Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 > Okay, without a diagnosis of CF, a question...Do any of you notice > changes in your routine absolutely causing an awful cascade of > symptoms? > got to bed, again at 2 am..This morning, my dh woke me up at 645 as > he was leaving for work and i went to roll out of bed and OMG..my > chest muscles around my ribcage..It's like i have had an accident > where the seat belt locking caused an accident..Is this normal? What > does anyone take for this? I have been eating ibuprofen for this > like candy..but geesh..It seems like when i do too much i pay, but > really, i havent been so physically aggravating it but just going > more and doing more..?? > > Hi , Chest pain is common for people who suffer some forms of Dysautonomia such as Orthostatic Intolerance with the most common forms being NMH, POTS, MVPS. Change in routine is stressful for people with Dysautonomia because the autonomic nervous system seems to be telling us to lie the hell down until we figure out what is causing our autonomic nervous systems to overcompensate for an inability to maintain our bodies in an upright position. When we get energy, naturally we want to use it, no telling when we'll feel this good again. However, in my experience, such days of extra energy are rewards for having taken it easy long enough to allow my body to heal allowing more energy for doing what I've been doing quietly with little physical activity. Exercise makes my symptoms profoundly worse which I didn't understand until I made a connection to walking a mile on sunday only to fall into bed once home again, unable to get up again for work for days. But walking is good for me, isn't it? No, not necessarily. If it's just a little walk, maybe 5 minutes in cool or neutral temperatures on a flat plain, walking normally, not too fast, may be good for me. Extra energy from pills, vitamins or otherwise, may camouflage ever present symptoms. It's the reason I avoid painkillers unless I am too miserable without. Painkillers hide the signs our bodies are overdoing certain muscles or the autonomic nervous system in general. Autonomic nervous system problems are common with CFS (chronic fatigue Syndrome) and Fibromyalgia Syndrome. Standing tests in doctors' office or a tilt table test set, both using protocols for people with these syndromes who usually do NOT faint, help to determine autonomic nervous system anomalies, especially bizarre heart rate and blood pressure numbers which only show up during standing or tilt tests. Orthostatic Intolerance means the body is unable maintain upright positions, sitting still or standing still, without mild or severe or debilitating symptoms such as cognitive dysfunction, spatial disorientation which is a fancy way of saying I am often running into walls, blurry vision especially in morning, pain increasing and spreading the longer one is upright and still while either sitting or standing, flu-like symptoms of nausea, dizziness, plus many, many more. Someone else on this list described Aggressive Rest as treatment for people with some of the above symptoms and the problem with chest pain after extra activities such as you describe, . We suffer from de-conditioning. However I suffer far less or rarely from many symptoms that lead to my retirement on disability in 1998 and afterwards. Discovering aggressive rest, staying home to heal used as treatment helped me come to terms with the fact that deconditioning is the least of my problems. Best wishes, toni Quote Link to comment Share on other sites More sharing options...
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