosiniphilic Esophagitis). Which is a swollen/thickened esophagus due to an allergic reaction, I said Miralax, they said no (keep in mind he had been taken Miralax faithfully for about a month, and the day before the scope/colonsocopy he took Halflytly (Miralax plus) at high dosages to clean the colon. I know you have heard about the horrible tasting stuff people have to take the day before a colonoscopy well it's Miralax and it is given

at about 80 grams over a couple of hours. He had a double wammy! When EE was found on the esophagus due to an allergic reaction, they claimed it can't be the Miralax. He was sent to an allergy specialist. They diagnosed him with food allergies to Rye, Wheat, Soy, and Beef. Maybe slightly (in my opinion) but I believe it was the Miralax. The food allergy gave them an out. I am still working at getting a diagnoses of Toxic reaction to Miralax. Hopefully the neuro specialist will do it.

Deanna,Fort Worth, TexasMom to Cody age 10. Diagnosed w/EE on 2/6/08. Also severe reaction to Miralax.

Seeking advice

I am new to the group and wonder if anyone here can relate to and/oradvise on my experience. My little boy (3yo in May) had a pattern of a BM every 6-7 days. Hewas and still is otherwise a perfect picture of health! Picky andsuper fastidious, but totally healthy His infrequent BM pattern began as soon as solid foods wereintroduced. He was solely breastfed until 10mos. and did not warm tosolids until 18mos. So for a good while, the BM's were infrequent, butsoft enough and not bothersome to him. I did not feel his infrequency"issue" was a problem that warranted treatment until about one monthago when he cried a lot during a BM.Because 2 family members of mine had experienced success with miralax,I asked our doc about it and he said that given my son's aversion toany oral meds and his erratic, toddler-like food tendencies, miralaxseemed like a good option. The docs I know have nothing

bad to sayabout miralax .So far, we have had no major problems. Then I found this group and amnow wondering if I should be doing something different. I was givinghim one capful daily and he began to go every 2-4 days. Also, the BM(sorry for the graphic description) is now super paste like. It isnot as runny as diarrhea, but it is not solid at all. He goes no probnow...no straining, red face, or cries. However, I recently worriedthat his BMs were too loose, so I tried this week to go to every otherday and now it has been 5 days with no BM. So, what should I do now? Do I just stop the miralax even though itwas the only relief we have had (runny poop and all)? Do I go back tothe daily dose but try it with less? If so, how much less? Is it"normal" that even with the full daily dose, he was not a daily pooper? Please note that he loves to eat prunes, pears,and raisins, fairlyregularly.

However, I can not get him to drink juice of any kind. He BR>hates anything super sweet. The only way he takes the miralax is witha white tea (Honest Tea-Pearfect) that I buy at Whole Foods. I can notsuccessfully disguise flax from him (unless someone here has a trick Ican try) and he will not swallow ANY oral med/liquid unless he thinksit's yummy and he is in control. If I were to force a liquid down histhroat, he would vomit it back up within 20 seconds (a tested theory) Oh and for what it's worth to this diagnostic picture, he stillnurses a few times a day.I would very much appreciate anyone's kind feedback, experience, oradvise.Thanks in advance,is