new to group

[Guest guest]

Hello! I wanted to say that I am new to this group, but not to

Chiari. I had surgery five years ago in October. I still have

problems with it, but not as bad as I did before and not as often. I

know that this is a lifelong problem, and have always wanted to find

more people out there who have gone through what I have.

[Guest guest]

Hi , I was wondering if the first BM he did was the impaction finally coming out. It was really hard and a bunch of "balls" compacted together. That makes sense to me now. My son is non-verbal autistic. His constipation didn't start until he was 3 1/2 yrs. old. I thought it was because he was holding it while in preschool at the time. I called a DAN dr. about 6 months ago, and was told that I would have to pay $1,000 up front before I could make the appt. We just don't have that kind of money after paying for his private therapies, social groups, etc.. I called a hollistic place nearby, but they are booked and not taking new patients. In the meantime, I am trying to figure all this out. I did buy the Aloe Juice yesterday, so I will try that

this weekend. School vacation next week, so it will be safe to try something new. I did buy Houston Enzymes, but he wouldn't eat the chewables. They taste pretty good, but he wouldn't chew it. The public school my son is in right now, would not be receptive to giving him anything without a Dr.'s note, so before I do that, I wanted to get him into taking them steadily at home first. I do have Magnesium here that I bought from BioRay. How do you know how much to give them? Is it possible to give them too much? Thanks for the help. Kelley littlelief wrote: Hi Kelley,Poor guy - sounds like he was impacted & the enema cleared that out -and the mush was what was building up behind the impaction. It isimportant to get the impaction out - in the studies on most of thelaxatives (and as explained in the JPGN article in the files), ifimpaction is present, it was cleared out before beginning"maintenance" laxative. Good that he's cleared out, now need tofigure out how to keep him going comfortably - probably will take sometrial and error.Have you consulted a naturopath, chiropractor, and/or DAN! doctor? Itook my NT son to a DAN! because I knew she would be more well-versedin these gut issues, in the testing that mainstream docs don'ttypically do, and in

the more natural alternatives and bio-medicalinterventions. We gleaned a *lot* of info from the testing andconsultation (including his gluten intolerance that I never suspected).Enzymes: I give the enzymes at start of meals/snack and giveprobiotics at end of meals. That's just what I've decided I feelcomfortable with. I've read at the "enzymes and autism" board thatpeople have contacted the makers of Houston Enzymes and have been toldit is o.k to give the Houston enzymes along with probiotics. Youcould contact Kirkman and ask their thoughts about it. Also, I've read at "enzymes and autism" board that some people meltchocolate, put the enzymes in and make little wafers to give theirkids. You might find it very helpful to join that group also - evenif you child is not on the spectrum, there are many of us with "NT"kids there and I have found a LOT of useful info there as well.My son's 3, only in school 2

days/wk for 3 hours. They get one snackand I overlook the enzymes for that one. The "enzymes & autism" boardcan probably give suggestions for school - maybe having school nursehelp? (may need doctor's note?.. no idea) or ?? My understanding isthat they generally need to be given at each meal and snack. I've also read (I think at the E & A board) that it can beconstipating to add in the enzymes - my guess is probably due topotentially stirring up yeast or other unfriendly flora?...My suggestion would be to start with one change at a time. We wentgluten free (we already were CF/SF), added eggs back into his dietafter years off, AND added digestive enzymes at the same time and weended up with a big battle of constipation. I initially blamed it onthe eggs but looking back, I don't know which to blame it on since wedid multiple changes at once. It could be the combo of stopping allgluten cold-turkey (which

can, in my estimation, cause yeast die offbecause wheat/grains feed yeast; and/or this may have induced a bigoxalate "dump" because we removed several sources of oxalate) AND/ORthe addition of the digestive enzymes (which might further result inyeast die off??), AND/OR the eggs or ?? All I am trying to say is start slow, one thing at at time and watchfor reactions. Personally, I would work out what it takes tobe having as 'normal' as possible of a bowel movement on a regularbasis (e.g., tweak the right magnesium dose or whatever otherlaxative). Then add in the digestive enzymes. (this is justmy opinion).AVJ: I give my 3 yr old, 35lb son about 1 oz in diluted juice once ortwice a day. He still needs magnesium, too. Others here mayhave recommendations if they use only aloe vera juice?...?HTHbest,> > >> > > I was told about this group from another

member of a yahoo group I> > belong to for NCD.> > > > > > I am glad they told me about this group.> > > > > > Two weeks ago I started giving my 6 yr. old non-verbal Autistic> > son Miralax. I was giving him 1/2 tsp. around 4-5p.m. On day three,> > when I put him to bed he was "off the wall" hyper. Running around the> > room, jumping on the bed etc. for three hours and then waking during> > the night and staying awake for approx. 2 hrs.. He will usually take> > about 1/2-1 hr. to finally fall asleep, but he is never that hyper. > > He has been sleeping through the night since starting Neurofeedback 1> > 1/2 yrs. ago. (He does have random nights when he wakes, but nothing> > like before).> > > > > > I didn't relate this behavior to the Miralax until after the third> > night. On the fourth day, I

didn't give him the miralax as he was> > having about three BM's per day at that point. That night he was calm> > and exhausted (I am assuming from the 3 horrible nights of sleep).> > > > > > I stopped the miralax completely.> > > > > > I did give him Omega 3-6-9 for about 6 months, and that made him> > have a BM everyday. He just wouldn't take it anymore. I also tried> > Oxypowder, but he didn't like that either.> > > > > > I like the Miralax, because it dissolved in the water and he> > didn't even know it was there.> > > > > > I give my son 2 1/2 packets of threelac for yeast per day (I am> > working him up to 3 slowly as to not have severe die off symptoms).> > > 10 drops of NCD in the A.M. and 10 drops of NCD in the P.M.)> > > > > > I am trying two work digestive

enzymes into him, but he won't eat> > the chewables. I am trying to figure out how to get a powder enzyme> > into him.> > > > > > Does anyone use a "all-in-one" enzyme that doesn't smell or taste> > horrible?> > > > > > Does the Aloe Juice have a taste to it and if so, how to you get> > your child to take it?> > > > > > Thank you,> > > > > > Kelley > > > > > > > > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. > > Try it now.> > >> >> > > > > > > ---------------------------------> Never miss a thing. Make Yahoo your homepage.>

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Kelley,

RE: magnesium

Generally speaking, the idea is to start low and work up to a dose

that basically causes diarrhea, then back off by an increment for

maintenance. This is what my midwife recommended to a friend for

constipation during pregnancy and has been discussed here as well.

First, I would consider what form of magnesium you have (and if it has

any other ingredients that could affect him).

Here's an article on magnesium in general and has some info on the

various forms available:

http://dietary-supplements.info.nih.gov/factsheets/magnesium.asp

Magnesium citrate seems to be preferred by many here (as far as I can

tell) and is often recommended at some of the other boards when

constipation chatter comes up.

My son seemed to get more hyper/inattentive on mag citrate and I later

found out he has delayed food allergy to citrus. I haven't been able

to find a source that directly says that citrus allergies can result

in negative reactions to " citrate " forms of supplements, but he does

much better on MOM (milk of magnesia).

(Note: the cherry flavored MOM has several other ingredients in it

(dyes, excipients, etc.) but the original MOM (which is magnesium

hydroxide, water, and sodium hypochlorite - so a lot less other junk)

is a bit harder to get him to drink, can sometimes sneak it in with

juice or with rice milk. I prefer the plain to the

cherry flavor due to fewer ingredients...)

I cannot speak to anything but my own experiences (and I'm not a

physician) with my son. I started with MOM chewable tablets because

that one had recommended dose on the label for children as young as 3

(at the time, DS was about 2.5). That dose did not seem to be working

and I called our mainstream pediatrician who o.k.'d upping the dose to

1.5x the recommended dose. When he stopped accepting the MOM

chewables we switched to MOM liquid and I went with the same dosage

(in terms of elemental magnesium - approximately 400mg elemental

magnesium (~12mL of liquid MOM)). Some days it seems he needs nearly

twice the dose (but that's rare).

Three more considerations: 1) different forms of magnesium have

differing efficacies (e.g., due to differing degree of

bioavailability), 2) when comparing dosage between forms of

magnesium, it may be a good idea to compare the amount of " elemental

magnesium " in each dose rather than the total amount of magnesium

salt. (see above-linked article for explanation of " elemental

magnesium " and I think it had a bit on bioavailability as well... 3)

while magnesium deficiency can be a cause of constipation and

magnesium supplementation can relieve it, it doesn't relieve

constipation effectively for all people....

It's getting late - i hope this makes some sense?!...

hth!

> > > >

> > > > I was told about this group from another member of a yahoo group I

> > > belong to for NCD.

> > > >

> > > > I am glad they told me about this group.

> > > >

> > > > Two weeks ago I started giving my 6 yr. old non-verbal Autistic

> > > son Miralax. I was giving him 1/2 tsp. around 4-5p.m. On day three,

> > > when I put him to bed he was " off the wall " hyper. Running

around the

> > > room, jumping on the bed etc. for three hours and then waking during

> > > the night and staying awake for approx. 2 hrs.. He will usually take

> > > about 1/2-1 hr. to finally fall asleep, but he is never that hyper.

> > > He has been sleeping through the night since starting

Neurofeedback 1

> > > 1/2 yrs. ago. (He does have random nights when he wakes, but nothing

> > > like before).

> > > >

> > > > I didn't relate this behavior to the Miralax until after the third

> > > night. On the fourth day, I didn't give him the miralax as he was

> > > having about three BM's per day at that point. That night he was

calm

> > > and exhausted (I am assuming from the 3 horrible nights of sleep).

> > > >

> > > > I stopped the miralax completely.

> > > >

> > > > I did give him Omega 3-6-9 for about 6 months, and that made him

> > > have a BM everyday. He just wouldn't take it anymore. I also tried

> > > Oxypowder, but he didn't like that either.

> > > >

> > > > I like the Miralax, because it dissolved in the water and he

> > > didn't even know it was there.

> > > >

> > > > I give my son 2 1/2 packets of threelac for yeast per day (I am

> > > working him up to 3 slowly as to not have severe die off symptoms).

> > > > 10 drops of NCD in the A.M. and 10 drops of NCD in the P.M.)

> > > >

> > > > I am trying two work digestive enzymes into him, but he won't eat

> > > the chewables. I am trying to figure out how to get a powder enzyme

> > > into him.

> > > >

> > > > Does anyone use a " all-in-one " enzyme that doesn't smell or taste

> > > horrible?

> > > >

> > > > Does the Aloe Juice have a taste to it and if so, how to you get

> > > your child to take it?

> > > >

> > > > Thank you,

> > > >

> > > > Kelley

> > > >

> > > >

> > > > ---------------------------------

> > > > Be a better friend, newshound, and know-it-all with Yahoo!

Mobile.

> > > Try it now.

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make Yahoo your homepage.

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>