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Q & A for Kidney Donors

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Transplant Center

Laparoscopic

Live Donor Nephrectomy Provides Less Invasive Alternative

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Learn more about living kidney donation by watching this video, which includes information about the procedure from University of land Medical Center transplant surgeons and staff, and patient stories. View Video.

How do family members know when it is time to consider

donation?

Do some donors have trouble making the decision to donate a

kidney?

Who can be a donor?

What's the first step in the donation process?

What does the rest of the evaluation include?

What are your health risks?

Will giving a kidney affect your lifestyle?

Do donors have any trouble keeping or getting insurance after

the operation?

Will giving a kidney affect your ability to become pregnant

or to father a child?

If I decide to be a donor, how do I prepare?

What happens during surgery?

What happens after surgery?

What should I expect during my recovery at home?

What emotions do donors say they feel after the surgery?

Who pays for your medical costs?

Are there any expenses not paid by private insurance or

Medicare?

Donating a kidney is a major decision. There are many things you should know

before making your decision. This web site will answer some of those questions.

In addition, we have many health care professionals who can also help you make

your decision. It is important that you fully understand how donating a kidney

will affect you and your family.

Currently, kidneys from a living donor have a better long-term survival than

kidneys from a cadaver donor. Also, cadaveric kidney donation cannot meet the

needs of all patients in this country who need a kidney transplant. The waiting

time for a cadaveric donation may be two to four years.

Kidney donations from living relatives have always been a better option. More

recently, kidneys donated from unrelated living donors (such as a spouse or a

friend) have been as successful as those from close relatives.

The Transplant Program at the University of land Medical Center is one of

the few centers that provides a less invasive surgery for kidney donors.

Laparoscopic surgery can make donating a kidney to a loved one easier. Using the

laparoscope, surgeons make only a small incision above the navel -- about

two-and-a-half inches -- as well as four small holes through which they insert

instruments. The laparoscope contains a miniature camera, and surgeons watch

what they are doing on a video monitor. The traditional " open " surgery

requires an incision about ten inches long that cuts through abdominal muscles.

Laparoscopic surgery can mean less pain, no sutures or staples, a shorter

hospital stay and a much faster recovery for the donor. Since March 1996,

surgeons at the Medical Center have performed more than 300 laparoscopic

procedures for kidney donation.

In all of the cases, the transplanted kidneys were functioning well after

surgery.

Our transplant team will be happy to arrange for you to meet with people who

have donated a kidney. You can reach the transplant coordinators at

How do family members know when it is time to consider

donation?

When a patient loses 90 to 95 percent of his or her kidney function,

life-saving treatment becomes necessary. This treatment can be either dialysis

(removal of wastes from the blood by an artificial kidney machine) or a kidney

transplant.

We sometimes perform kidney transplants on patients with 10 to 15 percent

remaining kidney function. This avoids the need for dialysis and the surgery

that a patient needs in order to undergo dialysis. Patients and family members

should discuss the benefits and disadvantages of each treatment with their

doctors.

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Do some donors have trouble making the decision to donate a

kidney?

Some people make the decision instantly with few worries or concerns. Others

go through some soul-searching before deciding. It is quite normal to be afraid

of giving a kidney and to experience guilt about not wanting to be a donor.

Remember: the only " right " decision is the one that makes you, the

potential donor, feel comfortable.

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Who can be a donor?

In addition to parents, children and siblings, living donors can also include

distant relatives, adoptive relatives, in-laws, friends, church members,

co-workers, etc. The donor and the kidney recipient need to have compatible

blood types, and the donor must be willing and healthy.

It is very important that potential donors understand exactly what the

procedure involves, including testing, surgery, recovery period and possible

risks. A psychological evaluation of a potential donor may also be conducted.

In order to be a potential donor, you must be in good general health. You

must not suffer from high blood pressure, cancer, diabetes, kidney disease or

heart disease. Donors can be between 18 and approximately 60 years of age.

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What's the first step in the donation process?

If you decide to be considered as a donor, two blood tests determine if your

blood type is compatible with the transplant candidate and the degree of HLA

matching. If your blood type is not compatible, you cannot donate. (More

information about HLA type match follows in this brochure.)

If your blood type is compatible, the transplant staff will discuss the

donation process with you. They will give you the information you need to make

an informed decision. All discussions are kept strictly confidential. Also, your

individual circumstances are evaluated. For example, can you take the time off

from work that is needed for surgery and recovery at home? If you decide to

become a donor, the rest of the evaluation begins.

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What does the rest of the evaluation include?

The HLA tissue typing test, performed as part of the first step, shows how

well you match with the recipient. Your blood cells are then mixed with the

serum of the recipient in a " crossmatch " test to see if that serum

" kills off " your cells. If cells are killed, it means that the immune

system of the recipient would reject your kidney.

Crossmatch tests are repeated a week before surgery because the crossmatch

can change. Even if the crossmatch is not favorable for a transplant now, it may

be favorable in the future.

Once the tissue typing and crossmatch are determined, you will see a doctor

of your choice or a transplant nephrologist at the Medical Center. The doctor

will do a medical history and a physical, as well as check your blood pressure

to ensure that you do not have any health conditions that would rule you out as

a donor.

A series of laboratory and X-ray tests are conducted to screen for kidney

function, liver function, hepatitis and other viruses or infections. A urine

collection shows if your kidneys are functioning normally. A chest X-ray and an

electrocardiogram make sure your heart and lungs are normal. Other tests may be

necessary depending on the results of these studies.

If the doctor agrees you are a good candidate, the final studies, a

computerized tomography (CT) scan and an intravenous pyelography (IVP), will be

done at the same time. In these tests, dye is injected into the bloodstream

through a vein in your arm. The dye travels to the kidneys and the urinary tract

while CT scans and X-rays are done. These tests help the transplant staff find

out if your urinary tract, kidneys and the blood vessels leading to them are

normal. These procedures are performed in the hospital on an outpatient basis

and usually take one hour. You can drive home afterwards. Tests will be arranged

by the transplant office.

Testing may occur at the University of land Medical Center or locally by

a private doctor. Tests by private doctors are completed under the direction of

protocols facilitated by the Medical Center's transplant coordinator.

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What are your health risks?

Death from kidney donation is extremely rare (about 3 in 10,000). Donating a

kidney does not change your life expectancy nor does it increase your chance of

kidney failure. The health effects of kidney donation have been and continue to

be carefully studied by several research groups in the United States. This

research has shown that kidney donation does not appear to put donors at any

increased risk for future health problems.

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Will giving a kidney affect your lifestyle?

A person can lead an active, normal life with only one kidney. Studies have

shown that one good kidney is enough to keep the body healthy. After recovery

from surgery, you can work, drive, exercise and participate in sports as usual.

You can continue in all types of occupations, including military duty.

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Do donors have any trouble keeping or getting insurance after

the operation?

A national study of 536 donors showed that donors have very few problems

getting insurance after the surgery. In the study, only four percent had

difficulty obtaining health insurance, four percent had problems getting life

insurance, and two percent had difficulty getting disability insurance.

In rare cases, a routine physical examination and a waiting period of from

one to three years was needed to satisfy the insurance companies.

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Will giving a kidney affect your ability to become pregnant or

to father a child?

There is no evidence that donating a kidney has any effect on the ability of

donors to have children. Among donors studied, 87 percent made no attempt to

have children, while 12 percent tried and were successful.

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If I decide to be a donor, how do I prepare?

You will receive counseling to help prepare you for the emotional aspects

related to donation. You will also be given specific instructions on how to

prepare for your surgery and recovery.

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What happens during surgery?

Once the surgery date has been set, another crossmatch test is given one week

before surgery. The day before surgery both you and the recipient come to the

hospital for pre-admission testing. You will not actually be admitted to the

hospital until the morning of the surgery. If you live far from the hospital,

local free hotel arrangements can be made through the transplant office. On the

night before surgery, you may not eat or drink anything after midnight.

The day of surgery, you and the recipient go directly to the Same Day Surgery

Suite at 6 a.m. The suite is on the eighth floor of the hospital, near the main

elevators. There, the staff will start an intravenous (IV) line through which

medications will be given to you during surgery. A patient escort will take you

to the operating room when it is time for your surgery. The transplant

coordinator will tell you when your surgery is scheduled.

Shortly after arriving in the operating room, the anesthesiologist will give

you a medication through your IV to put you to sleep. Surgery usually takes two

to three hours.

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What happens after surgery?

You will wake up in the recovery room feeling groggy and a little

uncomfortable. You will have an oxygen mask on and a catheter will be draining

urine from your bladder into a collecting bag. It is important for the medical

team to make sure your kidney is producing plenty of urine. The catheter usually

stays in for one day so that your urine output can be measured.

You will receive nourishment and fluids through your IV until you are able to

take liquids by mouth.

Medicine for pain will be given by your nurse when you request it. Or, you

may have a " patient controlled analgesia " device. This pump, connected

to your IV, delivers a small amount of pain medicine when you push a button.

Many patients prefer to control the amount of pain medicine they receive.

You will be encouraged to get out of bed as soon as possible -- usually the

day after surgery. During the rest of your hospital stay, you will be encouraged

to walk as much as possible. You may be fairly uncomfortable the first two or

three days, but that is normal.

You will stay in the hospital for two days. You will be scheduled for a

checkup with the surgeon or your doctor one week following surgery.

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What should I expect during my recovery at home?

When you go home, your activities will be limited. You should not lift

anything heavier than 25 pounds for the first six weeks. You may find that you

need frequent naps for the first few weeks.

Listen to your body and do what it tells you. You should not plan on

returning to work until seven to ten days after your surgery, depending on the

type of work you do. Walking is very good exercise and is encouraged. Don't do

anything that feels uncomfortable. If you have any questions regarding your

condition, check with your doctor. Take the time you need to recuperate fully.

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What emotions do donors say they feel after the surgery?

Many donors say they feel positive because they have helped the recipient.

Even in the rare instances where the transplant is not successful, donors say

they benefit by knowing that they did their very best to help a relative or

friend. A small minority of kidney donors have negative or mixed feelings after

surgery. It is important that you learn as much about donation as possible and

discuss any questions or concerns with your family and the transplant team

before making your decision.

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Who pays for your medical costs?

As a donor, your medical costs are covered by the recipient's insurance. Most

insurance companies pay 100 percent of donor's medical bills, including

pre-transplant evaluation, hospitalization and follow-up medical care for at

least one year after the operation. If the recipient's private insurance will

not cover your costs and if the recipient is eligible for Medicare's End Stage

Renal Disease (ESRD) program, your medical bills will be covered by Medicare. If

the recipient does not have Medicare before the transplant and private insurance

does not cover the full amount, the Medical Center will be responsible for all

donor bills not covered by private insurance. It is important to discuss

financial issues with the transplant financial coordinator.

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Are there any expenses not paid by private insurance or

Medicare?

Generally, public and private insurance programs will not pay for travel and

lodging expenses, lost wages, child care or daily living expenses incurred

during pre-surgery testing and follow-up visits after the operation. It is

important to discuss the potential financial consequences of donation with the

transplant financial coordinator.

For more information call:

Transplant Program:

Toll-free patient information: 1-

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Great site Louis. Very informative. Thanks for the info. My patient happens to be a kidney recipient, but I think the problem is with both. Thanks

Pat Hogan

-----Original Message-----From: Louis Sent: Tuesday, September 21, 2004 4:01 PMTo: TxFinancialCoordinators Subject: Q & A for Kidney DonorsSee our web page at http://www.lahey.org for a full directory of Lahey sites, staff, services and career opportunities.THIS MESSAGE IS INTENDED FOR THE USE OF THE PERSON TO WHOM IT IS ADDRESSED. IT MAY CONTAIN INFORMATION THAT IS PRIVILEGED, CONFIDENTIAL AND EXEMPT FROM DISCLOSURE UNDER APPLICABLE LAW. If you are not the intended recipient, your use of this message for any purpose is strictly prohibited. If you have received this communication in error, please delete the message and notify the sender so that we may correct our records.

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