SUSSEX/KENT LETTER, Re: Beware Study, Letters, Bexhill-on-Sea Observer, 23 October 2009

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Title: Beware Study, Letters, Bexhill-on-Sea Observer, 23 October 2009

Text:

Further to the recent article about a research study carried out in America

that suggests a link between a retrovirus and ME (Does a virus cause ME?,

Bexhill Observer, 14 October 2009), after consulting with our medical

advisers people with the illness should be aware that, while very

interesting and encouraging, these findings do need to be replicated in

other laboratories.

This is not the first time that a retrovirus has been suggested to play a

major part in ME, and before it was sadly found to be a false dawn.

We also need to be aware that, even if an association is confirmed we don't

yet know if it is a cause or a consequence of ME.

It would be premature to think about tests and treatments until we know very

much more.

On the other hand, this finding will encourage more biomedical research that

will increase our understanding of ME.

The message from our advisers is that although this is a very interesting

advance, we should not get too excited about it until we know more.

There is much that can be done to help those with ME, as a survey run by our

charity recently in the area shows.

For more information call 01273 674828 or see www.measussex.org.uk

Colin Barton

Chairman

Sussex ME/CFS Society.

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