Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 A very interesting post.Thats why I'm glad we have such a mix of people from all over and we get different stories and ideas. I was a Geno type 3 and did 12 weeks before I was taken off. I was clear then and it's been 14 weeks and my blood work came back better than the last time. My viral load was undetectable 7 weeks ago and it wasn't checked this time. I personally think that to some degree it the virus is wounded or stunned by the tx that in some cases the body can fight it off and you can remain undetectable. At least I'm knocking on wood and that's going to be my story and I'm sticking to it. Remember, if you haven't got a smile on your face and laughter in your heart......Then you are just an old sour fart. Eddie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Hi to all i have been reading the latest posts and it seems to be our doctors in the uk are telling us different to docs in usa. I certainly dont want to dishearten anyone who is receiving tx but my husbands consultant in the uk seems to think that when you are on tx everyone tests neg at 12 weeks. Could this be because uk sufferers are normally genotype 3? I have 2 friends that had 12 week tx both tested neg after the 12 weeks, one continues to be clear the other was clear at 12 weeks and testing positive at 24 weeks. My husband recently finished tx and has tested neg but has to test neg aprox 6 month after tx for them to say it has been successful. It could be the different genotypes i am not sure. We personally are unsure as to wether tx has worked as he is still feeling exhausted a few months after tx or if it is something else causing the fatigue! He is mentally much more back to " normal " but still feels sick often and still not back to " normal " physically. We were very scared the tx was going to finish him off he was that poorly yet a close friend is literally sailing through his treatment with no sides! Its a strange one with no rhyme or reason as they say best wishes to u all janet bury(uk) ___________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 Janet, I am sorry but I don't believe your Docs in the UK because I know people that HAVE NEVER TESTED CLEAR AT 12 WEEKS AND THROUGH OUT TREATMENT. HOWEVER IT IS TRUE THAT WE MUST REMAIN CLEAR FOR 6 MONTHS AFTER THE TREATMENT IS OVER TO CONSIDER OURSELVES A RESPONDER AND FREE OF THE VIRUS. I have total faith in my Doctors here in the United States -- As I had hepatoligist at the Mayo Clinic -- which is one of the best hospitals in the United States. I think if I were you, I would get a second opinion from another Doc in the UK, if your husband is still clear 6 months after , than the chances are GREAT that he is virus free. IF he still feels bad and tired after the tx, that is normal as it takes a long time to get back to normal and to get all the chemotherapy out of our bodies. You can call pegasys company -- they have a 1-800 number and trained nurses 24 hours to answer your questions -- if your husband did the pegasys. Good Luck to you both and Congrats to him for clearing -- that is wonderful news... May God continue to bless you both.... Love, hugs and prayers. Marie -- Re: Differences between tx usa and uk Hi to all i have been reading the latest posts and it seems to be our doctors in the uk are telling us different to docs in usa. I certainly dont want to dishearten anyone who is receiving tx but my husbands consultant in the uk seems to think that when you are on tx everyone tests neg at 12 weeks. Could this be because uk sufferers are normally genotype 3? I have 2 friends that had 12 week tx both tested neg after the 12 weeks, one continues to be clear the other was clear at 12 weeks and testing positive at 24 weeks. My husband recently finished tx and has tested neg but has to test neg aprox 6 month after tx for them to say it has been successful. It could be the different genotypes i am not sure. We personally are unsure as to wether tx has worked as he is still feeling exhausted a few months after tx or if it is something else causing the fatigue! He is mentally much more back to " normal " but still feels sick often and still not back to " normal " physically. We were very scared the tx was going to finish him off he was that poorly yet a close friend is literally sailing through his treatment with no sides! Its a strange one with no rhyme or reason as they say best wishes to u all janet bury(uk) ___________________________________________________________ Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger.yahoo.com/download/index.html It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2004 Report Share Posted March 12, 2004 I was your typical poster boy for all that could go wrong with the tx. after they put me in the hosp the 2nd time I wasn't waving the white towel I was trying to hit them with it. And ty and all the others that are here and at the other rooms. I wish I had found them before and when I was on tx. The most thoroughly wasted of all days is that which one has not laughed! Eddie Quote Link to comment Share on other sites More sharing options...
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