Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Hi IK, I am dealing with Hashimoto's, pernicious anemia, take B12 shots once a month, and not on meds because my blood levels are " normal " , think endos are a very strange breed and right now I don't have one, have symptoms similar to yours. Had 1/2 of my thyroid removed, and know that the other half has nodules, and must be watched. Sorry to hear about the other autoimmune diseases you have. I too have Shomon's book on autoimmune disease, learned alot from it. I also surf the net for info. This group is very informative, and I hope you will find it helpful. Welcome to the group, and I wish you all the best of health Phyllis > > I AM SO HAPPY THAT I FOUND THIS GROUP, WELL HERE IS MY STORY. I'M 39 AND I GOT REALLY SICK ALL THE SUDDEN BACK IN 2001, WENT TO THE DOCTOR AND WAS DIAGNOSED W/ HASHIMOTO'S. SINCE THEN IT'S BEEN A NIGHTMARE. I AM STILL NOT FEELING WELL. I WAS TAKING SYNTHROID 150MCG FOR THE PAST 3 YRS. MY INSURANCE WOULD NOT PAY FOR THAT MEDICATION BECAUSE A GENERIC BRAND WAS APPROVED: LEVOTHYROXINE. I FINALLY DECIDED TO GO TO A DIFFERENT DOC. I JUST GOT A BLOOD WORK DONE TO RULE OUT ADDISON'S DISEASE. I HAVE SCHMIDT'S SYNDROME. SHE ALSO NOTICED THAT ONE THYROID GLAND WAS BIGGER THAN THE OTHER ONE, I HAVE TO GET ULTRASOUND. I ALSO HAVE PERNICIOUS ANEMIA, HAVE TO DO B-12 SHOT MONTHLY(WHICH I DO IT MYSELF) ALSO DON'T SLEEP GREAT. MY OBGYN SAID THAT I'M STARTING PERIMENOPAUSE , I HAVE FIBROMYALGIA ALSO. SO AS YOU CAN SEE FOR MY AGE TO HAVE ALL THESE THINGS IT'S BEEN VERY FRUSTRATING A UPSETTING. I HAVE TWO KIDS 14 & 12 I DON'T LIKE THEM TO SEE ME UPSET SO EVEN IF I'M IN PAIN OR NOT FEELING WELL I DON'T > LET THEM NOTICE. IT IS VERY HARD TO FIND ENDO. THAT CARES. I'M HOPING THAT MY NEW DOC. WILL WORK OUT, BUT MY FIRST VISIT W/ HER LAST WEEK WASN'T THAT GREAT. I KEEP MYSELF SUPER INFORMED I READ THE WEBSITE OF MARY SHOMON ALSO HAVE HER BOOK ABOUT AUTOIMMUNE DISEASES. MY THYROID ANTIBODIES HAVE ALWAYS BEEN REALLY HIGH THEY NEVER GO DOWN. MY ENDO. SAYS THAT IS NORMAL W/ HASHIMOTO'S. OKAY THAT IS ALL ABOUT ME, I AM SO HAPPY TO FIND ALL OF YOU BECAUSE IT'S IS HARD TO TALK TO PEOPLE WHO DON'T HAVE THIS DISEASE, THEY PROBABLY THINK WE ARE > EXAGGERATING. THANK YOU AND TALK TO YOU ALL SOON!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 welcome to the group. rita g --- ivelisse kast wrote: > I AM SO HAPPY THAT I FOUND THIS GROUP, WELL HERE IS > MY STORY. I'M 39 AND I GOT REALLY SICK ALL THE > SUDDEN BACK IN 2001, WENT TO THE DOCTOR AND WAS > DIAGNOSED W/ HASHIMOTO'S. SINCE THEN IT'S BEEN A > NIGHTMARE. I AM STILL NOT FEELING WELL. I WAS TAKING > SYNTHROID 150MCG FOR THE PAST 3 YRS. MY INSURANCE > WOULD NOT PAY FOR THAT MEDICATION BECAUSE A GENERIC > BRAND WAS APPROVED: LEVOTHYROXINE. I FINALLY DECIDED > TO GO TO A DIFFERENT DOC. I JUST GOT A BLOOD WORK > DONE TO RULE OUT ADDISON'S DISEASE. I HAVE SCHMIDT'S > SYNDROME. SHE ALSO NOTICED THAT ONE THYROID GLAND > WAS BIGGER THAN THE OTHER ONE, I HAVE TO GET > ULTRASOUND. I ALSO HAVE PERNICIOUS ANEMIA, HAVE TO > DO B-12 SHOT MONTHLY(WHICH I DO IT MYSELF) ALSO > DON'T SLEEP GREAT. MY OBGYN SAID THAT I'M STARTING > PERIMENOPAUSE , I HAVE FIBROMYALGIA ALSO. SO AS YOU > CAN SEE FOR MY AGE TO HAVE ALL THESE THINGS IT'S > BEEN VERY FRUSTRATING A UPSETTING. I HAVE TWO KIDS > 14 & 12 I DON'T LIKE THEM TO SEE ME UPSET SO EVEN IF > I'M IN PAIN OR NOT FEELING WELL I DON'T > LET THEM NOTICE. IT IS VERY HARD TO FIND ENDO. THAT > CARES. I'M HOPING THAT MY NEW DOC. WILL WORK OUT, > BUT MY FIRST VISIT W/ HER LAST WEEK WASN'T THAT > GREAT. I KEEP MYSELF SUPER INFORMED I READ THE > WEBSITE OF MARY SHOMON ALSO HAVE HER BOOK ABOUT > AUTOIMMUNE DISEASES. MY THYROID ANTIBODIES HAVE > ALWAYS BEEN REALLY HIGH THEY NEVER GO DOWN. MY ENDO. > SAYS THAT IS NORMAL W/ HASHIMOTO'S. OKAY THAT IS ALL > ABOUT ME, I AM SO HAPPY TO FIND ALL OF YOU BECAUSE > IT'S IS HARD TO TALK TO PEOPLE WHO DON'T HAVE THIS > DISEASE, THEY PROBABLY THINK WE ARE > EXAGGERATING. THANK YOU AND TALK TO YOU ALL SOON!! > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 -Hi, and welcome. Sounds like you need more meds. Where is your tsh, or your t4free, and t3free numbers.? Joan-- In Thyroiditis , ivelisse kast wrote: > > I AM SO HAPPY THAT I FOUND THIS GROUP, WELL HERE IS MY STORY. I'M 39 AND I GOT REALLY SICK ALL THE SUDDEN BACK IN 2001, WENT TO THE DOCTOR AND WAS DIAGNOSED W/ HASHIMOTO'S. SINCE THEN IT'S BEEN A NIGHTMARE. I AM STILL NOT FEELING WELL. I WAS TAKING SYNTHROID 150MCG FOR THE PAST 3 YRS. MY INSURANCE WOULD NOT PAY FOR THAT MEDICATION BECAUSE A GENERIC BRAND WAS APPROVED: LEVOTHYROXINE. I FINALLY DECIDED TO GO TO A DIFFERENT DOC. I JUST GOT A BLOOD WORK DONE TO RULE OUT ADDISON'S DISEASE. I HAVE SCHMIDT'S SYNDROME. SHE ALSO NOTICED THAT ONE THYROID GLAND WAS BIGGER THAN THE OTHER ONE, I HAVE TO GET ULTRASOUND. I ALSO HAVE PERNICIOUS ANEMIA, HAVE TO DO B-12 SHOT MONTHLY(WHICH I DO IT MYSELF) ALSO DON'T SLEEP GREAT. MY OBGYN SAID THAT I'M STARTING PERIMENOPAUSE , I HAVE FIBROMYALGIA ALSO. SO AS YOU CAN SEE FOR MY AGE TO HAVE ALL THESE THINGS IT'S BEEN VERY FRUSTRATING A UPSETTING. I HAVE TWO KIDS 14 & 12 I DON'T LIKE THEM TO SEE ME UPSET SO EVEN IF I'M IN PAIN OR NOT FEELING WELL I DON'T > LET THEM NOTICE. IT IS VERY HARD TO FIND ENDO. THAT CARES. I'M HOPING THAT MY NEW DOC. WILL WORK OUT, BUT MY FIRST VISIT W/ HER LAST WEEK WASN'T THAT GREAT. I KEEP MYSELF SUPER INFORMED I READ THE WEBSITE OF MARY SHOMON ALSO HAVE HER BOOK ABOUT AUTOIMMUNE DISEASES. MY THYROID ANTIBODIES HAVE ALWAYS BEEN REALLY HIGH THEY NEVER GO DOWN. MY ENDO. SAYS THAT IS NORMAL W/ HASHIMOTO'S. OKAY THAT IS ALL ABOUT ME, I AM SO HAPPY TO FIND ALL OF YOU BECAUSE IT'S IS HARD TO TALK TO PEOPLE WHO DON'T HAVE THIS DISEASE, THEY PROBABLY THINK WE ARE > EXAGGERATING. THANK YOU AND TALK TO YOU ALL SOON!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 HI, I CAN'T BELIEVE YOU HAVE EVERYTHING I HAVE BUT YOUR TSH IS NORMAL. WHY DID THEY DECIDE TO REMOVE 1/2. I WENT FOR A THYROID ULTRASOUND BECAUSE MY NEW DOC. FELT THAT ONE IS BIGGER THAN THE OTHER ONE. IVELISSE In Thyroiditis , " maturegoddessred " wrote: > > > Hi IK, > > I am dealing with Hashimoto's, pernicious anemia, take B12 shots once a > month, and not on meds because my blood levels are " normal " , think endos > are a very strange breed and right now I don't have one, have symptoms > similar to yours. > > Had 1/2 of my thyroid removed, and know that the other half has nodules, > and must be watched. > > Sorry to hear about the other autoimmune diseases you have. I too have > Shomon's book on autoimmune disease, learned alot from it. I also > surf the net for info. This group is very informative, and I hope you > will find it helpful. > > Welcome to the group, and I wish you all the best of health > > Phyllis > > > > > > > I AM SO HAPPY THAT I FOUND THIS GROUP, WELL HERE IS MY STORY. I'M 39 > AND I GOT REALLY SICK ALL THE SUDDEN BACK IN 2001, WENT TO THE DOCTOR > AND WAS DIAGNOSED W/ HASHIMOTO'S. SINCE THEN IT'S BEEN A NIGHTMARE. I AM > STILL NOT FEELING WELL. I WAS TAKING SYNTHROID 150MCG FOR THE PAST 3 > YRS. MY INSURANCE WOULD NOT PAY FOR THAT MEDICATION BECAUSE A GENERIC > BRAND WAS APPROVED: LEVOTHYROXINE. I FINALLY DECIDED TO GO TO A > DIFFERENT DOC. I JUST GOT A BLOOD WORK DONE TO RULE OUT ADDISON'S > DISEASE. I HAVE SCHMIDT'S SYNDROME. SHE ALSO NOTICED THAT ONE THYROID > GLAND WAS BIGGER THAN THE OTHER ONE, I HAVE TO GET ULTRASOUND. I ALSO > HAVE PERNICIOUS ANEMIA, HAVE TO DO B-12 SHOT MONTHLY(WHICH I DO IT > MYSELF) ALSO DON'T SLEEP GREAT. MY OBGYN SAID THAT I'M STARTING > PERIMENOPAUSE , I HAVE FIBROMYALGIA ALSO. SO AS YOU CAN SEE FOR MY AGE > TO HAVE ALL THESE THINGS IT'S BEEN VERY FRUSTRATING A UPSETTING. I HAVE > TWO KIDS 14 & 12 I DON'T LIKE THEM TO SEE ME UPSET SO EVEN IF I'M IN > PAIN OR NOT FEELING WELL I DON'T > > LET THEM NOTICE. IT IS VERY HARD TO FIND ENDO. THAT CARES. I'M HOPING > THAT MY NEW DOC. WILL WORK OUT, BUT MY FIRST VISIT W/ HER LAST WEEK > WASN'T THAT GREAT. I KEEP MYSELF SUPER INFORMED I READ THE WEBSITE OF > MARY SHOMON ALSO HAVE HER BOOK ABOUT AUTOIMMUNE DISEASES. MY THYROID > ANTIBODIES HAVE ALWAYS BEEN REALLY HIGH THEY NEVER GO DOWN. MY ENDO. > SAYS THAT IS NORMAL W/ HASHIMOTO'S. OKAY THAT IS ALL ABOUT ME, I AM SO > HAPPY TO FIND ALL OF YOU BECAUSE IT'S IS HARD TO TALK TO PEOPLE WHO > DON'T HAVE THIS DISEASE, THEY PROBABLY THINK WE ARE > > EXAGGERATING. THANK YOU AND TALK TO YOU ALL SOON!! > > > Quote Link to comment Share on other sites More sharing options...
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