Welcome, New Member Kay Luthin

[Guest guest]

Dear Group,

Please join me in welcoming our newest member, Kay. In her own words,

here is Kay's Case History:

Hello, my name is Kay Luthin, and I live in Clarion, PA and I am 49

years old.

Almost ten years ago I began to get a mysterious bump now and then,

painful,

large, and hot, which would recede over a few months, leaving a

depression in my skin. They would occur mostly in my upper arms, and

sometimes my lymph nodes would act up. Biopsies later, and still no

diagnosis. My 'panniculitis " is both global and septal, and the deep

biopsy

showed a lot of scarring which was considered more like chronic erythema

nodosum. Then last summer I had a giant attack of the bumps, as many

as twenty at once, lots of pain and scarring, etc. I ended up at

Cleveland Clinic. I'm free of all the nasty causes they can think of,

and when the outbreak gets too big and painful, I go for cortizone

shots in each lesion, which works fast and beats prednisone.

I went into remission in the fall, and thought it was because I quit

echinacea. However, I've got two bumps this spring, so it's not over,

it may be seasonal, etc.

I hate the 'who knows' aspect of all this, don't you?

I'm glad to find a group.

Kay Luthin

**********

I am happy you chose to join us Kay. Our Group is comprised of those

who have EN and related disorders--mostly autoimmune. We are

discovering many similarities both in symptoms and treatments here,

and since EN gets very little research, we feel that ongoing research

into the related disorders will help us all.

I have posted your " Case History " to our " Member Medical History "

Files. If you wish to add to it, just post to the message board.

Love,

[Guest guest]

Hi Kay.

Erythema Nodosum is also an auto-immune disease and therefore Echinacea should never be used by any of us.

Sharon

Welcome, New Member Kay Luthin

Dear Group,Please join me in welcoming our newest member, Kay. In her own words,here is Kay's Case History:Hello, my name is Kay Luthin, and I live in Clarion, PA and I am 49years old.Almost ten years ago I began to get a mysterious bump now and then,painful,large, and hot, which would recede over a few months, leaving adepression in my skin. They would occur mostly in my upper arms, andsometimes my lymph nodes would act up. Biopsies later, and still nodiagnosis. My 'panniculitis" is both global and septal, and the deepbiopsyshowed a lot of scarring which was considered more like chronic erythemanodosum. Then last summer I had a giant attack of the bumps, as manyas twenty at once, lots of pain and scarring, etc. I ended up atCleveland Clinic. I'm free of all the nasty causes they can think of,and when the outbreak gets too big and painful, I go for cortizoneshots in each lesion, which works fast and beats prednisone.I went into remission in the fall, and thought it was because I quitechinacea. However, I've got two bumps this spring, so it's not over,it may be seasonal, etc.I hate the 'who knows' aspect of all this, don't you?I'm glad to find a group.Kay Luthin**********I am happy you chose to join us Kay. Our Group is comprised of thosewho have EN and related disorders--mostly autoimmune. We arediscovering many similarities both in symptoms and treatments here,and since EN gets very little research, we feel that ongoing researchinto the related disorders will help us all.I have posted your "Case History" to our "Member Medical History"Files. If you wish to add to it, just post to the message board.Love,