Re: Newbie but not new to EN

[Guest guest]

Hi Zoo,

I am sorry to here that you have had a horrible time with the

EN and the other things you have going on. I live in Ohio as well. Are you

from Ohio? I am from out west. I found that my En and my other issues got

worse when I moved to Ohio. I have more problems with allergies, bigger EN

flares and so forth. It definately is more humid and moist here. Lots of

Fungi......Yuck!!!!!!! I recall a few other members saying they were form

Ohio as well however I haven't seen any messages lately...I hope that all is

well ..... Anyway welcome to the group. I hope that you will find support

here. There are a lot a really neat people here.

>

>Reply-To: erythema_nodosum_Group

>To: erythema_nodosum_Group

>Subject: Newbie but not new to EN

>Date: Fri, 02 Apr 2004 07:58:02 -0000

>

>Hi I'm Zoo. I joined this site because of my not so wonderful battle

>with EN. I was first diagnoised back in July, 1996. It will be 8

>years this July since those first small painful red lumps. Now they

>are not so small. The nodes are about golf ball sizes. When the

>bruises are there from older nodes, there are always nice hot red

>wons surrounding them. I ended up in the hospital in September,

>2003. I had a very bad active case of EN, head to toe with hives and

>itching, joints completely swollen and red and I could not lift my

>arms or walk. At that time they were ruling out Lupus. Thus far

>they have thank goodness. I feel like I have gone through the ringer

>just trying to find the cause of this. I was even sent to The

>Cleveland Clinic and nothing. That was really a big disappointment.

>I am now working with a new dermatologist whom I think is great. I

>am also working with a allergist/immunologist. They both want to

>decensatize(sp) me back onto a med I took years ago that worked

>great. Problem back then is that I became allergic to with the hives

>and itching. It is SSKI. I know there is always risks involved in

>going back on a med that you are allergic, but I'm desperate right

>now. Just tried Colchicine and well it hated me. I got more EN and

>had severe diarrhea. Along with the EN, I have severe chronic right

>shoulder/trapeza/neck pain from a cut to my spinal accessory nerve

>caused by a surgeon whom was doing a biopsy on a swollen lymphnode in

>which a few doctors thought that may have caused the EN. So I now go

>through endless nerve blocks and have to wear a TENS unit for the

>rest of my life. It strange, I think of all that is wrong with me

>and well the one thing I would love to be able to do in life again is

>wear a pair of shorts without someone constantly looking at my legs

>because of the EN. Strange!!!

>

>Anyhow, I thought I'd just introduce myself a bit. Oh yeah, I live

>in Ohio and do work full time in a hospital (registration). It is

>really rough at times when I am weak and in pain. But I the sole

>provider, it is only me and someone has to pay for the bills and

>medical treatments.

>

>Thanks for listening to me ranting.

>

>

>Zoo

>

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[Guest guest]

Hi ,

Thank you for the welcome. Born in Akron, Ohio and only left in 1986

and 1987 to live in Miami. Still wondering why I left that wonderful

weather to come back here. Oh yeah, some odd reason I love 4 seasons

instead of one.

zoo

In erythema_nodosum_Group , " mayfield "

<creolemoon74@h...> wrote:

I live in Ohio as well. Are you

> from Ohio? I am from out west. I found that my En and my other

issues got

> worse when I moved to Ohio. I have more problems with allergies,

bigger EN

> flares and so forth. It definately is more humid and moist here.

Lots of

> Fungi......Yuck!!!!!!! I recall a few other members saying they

were form

> Ohio as well however I haven't seen any messages lately...I hope

that all is

> well ..... Anyway welcome to the group. I hope that you will find

support

> here. There are a lot a really neat people here.

>

[Guest guest]

Hi Sharon,

I am seeing a dermatologist by the name Eliot Mostow and

allergist/immunologist by the name of ph . I switched

to Dr. Mostow only about 5 weeks ago. I did not want to go back to

my previous dermatologist for all he wanted to do was inject each

nodes and tell me to wear the support stockings. Not sure about

anyone else, but I can't wear loose socks over the EN let alone tight

support stockings. Got hooked up with Dr. after I ended up

hospitalized in September. My PCP really seems to like them both and

thus far, I do to as they talk with me and ask my imput about things.

Where abouts do you live? Still in Akron for me and will probably

always be here.

Zoo

> Zoo, who do you see for your EN?

>

> What part of the Buckeye State do you live in now?

>